Tiny Dancer by A Song for Lily-Mae

Tiny Dancer by A Song for Lily-Mae Lily-Mae Morrison was diagnosed on the 1st June 2012 with a rare form of cancer called Neuroblastoma which effects 1 in 100,000 children in Ireland.
(1083)

Four year old Lily-Mae Morrison from Claregalway is suffering from Stage 4 Neuroblastoma, a rare and extremely aggressive childhood cancer of the nervous system. She is the daughter of professional ballet dancers, Judith Sibley and Leighton Morrison. When she grows up, she wants to be a ballet dancer like her Mummy and Daddy but Neuroblastoma is not playing nicely, it wants to kill her. She likes

the colour purple and dinosaurs, and particularly likes purple dinosaurs. She also likes fairies and, more often than not, imagines herself as one. She would like to 'magic' the pain away but there's no magic in the real world and as a trainee fairy, she finds this a little bit confusing. Neuroblastoma doesn't like noise and we want to create as much noise as possible. We really need your help and support to make this a success; we need you to be Lily-Mae's champion; to help us make all this noise; to make Neuroblastoma a cancer that people don't have to google; to make it so that people know that they need to target their giving to support research into a disease that is incredibly effective at killing those with the most life to lose, our children.

💕💕💕 18 Today 💕💕💕It’s a very long time since you’ve heard from us, but as our not so Tiny Dancer is 18 today , we felt we...
18/04/2026

💕💕💕 18 Today 💕💕💕
It’s a very long time since you’ve heard from us,
but as our not so Tiny Dancer is 18 today , we felt we had to share.
Like all moms when their babies are growing up, I’ve been really emotional this week, reflecting on everything over the last 18 years.
And my word, what an experience this last 18 years has been!
Being a mom doesn’t come with a handbook, we all just muddle along as best we can, hoping we’re getting it right and that we’re guiding our children to be the best version of themselves possible and that they will lead a meaningful life, surrounded by love.
Being Lily-Mae and Evan’s mom has been the absolute greatest gift and I am so very, very blessed that she survived Stage IV High Risk Neuroblastoma.
I’ve always been so grateful for her life and have never taken a moment for granted, I’m a very emotional person, I blame the artist part of me…. and I often feel tears welling up just watching my pair do just ordinary stuff. As a mom, when you’ve faced what was essentially a death sentence for your child, there is never such a thing as ‘ordinary’ ever again.
But what extraordinary gifts my girl gave me.
Love, oh so much love there simple aren’t words.
Patience, kindness, empathy, compassion , bravery, resilience and much more are all learnt from being a cancer mom to my Lily-AMAZING.
As all single moms know, being a working, single mom is like being a C.E.O of a large firm all the time, but it brings with it double the rewards and double the love.
And my girl, she’s just simply awesome 💕
A talented artist, wonderful at anime, a creative writer with a super imagination, she has the cutest , alternative fashion style , she’s passionate about music and movies and has excellent taste in both, she’s beautifully crazy and has a wicked sense of fun, she loves modern musicals , going to theatre and live gigs.
She still performs with stage school, she has lots of really good friends and she and Evan get on brilliantly.
And she remains strong and resilient as ever.

This morning, before opening presents, I showed her the letter I wrote for her on the eve of her 5th birthday, a letter full of pain but also of hope.
She didn’t say much about it but she knows how lucky we are.
Just before Christmas we finished up in Crumlin after 13 years and her oncologist went through all her treatments with her and explained all the longterm risks, daunting to say the least, but we’re not worriers , so we won’t let those things in.
Every moment of being Lily-Mae’s mom has been incredible, even the hard years , we always made the best of every situation together.
Just life, please slow down, it’s all just flying by far to fast.
With love,
Tiny Dancer’s Mom
(A title I remain very proud of)

So proud of our ‘not so Tiny Dancer’ as an advocate for Research: Beat Childhood Cancer.This picture is of Lily-Mae & Ju...
11/10/2024

So proud of our ‘not so Tiny Dancer’ as an advocate for Research: Beat Childhood Cancer.
This picture is of Lily-Mae & Jude heading to Taylor Swift in the summer.
Her outfit is inspired by the Love album 💕

"Lily-Mae Morrison is 16 years of age and from Galway in the beautiful West of Ireland. Lily-Mae is passionate about music, going to concerts, modern musicals, theatre & film. She loves singing and dancing, is a talented animae artist & adores creating movie edits.

When Lily-Mae was 4 she was diagnosed with stage IV High Risk Neuroblastoma. After completing frontline treatment in Ireland and the U.K., her mom, Jude, decided to enroll her on Dr Giselle Sholler’s DFMO trial in Grand Rapids, aiming to prevent relapse. It was 2013 and DFMO was very new then. Lily-Mae was the first non-American patient on the trial and the first child in Europe to enroll on a trial to prevent relapse.

We absolutely loved going to America, Lily-Mae and her younger brother, Evan, adored the snow in Michigan! We met incredible friends over there who made every trip super fun for us and remain friends for life. To raise the necessary funds for treatment, a huge group of Irish singers came together to record a version of Elton Johns, Tiny Dancer, which instantly became a number 1 hit in Ireland and charted across the world. Lily-Mae became Ireland’s Tiny Dancer and we are forever grateful for how the Irish public embraced Lily-Mae in our time of need."

Tiny Dancer by A Song for Lily-Mae

Our beautiful 16 year old girl.She is proud to be an advocate for kids with cancer with Solving Kids' Cancer this Septem...
19/09/2024

Our beautiful 16 year old girl.
She is proud to be an advocate for kids with cancer with Solving Kids' Cancer this September, Childhood Cancer Awareness month 🎗️❤️🎗️❤️

Lily-Mae is 16 years old. She was diagnosed with cancer when she was four years old🎗️

Tiny Dancer by A Song for Lily-Mae 💛

Address

C/O An Táin Arts Centre, Crowe Street
Dundalk

Alerts

Be the first to know and let us send you an email when Tiny Dancer by A Song for Lily-Mae posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to Tiny Dancer by A Song for Lily-Mae:

Share