PSPA Ireland

25/08/2026

Kicking CBD: Point Celtic V Faughart Rovers FC

Jack Finnegan and the teams are gearing up for the Kicking CBD fundraiser for PSPA Ireland. Corticobasal Degeneration is a rare progressive neurodegenerative brain disease that affects mobility, co-ordination and thinking. Often starting with stiffness in an arm or limb on one side of the body. Then progression to difficulty with everyday tasks, changes in speech, thinking and memory. There is currently no cure or disease modifying treatment. Help Jack to raise funds and awareness. Share this post, donate or attend the match in Dundalk on 12th September when Point Celtic take on Faughart Rovers FC

Donate https://www.idonate.ie/fundraiser/pointcelticfc

25/08/2026

Climbing Ben Nevis For PSP
A huge congratulations to Matt Jupe and his team Nick Jupe Stephen O'Brien and Séan O'Brien on their successful climb up Ben Nevis. Thank you to all who supported their fundraiser. They have raised €3,612 so far.

Check out Matt page at
https://www.gofundme.com/f/psp-ireland?

16/08/2026

The annual PSP Information Day is an informative and interesting day for anyone attending. The meeting is suitable for those diagnosed with PSP/CBD, carers, families and friends, healthcare professionals, researchers who wish to learn and gain understanding of these progressive conditions :Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) . Speakers are healthcare professionals with a working knowledge of these conditions. Come along, ask questions, meet the team.
BOOK NOW
Telephone: 087 3821377 between 10.30 and 2pm Monday- Thursday for bookings or email [email protected]

15/08/2026

Kicking CBD
Jack lost his gran to the rare disorder Corticobasal Degeneration and Bernadette to dementia. To raise awareness and also help fund research into CBD he has organised a football match Point Celtic verses Faughart Rovers in Dundalk on Saturday 12 September. Find out more and support this fundraiser at
https://www.idonate.ie/fundraiser/pointcelticfc

15/08/2026

Interactive Family Science show with Mark Langtry-the Science Guy
Learn about the wonders of the brain .
Suitable for children ages 7-12 and their grown ups
Tickets still available for 22 August 2026 Time 11.30-12.15

https://www.eventbrite.ie/e/family-science-show-your-incredible-brain-tickets-1996091854470

15/08/2026

Climbing Ben Nevis for PSPA Ireland
Matt Jupe and his team mates Patrick Murphy, Nike Jupe, Stephen O'Brien and Sean O'Brien have been training very hard for their climb on 22 August 2026 You may have spotted them in Glendalough or on the Sugar Loaf or out and about. If you do don't forget to give them a wave and a big shout out. Despite his recent diagnosis of Progressive Supranuclear Palsy Matt is out every day training and determined to raise awareness and to fight for himself and others with PSP. Please support Matt and the Team at
https://www.gofundme.com/f/psp-ireland?utm_id=97757_v0_s00_e0_tv2_a1demo0ebn3xl3&fbclid=IwY2xjawTtx3VwZG9mAWV4dG4DYWVtAjExAHNydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR6rpx10V2YH5Wo4t1sJGA6oBUVbJWN4A-cznyfPCv9ue6nGR0kZ7Ix-buClAA_aem_TR5U0RAP2bBXiPrWYwyMKA

Some people think I’m mad… and maybe they’re right! From abseiling to now taking on Ben Nevis, th… Matt Jupe needs your support for Climbing Ben Nevis for PSP

15/08/2026

PSPA Ireland were delighted to attend the NAI EU Presidency event :Neurology at the Forefront of Innovation in Knowledge-Based Healthcare and Research Across Europe. A milestone event that brought together Irish and European organisations representing people with Neurological conditions and clinicians, researchers, elected representatives and MEP's to discuss the growing need to proactively address neurological needs by developing systems and investing in research.
A recording of the event is available here: https://www.youtube.com/watch?v=O3lmXt64fus

15/08/2026

Living on ‘wrong’ side of HSE area boundary means Tipperary man cannot access nearest specialist neurorehabilitation team

15/08/2026

Irish and European experts in neurological conditions have called for a European neurological health strategy.

15/08/2026

MEP Adam Jarubas, Chair of the EU Parliament SANT Committee on Pub...