Prader Willi Syndrome Association Ireland (PWSAI)

Prader Willi Syndrome Association Ireland (PWSAI) Seeking a world where people with Prader-Willi Syndrome, their families, and their carers are supported in all aspects of care, education, and well-being.

Prader-Willi Syndrome Association of Ireland,
Carmichael Centre, 4, North Brunswick Street,
Dublin 7. D07 RHA8,

Reg. CHY number:15171
CRA Reg. 20051693
Company Registration: 364058

Website: www.pwsai.ie
Donate: https://www.idonate.ie/pwsai/642/donate

SUAS is the subcommittee for adults with PWS in Ireland! Gary wrote a piece for Disability Federation of Ireland’s repor...
24/06/2026

SUAS is the subcommittee for adults with PWS in Ireland!

Gary wrote a piece for Disability Federation of Ireland’s report!
Fantastic to see a feature on the incredible SUAS- the voice of people with PWS and helping to improve the future for all

A big Happy Big Birthday to Gary, our National Development Manager- a true advocate for every person with PWS, making a ...
24/06/2026

A big Happy Big Birthday to Gary, our National Development Manager- a true advocate for every person with PWS, making a huge difference to the lives of everyone with PWS

Enjoy the day Gary!! 🎈🎊

Thank you from us all for all you do for people with PWS, their families and the people supporting them 🧡

🧡 Never underestimate a person with PWS 🧡Henri’s mum Michelle’s shared with us that over the weekend he ran 5Km for his ...
22/06/2026

🧡 Never underestimate a person with PWS 🧡

Henri’s mum Michelle’s shared with us that over the weekend he ran 5Km for his school!!
Henri you’re a star!!! 🌟 👏🏻🎊💪🏻

To the Dads, Das, Papas, Daddy’s and Fathers wishing you all a Happy Fathers Day! 💪🏻🎊A special shoutout to the Dads in P...
21/06/2026

To the Dads, Das, Papas, Daddy’s and Fathers wishing you all a Happy Fathers Day! 💪🏻🎊

A special shoutout to the Dads in PWSAI who do lots to further the mission of PWSAI: Rory, Derek, Don, Anthony, Sean, Paul, Donnchadh and Gary 🧡🎊👏🏻

A huge thank you to all the families who joined us in Barretstown Children's Charity today to begin our 40th birthday ce...
20/06/2026

A huge thank you to all the families who joined us in Barretstown Children's Charity today to begin our 40th birthday celebrations!

And a huge thank you to Team Barretstown for hosting us. It’s a magical place with magical people and we thank you for your kindness and fun… and for doing everything possible to make it a fun day for people with PWS and their families 🧡

A huge best of luck to all the athletes with Prader-Willi syndrome taking part in the Special Olympics Ireland Summer Ga...
18/06/2026

A huge best of luck to all the athletes with Prader-Willi syndrome taking part in the Special Olympics Ireland Summer Games this weekend! 🧡

We know the commitment, determination and hard work it takes to train, compete and step onto the field of play.

We’re cheering for every athlete giving it their all, making friends, building confidence and representing their clubs, communities and families with pride.

Enjoy every moment, have fun and know that your PWSAI family is cheering you on every step of the way. 🏅👏

Good luck everyone!

Best of luck to Jayne and her team! 🎊💪🏻👏🏻🎊💪🏻👏🏻
18/06/2026

Best of luck to Jayne and her team! 🎊💪🏻👏🏻🎊💪🏻👏🏻

🦁 Meet Lena – the PWSAI Mascot! 🦁After much discussion and voting, the members of SUAS have chosen a name for our new ma...
15/06/2026

🦁 Meet Lena – the PWSAI Mascot! 🦁

After much discussion and voting, the members of SUAS have chosen a name for our new mascot…

Lena!

This name couldn’t be more fitting as PWSAI celebrates its 40th anniversary.

Forty years ago, a mother called Lena opened her sitting room door and invited a handful of families together. At a time when information was scarce and support was limited, those families found connection & understanding.

The name Lena is often associated with light, brightness and a shining torch.

That feels especially appropriate.

One sitting room became a national community.

One small group of families became an association supporting people with PWS and their families across Ireland.

As we celebrate 40 years of PWSAI, we’re proud that our mascot carries the name of the woman who helped light the way for so many.

On your feet for these two remarkable ladies! Congratulations Bronagh and Emma 🥳🤩🥳🤩
09/06/2026

On your feet for these two remarkable ladies!
Congratulations Bronagh and Emma 🥳🤩🥳🤩

Finn was determined to get the PWS 5K done! Congrats Finn- PWS 5K completed and a fantastic job with fundraising too! 🎊👏...
08/06/2026

Finn was determined to get the PWS 5K done! Congrats Finn- PWS 5K completed and a fantastic job with fundraising too!

🎊👏🏻🎊👏🏻

Address

Carmichael Centre, 4 Brunswick Street North Arran Quay
Dublin

Telephone

+353872522832

Website

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