Prader Willi Syndrome Association Ireland (PWSAI)

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Prader Willi Syndrome Association Ireland (PWSAI) Seeking a world where people with Prader-Willi Syndrome, their families, and their carers are supported in all aspects of care, education, and well-being.

Prader-Willi Syndrome Association of Ireland,
Carmichael Centre, 4, North Brunswick Street,
Dublin 7. D07 RHA8,

Reg. CHY number:15171
CRA Reg. 20051693
Company Registration: 364058

Website: www.pwsai.ie
Donate: https://www.idonate.ie/pwsai/642/donate

09/10/2026

It's here! PWSAI Family weekend 2026, an extra special one as we celebrate 40 years as an organisation!! 🥳

Safe travels everyone!

And to our families and friends who can't make it this year, we will miss you and hope to see you in 2027 🧡

05/10/2026

Lulu has a message for us all…

Happy PWSAI Family weekend-week 🥳

The countdown is on!
Info about the weekend will be emailed later this morning 🧡

🦁🏃‍♀️ THE FINAL COUNTDOWN IS ON! 🏃‍♂️🦁Our Team PWSAI Dublin Marathon runners are entering the taper zone! 🎉The long runs...
02/10/2026

🦁🏃‍♀️ THE FINAL COUNTDOWN IS ON! 🏃‍♂️🦁

Our Team PWSAI Dublin Marathon runners are entering the taper zone! 🎉

The long runs are nearly done! Now it’s time to rest the legs just a little before the big day!

We’re so proud of you all all 🧡
You’ve put in the miles. Now bring on Dublin! 🏅

Workshop for Parents/Carers of people under 12 years old with PWS.This is also open to childminders, extended family, pe...
25/09/2026

Workshop for Parents/Carers of people under 12 years old with PWS.
This is also open to childminders, extended family, people who care for a child with PWS.

When: Sunday 8th November
Where: Midlands Hotel Portlaoise
Time: 10am to 3pm

Register for your place: https://pwsai.ie/2026/09/25/workshop-for-parents-carers-of-children-under-12-years/ or email Emma at [email protected] for the form.

Topics covered: the day to day practical tips of a raising a child with PWS, from family occasions, to school, to days out, food security and routine and also advice on behaviours that can challenge. Need more info: Ask Emma.

Please register!

This workshop is being held with huge thanks to our fundraisers! It wouldn't be possible without you. Thank you!

Can we come to your town in 2027?🧡 Would you be interested in hosting the PWSAI Family Weekend 2027?We’re looking for a ...
22/09/2026

Can we come to your town in 2027?

🧡 Would you be interested in hosting the PWSAI Family Weekend 2027?

We’re looking for a family to help choose and book the hotel and organise some activities. I will help with lots of it and I'm always on hand for advice and support.

It’s simply about bringing our PWS community together for a fun weekend to connect and celebrate. 🦁🧡

Interested? Send me a message.. [email protected]

21/09/2026

SUAS Social September 2026! A chance for adults and teenagers with PWS to get together, get to know each other and have a bit of fun and a laugh!

Our SUAS Subcommittee made up of adults with PWS plan and run the event, with a little help from Gary, Ann and Emma. A huge conrgats to the SUAS Subcommittee. Another fantastic day of fun and friendship!

Dates for SUAS Socials 2027 will be out soon!

“My children are hungry all the time too.”We know children get hungry. But hunger in Prader-Willi syndrome (PWS) is diff...
18/09/2026

“My children are hungry all the time too.”

We know children get hungry. But hunger in Prader-Willi syndrome (PWS) is different.

PWS affects the brain’s ability to regulate hunger and fullness. The drive to eat can be much stronger and feeling satisfied after eating can be very different.

It’s not simply “loving food” or a lack of willpower.

That’s why food security, routine and consistency are so important for people with PWS.

PWS is rare. Understanding the difference matters.

*Parents of Under 12s* Hi Parents,I’m looking to see what level of interest there would be in a parent-led workshop for ...
17/09/2026

*Parents of Under 12s*

Hi Parents,

I’m looking to see what level of interest there would be in a parent-led workshop for parents and carers of children with PWS aged 12 and under.

This would be a relaxed, practical session led by parents, for parents and carers. It would also be open to childminders, grandparents, extended family and anyone else who regularly minds or cares for your child.

We’ll cover the day-to-day realities of raising a child with PWS, from playschool and school, to holidays, family occasions, supporting siblings and everything in between.

Topics will include:
🍊 Food security and managing food around everyday life
💛 Positive behaviour support
🏫 Playschool and school
✈️ Holidays and days out
🎉 Birthdays, parties and special occasions
🏠 Managing everyday life at home
💡 And, of course, all the hints, tips and practical advice I’ve picked up from raising Henry over the last 14 years!

The aim is to share real-life experiences, practical ideas and things that actually work.

If this is something you’d be interested in attending, please let me know and I’ll get a date in the diary. It will be an inperson workshop- venue tbc but a midlands location for convenience for all.

Email [email protected]

Have you filled in your family group information for the Family Weekend? We need to know who will be there so we can cel...
16/09/2026

Have you filled in your family group information for the Family Weekend?
We need to know who will be there so we can celebrate every person with PWS and let the hotel know numbers for our Gala dinner.

Please contact Emma asap to give your groups information [email protected]
Emma will send you the form to fill in.

Thank you

Hi all, to hear about all the work PWSAI does throughout the year please join our AGM on the 20th October at 8pm online....
15/09/2026

Hi all, to hear about all the work PWSAI does throughout the year please join our AGM on the 20th October at 8pm online.

To receive the link to join please fill in the form located on our website https://pwsai.ie/2026/09/14/pwsai-agm-2026/

Address

Carmichael Centre, 4 Brunswick Street North Arran Quay
Dublin

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