Irish Fragile X Society

12/10/2026

10/10/2026

Please check out Fragile X International on YT

Happy International FX Awareness Day

*Please turn off English captions and use the Auto-translate tool ...

28/09/2026

What can we learn about early movement changes in women with the FMR1 premutation? 🧠

New research is helping us better understand how the FMR1 premutation may affect women - a population that has historically been less represented in FXTAS research.

In a study of more than 80 women with the premutation, researchers found that participants showed more movement problems than women without the premutation, even when they had not been diagnosed with FXTAS. The study also explored how CGG repeat size and education level may be associated with these symptoms.

In our latest research summary, Tetsuya Asano, MD, PhD, a 2026 NFXF Junior Investigator Awardee, breaks down the findings, why recognizing early neuromotor signs matters, and what researchers hope to explore next.

Read the full summary to learn more about this research and its potential to improve our understanding and care of women with the FMR1 premutation.

https://hubs.ly/Q04x-Mky0

23/09/2026

So many great webinars to check out with thanks to our friends in FX Australia.

Please check them out when you can xx

Dr Jessie Klusk is an Associate Professor in the Department of Comm...

14/07/2026

The Disability Pride Flag
Each Stripe Has a Meaning.

The Disability Pride Flag features stripes of muted colors over a black background. Each stripe represents a part of the disability community, including physical disabilities, neurodiversity, invisible and undiagnosed disabilities, psychiatric and emotional disabilities, and sensory disabilities.

Originally created in 2019 by Ann Magill, a writer with cerebral palsy, the flag was updated after community feedback to better accommodate people with visually triggered disabilities and color blindness.

Learn more about the flag, its history and meaning here: https://bit.ly/3RBzG35

12/07/2026

🚲 Learn To Cycle is back! This cycling course for children and teenagers with additional needs will be taking place in Kilcock Community Centre.

ℹ️ This five week programme begins on Tuesday 14 July and costs €25. The course is aligned to Cycle Right, the National Standard for Cycle Training in Ireland, and is delivered by a qualified trainer.

❗ Register on Payzone - https://platform.payzone.ie/customer/11337/product-list

For more information, contact Majella Fennelly at [email protected].

Maynooth Access Group Our Kilcock Kildare Autism Network AutismActivities.ie

08/07/2026

This July, we honor and celebrate . The history behind this holiday dates back to July 1990, the historic month and year that the Americans with Disabilities Act (ADA) was finally signed into law, guaranteeing protection against discrimination for people with disabilities.

Historically, people with disabilities have been systemically excluded from public life. Disability Pride Month was created as a dedicated time to unlearn internalized ableism, honor the activists who fought for the basic rights we have today, and highlight the vibrant culture of disability communities.

Let us use this month to reflect and re-commit to uplifting people with both visible and invisible disabilities, and building a world where we all are included and celebrated.