Irish Fragile X Society

Irish Fragile X Society Fragile X

FXTAS - Fragile X-associated Tremor/Ataxia Syndrome

FXPOI - Fragile X-associated Primary Ovarian Insufficiency

Welcome to the Irish Fragile X Society page. We hope you will find these pages informative and helpful, whether you are a parent or carer, a teacher, or other professional working with a person affected by Fragile X syndrome. We will share information and advice on the following:
appropriate teaching strategies for school-going children with Fragile X;
behaviour management in the classroom and at home;
dealing with the transition to adulthood;
medication.

18/03/2026
07/03/2026

President Catherine Connolly has said that the contribution of family carers, including young carers "too often goes simply ignored or certainly is insufficiently recognised".

Way to go Brid 🏃‍♀️XX
05/03/2026

Way to go Brid 🏃‍♀️

XX

Last year, FraXI was lucky enough to cross paths with Bríd Quinn (being lucky to cross paths is an understatement- she is quite speedy!). Bríd is the proud mum of Alannah and Saorla, who live with Fragile X Syndrome. We covered her story here. We strongly encourage you to read it, but if you want....

23/02/2026

South East Technological University provides an innovative and dynamic learning environment, equipping students with the skills for success in a global…

22/02/2026
18/12/2025
12/12/2025

Life's better at a slower pace ❤️

13/11/2025
Always remember you are not alone please reach out to connect with IFXS
13/11/2025

Always remember you are not alone please reach out to connect with IFXS

10/11/2025

Ireland’s has published its first National Disability Strategy since ratifying the UN CRPD.

Our new plain English summary and analysis breaks down what’s positive, what’s missing, and what must happen next to make sure disabled people are truly recognised as rights-holders.

🔹 123 actions across five key areas, including education, work, independent living, health, and transport
🔹 Major gaps remain on poverty, advocacy, and inclusion
🔹 Real progress depends on leadership, funding, and accountability.

Read our full brief 👉https://rebrand.ly/yxg1asu

Address

Dublin

Opening Hours

Monday 9am - 9pm
Tuesday 9am - 9pm
Wednesday 9am - 9pm
Thursday 9am - 9pm
Friday 9am - 9pm
Saturday 9am - 9pm
Sunday 9am - 9pm

Telephone

+35316519689

Website

Alerts

Be the first to know and let us send you an email when Irish Fragile X Society posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to Irish Fragile X Society:

Shortcuts

Share

Category