Irish Fragile X Society

Irish Fragile X Society Fragile X

FXTAS - Fragile X-associated Tremor/Ataxia Syndrome

FXPOI - Fragile X-associated Primary Ovarian Insufficiency

Welcome to the Irish Fragile X Society page. We hope you will find these pages informative and helpful, whether you are a parent or carer, a teacher, or other professional working with a person affected by Fragile X syndrome. We will share information and advice on the following:
appropriate teaching strategies for school-going children with Fragile X;
behaviour management in the classroom and at home;
dealing with the transition to adulthood;
medication.

14/07/2026

The Disability Pride Flag
Each Stripe Has a Meaning.

The Disability Pride Flag features stripes of muted colors over a black background. Each stripe represents a part of the disability community, including physical disabilities, neurodiversity, invisible and undiagnosed disabilities, psychiatric and emotional disabilities, and sensory disabilities.

Originally created in 2019 by Ann Magill, a writer with cerebral palsy, the flag was updated after community feedback to better accommodate people with visually triggered disabilities and color blindness.

Learn more about the flag, its history and meaning here: https://bit.ly/3RBzG35

12/07/2026

🚲 Learn To Cycle is back! This cycling course for children and teenagers with additional needs will be taking place in Kilcock Community Centre.

ℹ️ This five week programme begins on Tuesday 14 July and costs €25. The course is aligned to Cycle Right, the National Standard for Cycle Training in Ireland, and is delivered by a qualified trainer.

âť— Register on Payzone - https://platform.payzone.ie/customer/11337/product-list

For more information, contact Majella Fennelly at [email protected].

Maynooth Access Group Our Kilcock Kildare Autism Network AutismActivities.ie

08/07/2026

This July, we honor and celebrate . The history behind this holiday dates back to July 1990, the historic month and year that the Americans with Disabilities Act (ADA) was finally signed into law, guaranteeing protection against discrimination for people with disabilities.

Historically, people with disabilities have been systemically excluded from public life. Disability Pride Month was created as a dedicated time to unlearn internalized ableism, honor the activists who fought for the basic rights we have today, and highlight the vibrant culture of disability communities.

Let us use this month to reflect and re-commit to uplifting people with both visible and invisible disabilities, and building a world where we all are included and celebrated.

28/06/2026
Please check out the FX Australia Dr. Marcia Braden playlist on YouTube 🙂
10/06/2026

Please check out the FX Australia Dr. Marcia Braden playlist on YouTube 🙂

Dr Marcia Braden PhD is a licensed psychologist and former special educator with extensive experience in supporting children and adults who have Fragile X sy...

08/06/2026

This week is Carers Week. Thank you to all of the paid and non-paid carers in the UK and all over the world. If you’re caring for others please remember to take care of yourself too.

18/03/2026

Address

Dublin

Opening Hours

Monday 9am - 9pm
Tuesday 9am - 9pm
Wednesday 9am - 9pm
Thursday 9am - 9pm
Friday 9am - 9pm
Saturday 9am - 9pm
Sunday 9am - 9pm

Telephone

+35316519689

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