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Epilepsy Ireland Our vision is to achieve a society where no person's life is limited by epilepsy.

15/10/2026

Could you recognise the signs of Infantile Spasms?

In this video, baby Theo experiences several seizures known as Infantile Spasms - a rare but extremely serious type of epilepsy.

These seizures are extremely subtle and can often be overlooked or misdiagnosed due to how the seizures present. If they remain untreated, they can cause significant damage to a child's developing brain. It is so important that new and expectant parents are aware of this and how to STOP them.

Learn the signs. Learn how to STOP Infantile Spasms.

Visit our website to find out more: 🔗 https://www.epilepsy.ie/content/infantile-spasms

🕯️ 33 candles. 33 lives remembered.It’s one week until SUDEP Action Day on October 21st. One of the most important days ...
14/10/2026

🕯️ 33 candles. 33 lives remembered.

It’s one week until SUDEP Action Day on October 21st. One of the most important days in our annual calendar, we remember those lost to Sudden Unexpected Death in Epilepsy (SUDEP) and stand with the families, friends and communities whose lives have been forever changed by these tragic deaths.

A 2024 Epilepsy Ireland co-funded research project found that 33 people die from SUDEP in Ireland each year. Behind every statistic is a person, a family, and a community affected by their devastating loss.

While not all cases of SUDEP can be prevented, awareness, good seizure management, and open conversations about epilepsy can play an important role in helping to reduce risk to people living with the condition.

As we approach SUDEP Action Day, we encourage everyone in the epilepsy community to take a few moments to learn more about SUDEP and the steps that may help reduce risk.

📖 Learn more on our website: https://www.epilepsy.ie/content/sudep

Every step we take towards a society where no person's life is limited by epilepsy depends on having a strong membership...
13/10/2026

Every step we take towards a society where no person's life is limited by epilepsy depends on having a strong membership base.

The more members we have, the stronger our collective voice becomes as we work to provide vital services, increase public awareness of epilepsy, support research, and advocate for positive change for the epilepsy community.

For just €10 per year, you can be part of that journey.

Become a member today. Visit our website to join. https://www.epilepsy.ie/content/membership

If you're an adult living with epilepsy, you might be interested in joining our next online meet up.These sessions offer...
09/10/2026

If you're an adult living with epilepsy, you might be interested in joining our next online meet up.

These sessions offer an opportunity to connect with others living with epilepsy from across Ireland, share experiences, and discuss the challenges of living with the condition in a supportive and understanding environment.

If you think the group could benefit you, visit our website for further information and details on how to register.
https://www.epilepsy.ie/content/online-meet-adults-epilepsy-morning-191026

If you witnessed someone having a seizure, would you know what to do?If the answer is no, remember three simple words: T...
08/10/2026

If you witnessed someone having a seizure, would you know what to do?

If the answer is no, remember three simple words: Time. Safe. Stay.

⏱️ Time – Time the seizure. If it lasts longer than 5 minutes, call an ambulance.

🛡️ Safe – Help keep the person safe by removing any nearby hazards.

🤝 Stay – Stay with the person during their seizure and as they recover.

Time. Safe. Stay. Three simple words that could make a real difference in an emergency.

Visit our website to learn more about seizure first aid, download and share our free seizure first aid posters with family, friends and colleagues, and listen to our Time, Safe, Stay song that's sure to help these three important words stick in your mind.
https://www.epilepsy.ie/content/seizure-first-aid

In case you missed it, our 60th Anniversary wasn't the only milestone we celebrated recently. We also surpassed the €2 m...
07/10/2026

In case you missed it, our 60th Anniversary wasn't the only milestone we celebrated recently. We also surpassed the €2 million mark in total epilepsy research investment!

The three new projects we're supporting are each unique in their own right, but they share a common goal: improving outcomes for people living with difficult-to-treat epilepsy.

Thank you to everyone who has supported our work over the years and made our investment in these innovative research projects possible.

Learn more about the three new projects we'll be supporting 👇
https://www.epilepsy.ie/content/epilepsy-ireland-announces-record-research-investment-under-latest-funding-call

06/10/2026

🎉 In case you missed it, we had a bit of a big birthday this weekend, as Epilepsy Ireland officially turned 60 years young! 💜

To mark the occasion, we received a special birthday message from Rebecca and Emma. But instead of singing Happy Birthday, they chose a much more important (and, in our humble opinion, much better!) song.

Thank you, Rebecca and Emma, and thank you to everyone who has supported our work over the past six decades. Without your support, we would not have achieved all that we have, and it is because of you that we can look ahead to the next 60 years with optimism and ambition.⁠

Rebecca and Emma were not the only ones to send birthday wishes - in case you missed it, we were also honoured to receive a special message from Ireland's first citizen, Uachtarán na hÉireann, President Catherine Connolly, recognising our 60th anniversary.

If you'd like to read President Connolly's message, learn more about our 60th anniversary, or see what's on our birthday wishlist, visit: www.epilepsy.ie/content/epilepsy-ireland-turns-60

Together, we can achieve a society where no person's life is limited by epilepsy.

“It is also a time to acknowledge the courage and resilience of the many people and families whose experiences have help...
05/10/2026

“It is also a time to acknowledge the courage and resilience of the many people and families whose experiences have helped to shape a greater understanding of epilepsy in Ireland.”

This weekend was a special one for Epilepsy Ireland as we celebrated our 60th birthday on Sunday. To mark the occasion, we received a very special message from Ireland's first citizen, Uachtarán na hÉireann / President of Ireland Catherine Connolly, which she shared with the entire epilepsy community.

Read President Connolly's message in full on our website: https://www.epilepsy.ie/content/epilepsy-ireland-turns-60

Thank you to everyone who has helped make our work possible over the past 60 years and for being part of our journey so far. We look forward to the road ahead as we continue working together towards a society where no person's life is limited by epilepsy.

October 21st marks SUDEP Action Day, one of the most important days in our annual calendar.On this day, we remember thos...
02/10/2026

October 21st marks SUDEP Action Day, one of the most important days in our annual calendar.

On this day, we remember those lost to Sudden Unexpected Death in Epilepsy (SUDEP) and stand with the families, friends and communities whose lives have been forever changed by these tragic deaths.

An Epilepsy Ireland co-funded research project found in 2024 that 33 people die from SUDEP in Ireland each year. Behind every statistic is a person, a family, and a community affected by their devastating loss.

While not all cases of SUDEP can be prevented, awareness, good seizure management, and open conversations about epilepsy risks can play an important role in helping to reduce risk.

As we approach SUDEP Action Day, we encourage everyone in the epilepsy community to take a few moments to learn more about SUDEP and the steps that may help reduce risk.

Find out about SUDEP - https://www.epilepsy.ie/content/sudep

01/10/2026

We were recently thrilled to announce that we have co-funded three new epilepsy research projects as part of the latest round of the HRB-HRCI Joint Funding Scheme. With these latest investments, Epilepsy Ireland's total investment in epilepsy research has now surpassed €2 million!

One of the projects we are funding is MAP-IT, which is being led by Prof Mark Cunningham.

Professor Cunningham's study will enhance surgical planning and precision by testing a new wearable brain-scanning technology to see if it can accurately identify the brain regions responsible for epileptic seizures in patients with brain tumours before surgery. If successful, the approach will help surgeons remove the seizure-generating brain tissue more precisely, while preserving as much healthy tissue as possible.

We would like to wish Dr Cunningham and his team the very best of luck as they begin this important project, and we look forward to following their progress and learning more about their findings in the years ahead.

Learn more about MAP-IT and the other two projects we are funding - https://www.epilepsy.ie/content/epilepsy-ireland-announces-record-research-investment-under-latest-funding-call

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