Pituitary Ireland

10/10/2026

💙💚 The WAPO Acromegaly Patient Research Survey is NOW OPEN!

Do you live with acromegaly, or are you a caregiver for someone who does?

Your experience matters. 🗣️🌍 By sharing your experiences, you can help researchers better understand the challenges, needs and priorities of people living with acromegaly and their caregivers — helping to inform future research and care.

🌍 Open internationally
🔒 Anonymous
👥 For people living with acromegaly and their caregivers

📢 Please share this survey with your networks and help reach the global acromegaly community. Every response helps build a better understanding of life with acromegaly. 💙💚

👉 Take part in the survey:
https://live.e-survey.io/switch/share/601d653853

08/10/2026

🇮🇪 Have your say on the future of rare disease care in Europe! 🇪🇺

Rare Diseases Ireland (RDI) is inviting people living with rare diseases, and their families and carers, to share their experiences and help strengthen patient representation in Europe.

Your voice and lived experience matter. By taking part, you can help ensure that the needs and perspectives of people living with rare diseases are heard when decisions about healthcare, research and support are being shaped.

💙 If you or someone in your family is affected by a pituitary or adrenal condition, we encourage you to find out more and consider taking part.

👉 Find out more and have your say:
https://rdi.ie/prem/

We’re inviting people living with a rare disease — and those who care for them — to try out a new questionnaire built specifically to capture what healthcare experiences are really like for you. This questionnaire has been developed in a research collaboration between RDI, EURORDIS-Rare Diseas...

03/10/2026

💙💚 The WAPO Acromegaly Patient Survey is now open!

Do you live with acromegaly or care for someone who does? Your experience matters. 🗣️

By sharing your experiences, you can help improve understanding, future research and patient care for people living with acromegaly worldwide. 🌍

✅ Anonymous
✅ Open internationally
✅ For people living with acromegaly & their caregivers

🔗 Take part: Survey link:

https://live.e-survey.io/switch/share/601d653853

Please share this post and help us reach the acromegaly community. 💙

If you save the image locally to your device, then press & hold the Qr code, the option to copy the link to start the survey.

03/10/2026

💙💚 October is Pituitary Awareness Month! 💚💙

This October, WAPO – Worldwide Adrenal and Pituitary Organizations is shining a spotlight on the experiences of people living with pituitary and adrenal conditions, while sharing information, education and resources with our global community. 🌍

🚶‍♀️🚶‍♂️ Walk with WAPO this October and explore our range of resources, including:

🔹 WAPO Acromegaly Patient Research Survey – share your experiences and help contribute to a better understanding of acromegaly and the needs of the community.

Survey link: https://live.e-survey.io/questionnaires/6a82e46e5e75b/12b982487f

🔹 WAPO Blogs & Vlogs 2024 & 2025 – discover informative articles, expert perspectives and engaging video content.

🔹 Pituitary & Adrenal Condition Infographics – learn more about Acromegaly, Adrenal Insufficiency, Arginine Vasopressin Deficiency (AVP-D) and Cushing’s Disease.

🔹 Walk Through the Experiences – hear directly from patient advocates about what it is like to live with Acromegaly and Cushing’s Disease.

🔹 🎉 Celebrating 10 Years of WAPO – join us as WAPO member patient advocates share memories and celebrate 10 years of inclusion, connection and belonging.

Every step helps raise awareness. Every story matters. Every voice can make a difference. 💙💚

🌍 Explore WAPO’s resources and join us this October for Pituitary Awareness Month 2026.

We would also recommend our Member Organizations resources and information 👉 https://www.wapo.org/overview-of-member-organizations/

Together, we’re helping improve access to trusted information and support for the global adrenal and pituitary community.

WAPO Website 👉 www.wapo.org
WAPO YouTube 👉 https://youtube.com/.pituitary?si=W7NrRNVVsIr95sp4

01/10/2026

Pituitary Awareness Month is here! 💚💙
The Pituitary Foundation
Throughout October, we’re supporting the Foundation UK’s Symptoms in the Spotlight campaign. 🧡

Each week, a different group of symptoms will take centre stage:

✨ Fatigue, low energy & brain fog
✨ Emotional impacts
✨ Chronic pain & headaches
✨ Changes in appearance & their emotional impact

Many pituitary symptoms can be invisible, misunderstood and have a significant impact on everyday life.

This October, let’s raise awareness, increase understanding and support people living with pituitary conditions. 💙💚

Follow us throughout the month as we shine a light on pituitary health and the experiences of our community.

🔗 Find out more via the link in our bio.

PituitaryHealth RareDiseaseAwareness

01/10/2026

Pituitary Awareness Month has begun!

October is Pituitary Awareness Month, and this year we’re supporting the
The Pituitary Foundation (UK)’s “Symptoms in the Spotlight” campaign. 🧡

Each week, the campaign will focus on a different group of symptoms experienced by people living with pituitary conditions:

🔹 Week 1 – Fatigue, low energy & brain fog
🔹 Week 2 – Emotional impacts
🔹 Week 3 – Chronic pain & headaches
🔹 Week 4 – Changes in appearance & their emotional impact

Pituitary conditions can affect many aspects of daily life, and many of the symptoms are not visible to others.

Throughout October, we’ll be sharing information to help raise awareness, encourage understanding and support everyone living with a pituitary condition.

💙💚 You are not alone.

Find out more about the campaign:

https://www.pituitary.org.uk/campaign/symptoms-in-the-spotlight/

It's October 1st, which means Pituitary Awareness Month has just begun! This Pituitary Awareness Month, we’re shining a light on some of these symptoms with our 'Symptoms in the Spotlight' campaign. During the month, we hope to raise awareness of the impact of these symptoms and provide information to help you manage them.⁠
⁠
Throughout October, we will be spotlighting a different symptom each week. These will include:

Week 1: Fatigue, low energy and brain fog
Week 2: Emotional impacts
Week 3: Chronic pain and headaches
Week 4: Managing changes in appearance and the emotional impact of this

We hope you will find comfort and support in the content shared, and will feel empowered to manage your pituitary condition across your life. 🧡

For more information about our campaign, visit our website ➡️
https://www.pituitary.org.uk/campaign/symptoms-in-the-spotlight/