NeuroFibromatosis Association of Ireland

19/08/2026

We are delighted to announce that the NF Ireland Open Day 2026 will take place on:

📅 Saturday, 24th October 2026
🕙 From 10:00am
📍 Croke Park, Dublin - Celtic Suite

Join us for a day of expert talks, information, help and support, bringing together individuals and families affected by Neurofibromatosis, healthcare professionals and the wider NF community in Ireland.

💙💚 Our Open Day is open to everyone. Whether you are living with NF, a family member, healthcare professional, student, or simply interested in learning more about Neurofibromatosis, you are very welcome to join us.

Full programme, registration and ticketing information will be released soon.

Croke Park Meetings & Events

12/08/2026

NF1 Young Adult Summer Camp 2026

Aged 18-30 and living with NF1? This could be for you!

We’re delighted to share that the Childhood Tumour Trust is holding a Young Adult Summer Camp, and they have advised that places are available for eligible members from Ireland

📅 Dates: 28th-30th August 2026
📍 Location: JCA Condover Hall, Shrewsbury
👥 Ages: 18-30
💸 Cost: Just £50 contribution

The camp is designed to give young adults with NF1 the opportunity to enjoy a few days of fun, activities, independence and connection with others who understand what it’s like to live with NF1.

Accommodation, food, and activities are included 💙💚

Spaces are limited, please get in touch with us and we can provide further information.

📧 Email: [email protected]

Childhood Tumour Trust

04/08/2026

🌞 Cork Summer Meet-Up 🌞

Join us this Saturday, 8th August, for an afternoon of connection with other families living with Neurofibromatosis.

📅 Saturday, 8th August
🕑 2:00 pm - 6:00 pm
📍 Douglas Community Centre, Douglas, Cork

Attendance is free, but we'd appreciate it if you could register in advance to help us plan refreshments.

Full event details and the registration link are available on the NF Ireland website: www.nfaireland.ie

Alternatively, you can email [email protected] or send us a private message.

We hope to see you there 💙💚

This event has been supported through our Charity Partnership with the Central Bank of Ireland.

30/07/2026

Meet the incredible team who looked after our Irish campers at this year's amazing CTT Camp. Their care, and kindness helped make it an unforgettable experience for everyone 💚

26/07/2026

Our NF Ireland mascot, Patrick, was delighted to meet Childhood Tumour Trust's mascot, Patches, on Day 1 of the CTT Summer Camp 💙 💚

It's a wonderful reminder of how important it is for patient organisations to work together across borders to support children and families living with Neurofibromatosis.

Thank you to the Childhood Tumour Trust for making this wonderful opportunity possible.


Childhood Tumour Trust JCA Adventure

24/07/2026

The fantastic CTT team is all set and ready to welcome our campers. Have an amazing weekend, everyone 💙💚☀️

Our incredible team of Leaders have arrived at Camp! They are getting everything ready for all the Campers joining them tomorrow and making sure they all have a wonderful time over the next few days.

Many of the Leaders have NF1 and have previously been Campers so they have a wealth of experience and knowledge. Our Campers will be very well looked after by them all and they have a fun few days planned!

Our Leaders are all volunteers and are giving their time, knowledge and guidance to provide Campers with a weekend full of fun, friendships and an understanding of living with NF1. We simply could not run Camp without them so huge thanks to every single one of them!

💙💚💙💚💙💚

24/07/2026

Wishing our young members an amazing weekend 💙

This weekend, we're delighted that members of NF Ireland are attending the Childhood Tumour Trust Summer Camp.

Camps like this are so important, giving young people living with Neurofibromatosis the chance to make new friends who truly "get it", build confidence, share experiences, and realise they're never alone.

A huge thank you to the Childhood Tumour Trust for making this wonderful opportunity possible.

We hope everyone has a weekend filled with fun, friendship, adventure, and memories to last a lifetime 💚



Childhood Tumour Trust JCA Adventure

15/07/2026

🌞 Cork Summer Meet-Up 🌞

We're delighted to invite everyone in the Cork and surrounding areas to an afternoon of friendship and the opportunity to connect with other families living with Neurofibromatosis.

📅 Saturday, 8th August
🕑 2:00 pm – 6:00 pm
📍 Douglas Community Centre, Douglas, Cork

Whether you're newly diagnosed or have been part of our community for years, everyone is very welcome.

To help us with planning, please let us know if you plan to attend by emailing [email protected] or by sending us a private message.

We look forward to seeing you there 💙💚

This event has been supported through our Charity Partnership with the Central Bank of Ireland.

14/07/2026