Spina Bifida Hydrocephalus Ireland (SBHI)

01/06/2026

Our June Newsletter is now live:

Welcome to our June newsletter.   As you know, the SBHI AGM was held in the Hodson Bay Hotel in Athlone in the second weekend in May. The Board of Directors of SBHI have asked me to thank you for your attendance and participation at the weekend. I know from the positive reaction of the majority of ...

01/06/2026

The SBHI Open Opportunity Service will host their annual Remembrance Day to celebrate all the lives of those we have loved and lost in SBHi on the 5th of June at 10.30am. in the Open Opportunity Service in Castleknock, D15T3PN. All are welcome. If you have any queries please contact Aisling @ 087 1190 100

01/06/2026

Our Annual Sports Day is taking place next month , July 18th from 10am.
We are returning to the wonderful Leixlip Amenities Sports Centre for a day of inclusive sports for all ages and abilities!

If you would like to join us on the day please register by emailing Sharon at [email protected] before June 30th.

10/05/2026

And that is a wrap on our 2026 AGM Confernece weekend! 🎬Didn’t it absolutely fly by??

We hope all in attendance had a wonderful time 💕 A big thank you to all who hosted breakout sessions, set up information stands, our keynote speaker Emily Larkin from and to the for being such great hosts 🙏

09/05/2026

Some fantastic information stands here all day in the conference hallway! Make sure you stop by each one and say hi! 👋

23/04/2026

Our Spina Bifida Hydrocephalus Coffee Mornings continue!

As part of our 2026 ‘Making Connections’ initiative, the Family Liaison Team are delighted to invite you to our second coffee morning of the year. There are four coffee mornings organised throughout the year, held in different locations throughout Ireland, offering opportunities to connect and chat in a relaxed atmosphere. Get in touch with your local Family Liaison Officer if you are interested in attending, or have any queries.

The coffee mornings will all be held on Wednesday the 29th of April from 11am - 1 pm in the following locations:

📌Mc William Park Hotel, Claremorris
📌Hodson Bay Hotel, Athlone
📌Gibson Hotel, Dublin
📌The Talbot Hotel, Carlow
📌Kilmore Hotel, Cavan
📌Silver Springs, Cork City
📌Talbot Hotel, Stillorgan

Will you be joining us? We would love to see you there ❤️

16/04/2026

Wishing a warm welcome to Caroline and a best of luck to Jessica ❤️

As our Carlow/Kilkenny/Waterford/Wexford/South Tipperary Family Liaison Officer, Jessica, leaves us for her maternity leave we are delighted to welcome Caroline to the SBHI team to look after her area while she is gone.

Caroline will be hosting the upcoming Coffee morning in the Talbot Hotel, Carlow so it would be a perfect place to meet her for the first time!
> 29th of April from 11am-1pm<

A Little bit about Caroline:
''I'm looking forward to new challenges, working with SBHI members and new colleagues. I've received a really warm welcome from the team so I'm feeling very positive about my new role. Outside of work I'm kept busy running a mammy-taxi service for my four teenage/adult children. I unwind by walking my dogs, Goose and Rosie, along the canal and I love gardening and spending too much time and money in garden centres. I give back a little as a Community First Responder.''

16/04/2026

Last week, with funding so kindly provided by the we were able to organise to facilitate a Wheelchair Skills Workshop for our younger members and their families. These workshops are always a great day out - fun but also incredibly educational and provide training on various scenarios faced by wheel chair users and how to navigate them safely. 💙

08/04/2026

There are still two places left on tomorrow's wheelchair skills workshop - lunch is included. If you are free join us for a fun, and educational day!

This workshop is so kindly being funded the Irish Youth Foundation

This workshop is so kindly being funded the Irish Youth Foundation