LCA Ireland

15/10/2026

We were asked to share this great resource which was created by two Occupational therapist students from Galway Uni while on a placement dedicated to Long Covid.
Great to see Galway University partnering with Ciara Breen and Kirsty Stanley of Long Covid Kids to help their students learn all about post infectious disease and Long Covid In children and adults!

11/10/2026

This month's patient support meeting is Monday the 12th October at 7pm.

We meet on Zoom for an informal supportive discussion where you can share your experience, ask questions, exchange information and build community.

If you want to receive the Zoom link ask to be added to our mailing list: [email protected]

15/09/2026

Long Covid Advocacy Ireland member Jacinta Fay's play is included in this Culture Night programme and during the post show discussion she will also share her experience of living with Long Covid and M.E., creating theatre while chronically ill and how we can make the Arts more accessible.

What About M.E.
- O'Donoghue Centre, University of Galway and Online
- 7-8.30PM
- Friday Sept 18th - Culture Night

Across Ireland, thousands live with a complex illness leaving one in four housebound without answers. ‘What about M.E.?’ is a collection of four short plays written by and about people living with ME/CFS and Long Covid- exploring life on pause in a world obsessed with moving forward.

https://culturenight.ie/event/what-about-m-e/

To book an in-person ticket, please visit https://www.eventbrite.ie/e/what-about-me-tickets-1999370536095?aff=oddtdtcreator.

To book an online ticket for the pre-recorded livestream email [email protected]

In-Person Accessibility:
This event takes place in a wheelchair accessible theatre-venue, with a max. audience of 120. The performance is relaxed, & audience members are welcome to move as needed. The venue will have standard 'house lighting' upon audience arrival, & dim/low lighting throughout the performance. We encourage attendees to wear masks, so as to protect audience members who are immunocompromised. A very limited number of disabled parking spaces are available approx. 30m in front of the venue. Additional disabled parking spaces are available 300m from the venue at 'The Quadrangle'.

Live-Stream Accessibility:
This event will be shared via a pre-recorded live-stream to ensure accessibility for those who cannot attend in person. To receive the livestream link, please email [email protected] (stating live-stream in your email). Live-stream links will be emailed out on Thursday 17th September

Image description:
This is a poster for ‘What about M.E.?’, featuring four short plays about people living with ME/CFS and Long Covid. The event is a partnership with Arts in Action, University of Galway, and takes place on Culture Night on September 18th and 26th from 7-8:30 PM. The background is a blurred, abstract face with stretched out colours, mostly reds, oranges, and muted yellows, with hints of white and dark grey.

09/09/2026

This month's patient support meeting is this coming Monday the 14th September at 7pm

22/07/2026

SUMMER BREAK

The majority of our volunteers are living with Long COVID, advocacy takes energy and our batteries need some well-deserved rest, so starting today, we’re taking a decent break.

Our patient support call on zoom will continue the second Monday of each month. We aim to progress existing projects in the background, but we do not intend to post or monitor socials during this time.

We will be back more regularly October 1st. 💙

In the meantime

- if you’d like to attend the monthly patient support call, please request to be added to our mailing list at [email protected]

- For useful patient information on Long COVID, including available services, please visit longcovidadvocacyireland.com

- In our absence, you can also read our Frequently Asked Questions for patients here:

https://longcovidadvocacyireland.wordpress.com/wp-content/uploads/2026/07/lcai-faq-for-lc-patient-community-ireland_july2026.pdf

Kind regards,

LCAI Team

photo from the coast in Ireland courtesy of insta .jmorrison

02/07/2026

Thank you to those who attended last week's online discussion on women's health and Long Covid. Unfortunately the heatwave causes technical issues on the day with internet connectivity effected and a result only half of the webinar was recorded. We have uploaded this recording to our YouTube channel even though it is incomplete. Ciara Wright has kindly offered to do a recorded chat with Sarah soon on this topic to supplement. As soon as that is available we will post it.

Many women with Long Covid & other post infectious illnesses such a...

02/07/2026

3 EURO PER ITEM GOVERNMENT CHARGE - IMPACT ON LONG COVID PATIENTS SHIPPING SUPPLEMENTS

Please be aware there is now a 3 euro charge on items shipped from outside the EU. Many patients use US based supplement companies such as iHerb because it is must cheaper and many items we use are not available in Ireland instore or online.

It seems that supplements will not be exempt from this policy.

Yet another government policy where the needs of those with & are
ignored!
Please share any tips you have on alternate options.
Piping Rock has a good range and I believe is Netherlands based but shipping charges are high.

22/06/2026

REMINDER for those who have registered for the webinar that is on tomorrow (Tuesday) at 3pm, you will have received the zoom link upon registration.

If you would like to submit a question in advance please email it to [email protected]

See you then!

21/06/2026

If you are a carer to someone with ME and in Ireland, please consider taking part in this survey. The MEAI do fantastic work and collecting this information is extremely important for their work to improve services for ME in this country.

📌 ME Carers Survey – now open

If you haven’t had a chance yet today, our short survey for family carers of people with ME in Ireland is now open.

We are asking carers to share their experiences of caring, the impact it has had on their lives, and the supports they feel are most needed.

✔ Anonymous
✔ 5-10 minutes to complete
✔ Open to family carers of people with ME in Ireland

If you are a carer, your input would be greatly appreciated, and sharing this post also helps us reach others who may wish to take part.

Thank you for supporting this work.

Take part:
https://www.surveymonkey.com/r/K7CLYJN

19/06/2026

For the women's health webinar on Tuesday please feel free to submit questions in advance by emailing [email protected] (questions on the day also fine).