LCA Ireland

22/07/2026

SUMMER BREAK

The majority of our volunteers are living with Long COVID, advocacy takes energy and our batteries need some well-deserved rest, so starting today, we’re taking a decent break.

Our patient support call on zoom will continue the second Monday of each month. We aim to progress existing projects in the background, but we do not intend to post or monitor socials during this time.

We will be back more regularly October 1st. 💙

In the meantime

- if you’d like to attend the monthly patient support call, please request to be added to our mailing list at [email protected]

- For useful patient information on Long COVID, including available services, please visit longcovidadvocacyireland.com

- In our absence, you can also read our Frequently Asked Questions for patients here:

https://longcovidadvocacyireland.wordpress.com/wp-content/uploads/2026/07/lcai-faq-for-lc-patient-community-ireland_july2026.pdf

Kind regards,

LCAI Team

photo from the coast in Ireland courtesy of insta .jmorrison

02/07/2026

Thank you to those who attended last week's online discussion on women's health and Long Covid. Unfortunately the heatwave causes technical issues on the day with internet connectivity effected and a result only half of the webinar was recorded. We have uploaded this recording to our YouTube channel even though it is incomplete. Ciara Wright has kindly offered to do a recorded chat with Sarah soon on this topic to supplement. As soon as that is available we will post it.

Many women with Long Covid & other post infectious illnesses such a...

02/07/2026

3 EURO PER ITEM GOVERNMENT CHARGE - IMPACT ON LONG COVID PATIENTS SHIPPING SUPPLEMENTS

Please be aware there is now a 3 euro charge on items shipped from outside the EU. Many patients use US based supplement companies such as iHerb because it is must cheaper and many items we use are not available in Ireland instore or online.

It seems that supplements will not be exempt from this policy.

Yet another government policy where the needs of those with & are
ignored!
Please share any tips you have on alternate options.
Piping Rock has a good range and I believe is Netherlands based but shipping charges are high.

22/06/2026

REMINDER for those who have registered for the webinar that is on tomorrow (Tuesday) at 3pm, you will have received the zoom link upon registration.

If you would like to submit a question in advance please email it to [email protected]

See you then!

21/06/2026

If you are a carer to someone with ME and in Ireland, please consider taking part in this survey. The MEAI do fantastic work and collecting this information is extremely important for their work to improve services for ME in this country.

📌 ME Carers Survey – now open

If you haven’t had a chance yet today, our short survey for family carers of people with ME in Ireland is now open.

We are asking carers to share their experiences of caring, the impact it has had on their lives, and the supports they feel are most needed.

✔ Anonymous
✔ 5-10 minutes to complete
✔ Open to family carers of people with ME in Ireland

If you are a carer, your input would be greatly appreciated, and sharing this post also helps us reach others who may wish to take part.

Thank you for supporting this work.

Take part:
https://www.surveymonkey.com/r/K7CLYJN

19/06/2026

For the women's health webinar on Tuesday please feel free to submit questions in advance by emailing [email protected] (questions on the day also fine).

18/06/2026

FINAL REMINDER FOR REGISTRATION

Webinar on Long Covid and Women's health THIS COMING Tuesday June 23rd at 3pm

Really looking forward to an interesting discussion.

Please register at the following link;

https://us06web.zoom.us/meeting/register/AbJLeN25R9eXiq81y2W3sw

Please note that capacity is limited to 100 attendees.

26/05/2026

HELP WITH RESEARCH -YOUR EXPERIENCES WILL BE USED TO INFORM POLICY RECOMMENDATIONS

If you haven't done so already, please consider participating in this survey on Long Covid.

About this survey
This survey is organised by EUPHA (European Public Health Association) and the OECD. It is part of a Policy Dialogue on Long COVID.

This work is done within the European Commission's Open Stakeholder Group on Long COVID.

Who can take part?

People living with Long COVID
Caregivers
Parents or guardians of children with Long COVID

(If you are both a caregiver to a child with LC, and a patient you can complete twice to capture both experiences)

How long does it take? About 15 minutes. You can skip any question you do not want to answer.

21/05/2026

ANNOUNCEMENT

Effective at the end of May, LCAI Co founder Sarah O'Connell will be taking some time away from the organisation to focus on caring for a family member who is unwell.

If you have anything that requires follow up with Sarah, please contact her/send us an email as soon as possible.

The bandwidth of our volunteer team will be somewhat reduced while Sarah is on leave but please continue to get in touch if you need assistance.

Our monthly support meetings will continue as planned. Sarah will still be hosting the LC and Women's Health webinar happening in June that was announced earlier today.