Irish Motor Neurone Disease Association

04/06/2026

We are holding our Global Day event today 4th June to mark MND/ALS Global Day which takes place on the 21st June, on this day all The International Alliance of ALS / MND Associations come together to shine a light on .

Today at our event, we will be launching our Strategic Plan By Your Side: A New Five-Year Strategy for People Living with MND and their Families. Over the next five years, IMNDA will focus on strengthening person-centred supports, improving care co-ordination, expanding support for families and caregivers, and enhancing support at key stages of the MND journey. A copy of our plan is now available on our website.

Today, we will also recognise all those who have gone above and beyond for Irish Motor Neurone Disease Association by presenting them with a small plaque as a token of our appreciation. We would also like to take this opportunity to thank William Fry Law firm for hosting the event on our behalf.

03/06/2026

🏉 Join Rugby World Cup winner Lewis Moody MBE for a very special afternoon in support of the IMNDA with thanks to The Sporting Club Ireland

📍 Hilton Dublin
📅 Thursday, 9 July 2026, from 12 noon

Known to rugby fans around the world as "Mad Dog", Lewis Moody enjoyed an extraordinary career, winning a Rugby World Cup, earning 71 England caps, representing the British & Irish Lions, captaining England, and lifting multiple Premiership and European titles.

Today, Lewis is using his voice and platform to raise awareness of Motor Neurone Disease following his own diagnosis, showing the same courage, determination and positivity that defined his rugby career.

Lewis will join supporters for an exclusive lunch featuring:
✨ Three-course meal
✨ Welcome drink and wine
✨ Photo opportunity with Lewis
✨ Inspiring conversation and Q&A
✨ Exclusive charity auction with incredible prizes

Funds raised through the auction (and a percentage of ticket sales) will support IMNDA's work providing vital services and supports to 470+ people living with MND and their families across Ireland.

Book your tickets today:
https://www.ticketsource.com/the-sporting-club-eu?ref=IMDA&utm_source=chatgpt.com

01/06/2026

📣📣Voice4MND 2026: Giving Caregivers a Voice

Behind every person living with MND is a caregiver holding everything together.

Our latest IMNDA survey shows:
• 85% report stress impacts their wellbeing
• 59% provide care 24/7
• Many are experiencing burnout
• Nearly 80% lack adequate respite support

This year, we’re shining a light on their experience.

We’re aiming to raise €21,000 by June 21st to support caregivers as part of our Voice4MND campaign and to mark MND Global Awareness Day.

Show your support at the link below 💚🙏
https://www.imnda.ie/voice-4-mnd

31/05/2026

We are nearly there now with our in May! Amazing amounts of Kilometres have been travelled all over the county all month long! You guys are smashing it so far too.

A wonderful thank you to all who have taken part and to all who have donated to the event so far! We look foward to the next one!!

If you would like to donate and support the event, the fundraising page is still open so why not check out 👉https://40kyourway.ie/

30/05/2026

🔊🔊REMINDER: Imporant Notice for Women's Mini Marathon Participants taking part on behalf of Irish Motor Neurone Disease Association

We are very sorry to let you know that due to circumstances beyond our control we will unfortunately no longer have use of our base at Toners Pub for this years mini marathon. Apologise for any inconvenience this may cause.

For anyone who requires bag storage on the day, the marathon organisers will have official baggage drop facilities available. Further information can be found here:

https://www.vhiwomensminimarathon.ie/race-day-info

28/05/2026

📢📢Imporant Notice for Women's Mini Marathon participants taking part on behalf of Irish Motor Neurone Disease Association

We are very sorry to let you know that due to circumstances beyond our control we will unfortunately no longer have use of our base at Toner's Pub for this years Women's Mini Marathon. We apologise for any inconvenience that this may cause.

For anyone who requires bag storage on the day, the marathon organisers will have official baggage drop facilities available. Further information can be found
https://www.vhiwomensminimarathon.ie/race-day-info

Apologies once again and we wish you all the very best of luck!! 🍀

27/05/2026

We are now using Strava because it's always about connecting with our supporters here at the Irish Motor Neurone Disease Association

If you use Strava, like Malcolm McGrath & his friends, why not connect in with us and share what you are doing, or compete with other like minded people and share your experience. Get connected and let's build a community.

Link in with us here 👉https://www.strava.com/athletes/203526266 and Our Club name is IMNDA Fundraisers

26/05/2026

23/05/2026

We are nearly there with our in May, we're on the home stretch now with just over one week left!

A huge thank you to you all, some of our incredible challengers & fundraisers pictured here! Thank you to those of who have participated, donated, supported so far! 💚❤🧡

If you would like to support and help provide the necessary supports to those living with MND, why not visit https://40kyourway.ie/ and donate there!

Thank you as always for your wonderful support!

17/05/2026

So it's week 2 of our event & some of our challengers were getting geared up this week with their challenge!! A huge thanks to Lara Boohan & her team at the WellWoman in Dublin for allowing us to follow them on their 40K Challenge!

So we are at the half way mark in the month of May and we are also over halfway to our fundraising target of 70K which is absoulutely brilliant news!! 🎉🎉🎉

Our 40k challengers are smashing it!! Keep it going for MND and thank you to everyone who has supported this event so far!! 🧡❤💚

To show your support to our challengers, please visit https://40kyourway.ie/