03/09/2026
(Scroll down for English ver.)
輪椅對很多SMA朋友而言是一對腳，想像我們如果沒有雙腿，豈不是完全不能外出，更遑論工作？
不過，因為身體狀況， SMA朋友多需要特製輪椅，價值不菲，堪比一輛二手車，一般打工仔很難付。雖然身患重病，但是他們都一樣貢獻社會，想自食其力，但是因為工作收入，很多資助計劃都不接受他們的申請。FSMA 明白SMA朋友工作、獨立居住已經比一般人辛苦，而且有收入也同樣面對輪椅損壞的困難。因此，我們都會聆聽及酌情處理。
得知以下SMA男士的舊輪椅服役 9 年頻失靈，卻因有工作而陷入困境，本會積極尋找贊助與眾籌，及時資助他購買新輪椅，助病友重獲自由與工作能力。
如果您都想支持SMA 朋友獨立自強，請捐款支持FSMA ，助他們發光發亮✨
https://www.fsma.org.hk/donate 💜
👇🏻感言全文👇🏻
「衷心感謝貴基金會早前批准我的撥款申請，資助我購買一部全新的電動輪椅（Dietz Power SANGO Advanced）。這次能夠獲得 FSMA 金錢上的援助，實在幫我解決了生活上一大難題，讓我能夠再次行動自如，工作復常，繼續行進。
正如申請資助時所述，我先前使用的電動輪椅已陪伴我九年，不僅日益殘破，更曾突發失靈，到了不得不更換的地步。要不是 FSMA 及時施以援手，為了自身安全，我恐怕只能無奈地減少外出、將自己困於家中，不知何年何月才能扭轉這種困頓的狀況。
基於體能限制，我確實需要一部符合個人身體狀況的特殊電動輪椅；然而，這類量身訂造的多功能輪椅往往價格不菲，甚至堪比一部二手車。儘管我一直努力生活，但這樣龐大的開支絕非一般人能輕易負擔，更何況是選擇搬出來獨立自住、自食其力的殘疾人士。 面對高昂的輪椅更換費用，我曾嘗試向其他慈善基金求助。無奈最終被拒之門外。幸好，FSMA 深切理解我的實際處境，願意與我同行，積極為我嘗試眾籌、尋找贊助人，最終讓我順利獲得這部全新的電動輪椅，重新安心出行。
作為一名 SMA 患者，我深感慶幸能有 FSMA 的陪伴與支援。您們總以SMA 患者為念，並適時施以援手，讓無數像我一樣的病友在面對病痛與生活考驗時，感受到了社會的溫暖與希望；也讓我們明白自己並不孤單，不必孤軍作戰，而是可以並肩同行、互相勉勵。
最後，再次感謝 FSMA 多年來的關顧。祝願貴基金會能夠賡續前行，懷深致遠，使更多病友受益，讓社會大眾更能認識及關注 SMA這個疾病。」
For many people with SMA, a wheelchair is their legs. Imagine a life without legs... We wouldn't be able to step outside, let alone hold down a job.
Because of their physical needs, people with SMA usually require highly customised wheelchairs. However, these come with a hefty price tag, which is often as much as a second-hand car, making them nearly impossible for an average worker to afford. Despite living with a severe illness, these individuals still want to contribute to society and earn their own living. Yet, simply because they have a job and an income, most subsidy programs turn them away.
At FSMA, we know that working and living independently is already an uphill battle for people with SMA and having a job doesn't make a broken wheelchair any less of a crisis. That's why we listen, look at the human behind the application and exercise discretion.
When we heard about a gentleman whose 9-year-old wheelchair was constantly breaking down and leaving him stuck in a dilemma just because he works. We stepped in and actively sought sponsors and launched a crowdfunding effort to fund his new wheelchair, helping him regain his independence and get back to work.
If you'd like to support people with SMA on their journey to independence and help them shine bright, please consider donating to FSMA. ✨ https://www.fsma.org.hk/donate 💜
👇🏻 Read His Full Letter Below 👇🏻
"I would like to express my deepest gratitude to the Foundation for approving my grant to purchase a new power wheelchair (Dietz Power SANGO Advanced). Receiving financial support from FSMA has solved a major hurdle in my life that has allowed me to move freely again, get back to my normal work routine and keep moving forward.
My previous wheelchair had been with me for 9 years. It had been broken down constantly to the point where repair was no longer an option. If without the support from FSMA, I'd have had to stay stuck at home for my own safety with no idea when my situation might ever improve.
Due to my physical condition, I need a specialised wheelchair built for my specific needs. However, these custom, multi-functional wheelchairs are incredibly expensive, often costing as much as a second-hand car. Even though I work hard to support myself, an expense this massive is out of reach for most people, especially for someone with a disability living on their own and earning their own living.
Facing such high costs, I tried reaching out to other charitable funds but I was repeatedly turned away. Fortunately, FSMA truly understood what I was going through. They stood by me, actively running crowdfunding efforts and looking for sponsors until I finally got this new wheelchair. Now, I can travel with peace of mind again.
As someone living with SMA, I feel incredibly lucky to have FSMA in my corner. You always put patients first and offer help when it’s needed most. You show so many of us that we aren't alone in facing SMA and life's challenges. We don't have to fight this battle by ourselves; we can walk together and support one another.
Thank you once again to FSMA for your care over the years. I hope the Foundation continues its great work, touches more lives and helps the public better understand and care about SMA individuals."
#脊髓肌肉萎縮症 #輪椅
