Down Syndrome Ghana

20/04/2026

Nine months ago, little Zuri Zenator Brown Nanegbley underwent life-saving open-heart surgery in Kochi, India, thanks to the partnership between the Down Syndrome Association of Ghana (DSAG) and Love Without Boundaries (LWB)

On 17 July 2025, Zuri bravely faced surgery for a complete atrioventricular septal defect. By 13 August, she was back home in Ghana, her heart stronger and her future brighter. Today, she is thriving, she is full of energy, joy, and hope.

💡 Did you know? Nearly half of all children born with Down syndrome are affected by congenital heart defects. Without timely intervention, these conditions can be life-threatening. Zuri’s story shows what access to care can achieve.

Her journey is a powerful reminder that when compassion meets collaboration, miracles happen. Zuri’s life was transformed because people cared enough to act.

🙏 We remain deeply grateful to , Amrita Hospital, and all who stood by Zuri and her mother, Christabel. Your love and support gave this family a second chance at life.

✨ Zuri’s journey is not just her own it is a beacon of hope for every child with Down syndrome in Ghana and beyond.

08/04/2026

On March 17, we brought awareness to life at the pediatric OPD of 37 Military Hospital 💙

We engaged parents, children, and healthcare workers in meaningful conversations about Down syndrome, promoting better care and challenging stigma that affects too many families.

With the support of the hospital staff, we placed our posters across the facility, each with a QR code to help families easily access the right information and support.

This is how change happens one conversation, one family, one step at a time.

02/04/2026

Did you know???

Some children with Down syndrome also have autism. This is called a dual diagnosis, and it is often missed.

Research suggests that about 1 in 6 children (≈16%) with Down syndrome may also be on the autism spectrum, although numbers can vary.

Because some signs look similar, autism is sometimes overlooked or diagnosed late in children with Down syndrome.

This is why early screening is so important.
This is why awareness matters.

With the right support at the right time, every child can thrive.

01/04/2026

In loving memory of Lisa Yakubu 🤍
A bright, bold, and beautiful soul who brought joy to everyone she met.

Lisa was a cherished part of our community, and her light will continue to shine through all of us.

We hold her mother, Kukua, and the entire family close in our hearts during this difficult time.

Forever in our hearts ❤️🫶🏾

Rest peacefully, our dear Mama Lisa 💔

26/03/2026

On March 16th, we made our first visit to the Children’s OPD and Antenatal Clinic at Ridge Hospital, where we engaged mothers, expectant mothers, families, and healthcare workers in conversations about Down

We took time to raise awareness, share knowledge, and speak with healthcare workers about strengthening care. This included the importance of continuous training in special needs care and better support for mental health.

Beyond the conversations, we came with support. With the generous sponsorship of J.A. Detergents, we donated essential supplies to support the work being done at the hospital and the families they serve.

We are grateful for partners who believe in this mission and are willing to take action with us.

Together, we can build a more inclusive and supportive society for persons with Down syndrome.

24/03/2026

The message from Accra is clear: we are no longer only asking for awareness, we are demanding action.

Across Ghana, persons with Down syndrome and other disabilities continue to face barriers in healthcare, education, and everyday life. This must change.

We acknowledge the efforts made so far, but progress cannot remain on paper. Policies must be felt in classrooms, in hospitals, and in communities.

We are calling on government, institutions, partners and all stakeholders to move from commitment to action.

Let's act now. Inclusion cannot wait.

23/03/2026

The Minister for Gender, Children and Social Protection called on caregivers and persons with disabilities to register for the LEAP (Livelihood Empowerment Against Poverty) Program, a cash grant initiative providing financial support to vulnerable households.

The association encourages everyone who qualifies to register and benefit from this support.

This is how we drive change , support families, and create real impact 💙

22/03/2026

Honoured to have the Minister of Gender, Children and Social Protection of Ghana walk with the Down Syndrome Association of Ghana during World Down Syndrome Day 2026 💙💛

A powerful show of support for inclusion and awareness for persons with Down syndrome.

We are truly grateful and have hope that inclusive policies will be implemented to the benefit of all Ghanaians especially those with disabilities.

21/03/2026

21/03/2026

Today is !! The Down Syndrome Association of Ghana held its 1st annual Buddy Walk through the principal streets of Accra.

Persons with Down syndrome, advocates, activists, families, and supporters came together in a powerful show of unity, walking side by side to raise awareness, challenge stigma, and celebrate the beauty of diversity.

From every step taken to every smile shared, the message was clear: inclusion matters, acceptance matters, and every individual deserves the opportunity to thrive.

Together we walked against loneliness.