International Sickle Cell Centre - ISCC

International Sickle Cell Centre - ISCC The ISCC is a group of professionals with diverse expertise from different parts of the globe.

Our projects prioritize an improved quality of life and longevity for sickle cell affected individuals, especially those living in deprived communities.

ISCC is proud to have contributed to the review and validation of the continental plan for sickle cell disease and other...
17/05/2026

ISCC is proud to have contributed to the review and validation of the continental plan for sickle cell disease and other inherited blood disorders convened by Africa CDC in Kampala, Uganda, over the past few days.

The participation of our Co-Founder and CEO, Dr. Mary Ansong, reflects our continued commitment to advancing sickle cell advocacy, policy engagement, education, research, and systems strengthening efforts across Ghana and Africa.

Thank you, Africa CDC, for the invitation, and our gratitude goes to Novo Nordisk Foundation for funding Dr Ansong”s participation at this important meeting.

A new dawn is breaking in Africa!

14/04/2026

At the Diaspora Community Dialogue, Mrs. Janet Ohene-Frempong made a powerful call to President John Dramani Mahama:

🩸 Include early infant screening for sickle cell disease
πŸ’Š Ensure access to hydroxyurea

Speaking from lived experienceβ€”as a mother who lost her son to Sickle Cell Disease, and as the wife of the late Prof. Kwaku Ohene-Frempongβ€”her message was clear and deeply personal.

In response, President Mahama reaffirmed Ghana’s commitment to integrating sickle cell screening and treatment into the free primary healthcare bill.

This is more than policy.
It is a moment of decision.

Will Ghana act?

πŸ“ Launch of the Free Primary Healthcare bill:
15 April 2026
Dodowa Municipal Hospital | 10 am GMT




In the true spirit of  , the  (South East Sector) donated two desktop computers to support ISCC’s work. This generous gi...
27/12/2025

In the true spirit of , the (South East Sector) donated two desktop computers to support ISCC’s work.

This generous gift will strengthen our mission as we step into 2026.

Thank you for your generosity, GNA UK.

John 3:16 ❀️ 🎁Merry Christmas πŸŽ„
25/12/2025

John 3:16 ❀️ 🎁

Merry Christmas πŸŽ„

23/12/2025

She was just three days away from her 18th birthday.

She was stable on hydroxyurea until she lost access to care after moving to a region in Ghana where sickle cell services were limited. Then came the strokes: the first, the second, the third, until she could no longer walk or speak.

For two years, she lived in silence. In her final months, she was fed through an NG tube. In November 2025, shortly after this video was recorded, she passed away.

She is now free from pain.
But her story forces a hard question we can no longer ignore:

What if quality sickle cell care were available everywhere in Ghanaβ€”not only in big cities? How many children would still be alive today?

As we close our 2025 sickle cell awareness video series, supported by , we are calling on companies and individuals to partner with the International Sickle Cell Centre through partnerships and monthly giving.

The sickle cell challenge is too big for one organisation.
It will take a whole village.

🀝 Partner with ISCC
❀️ Support monthly
πŸ“Ί Watch more advocacy videos on our YouTube channel

Together, we can change outcomes: not just mourn them.



πŸ‡¬πŸ‡­ A defining moment for sickle cell disease in Ghana.We celebrate the launch of Ghana’s π—‘π—”π—§π—œπ—’π—‘π—”π—Ÿ π—¦π—œπ—–π—žπ—Ÿπ—˜ π—–π—˜π—Ÿπ—Ÿ π——π—œπ—¦π—˜π—”π—¦π—˜ 𝗦𝗖...
22/12/2025

πŸ‡¬πŸ‡­ A defining moment for sickle cell disease in Ghana.

We celebrate the launch of Ghana’s π—‘π—”π—§π—œπ—’π—‘π—”π—Ÿ π—¦π—œπ—–π—žπ—Ÿπ—˜ π—–π—˜π—Ÿπ—Ÿ π——π—œπ—¦π—˜π—”π—¦π—˜ 𝗦𝗖π—₯π—˜π—˜π—‘π—œπ—‘π—š 𝗔𝗑𝗗 π—–π—”π—¦π—˜ π— π—”π—‘π—”π—šπ—˜π— π—˜π—‘π—§ π—šπ—¨π—œπ——π—˜π—Ÿπ—œπ—‘π—˜π—¦, launched by the and the , with funding support from the .

This landmark document provides standardised, evidence-based guidance to healthcare professionals nationwide, strengthening early screening, improving clinical decision-making, and laying the foundation for more equitable, high-quality SCD care across Ghana.

We are especially proud that our co-founders, .maryansong and , served on the Technical Working Group, contributing to the review and validation of these guidelines. Their involvement helped ensure the final document reflects not only global best practices, but also the real-world, grassroots challenges faced by patients, families, and frontline health workers.

We now look forward to:
β€’ Development of training and implementation materials
β€’ Nationwide capacity building of healthcare professionals in SCD screening and management
β€’ Strong integration of these guidelines into routine health services

As the saying goes, a journey of a thousand miles begins with a single step, and Ghana is clearly moving forward with purpose.

Together, we remain committed to saving lives, strengthening health systems, and reducing the burden of sickle cell disease in Ghana.




18/12/2025

Have you ever been so unwell that it limited what you could do?

Now imagine living with a genetic condition that causes chronic anaemia, leaving you constantly fatigued and easily breathless.

For many people living with sickle cell disease, this is not imagination. It is life.

πŸ’Š But hydroxyurea changes the story.

Today, ISCC supported a sickle cell warrior in Koforidua (Eastern Region, Ghana) to complete essential tests at , enabling her enrolment into a sickle cell clinic and start of hydroxyurea β€” made possible by the generous support of the Ronden family (Netherlands) 🀍

We’ve seen the impact firsthand.
Lwimba Kasongo, a sickle cell warrior and advocate went 8 years without hospitalization on hydroxyurea β€” and we’re seeing similar outcomes across Ghana.

Thank you for supporting the rollout of hydroxyurea in Ghana.

The question is no longer whether hydroxyurea works.
It’s how we will help make access equitable for all.

28/11/2025

Kenya πŸ‡°πŸ‡ͺ is rewriting the sickle cell story and setting a powerful example for Africa.

From national policies to newborn screening, the Government of Kenya is implementing bold strategies that are transforming how Sickle Cell Disease (SCD) is detected, managed, and prevented.

Here’s what Kenya is leading with:

‒⁠ ⁠A National Strategic Plan for the prevention and control of NCDs, which includes SCD.

‒⁠ ⁠A Newborn Screening pilot program in 4 counties

‒⁠ ⁠Standardised protocols for SCD care

‒⁠ ⁠PEN-Plus strategies bringing SCD services closer to communities

‒⁠ ⁠Training health workers, raising awareness, and sustaining SCD programs in counties where these services have been established.

Kenya’s approach is a powerful reminder that when policy, political will, and partners align β€” real change happens.

Thank you, and Selina Marwa HSC (Ministry of Health, Kenya) for spotlighting this incredible progress.

Follow us for more inspiring breakthroughs from across Africa. ❀️





13/11/2025

The future of sickle cell care cannot rest on short-term projects.

True progress in sickle cell disease management will only come when sustainability becomes the standard β€” not the exception.

From government ownership and integration into national health policies, to local manufacturing of essential medications, sickle cell data registries that guide action, and transparent systems that ensure accountability β€” every step must strengthen the foundation for long-term impact.

Sustainable SCD programs don’t depend on temporary goodwill. They rely on structure, evidence, partnerships, and leadership that endures.

We know what needs to be done β€” now is the time to act.

How will you help change the sickle cell story in your country?

Thank you, , for the partnership. Together for change.

06/11/2025

Sickle cell disease (SCD) disproportionately affects vulnerable populations β€” often families with limited income.

However, the management of SCD frequently takes place at high-level health facilities, making it difficult for many families to access care due to long travel distances and high out-of-pocket costs.

SCD affects multiple body organs, leading to complications that reduce productivity and shorten the lifespan of some affected individuals.

Listen to Dr. Catherine Karekezi, Executive Director of the Kenya, as she explains how public–private partnerships are supporting government efforts to change the sickle cell narrative in Kenya.

This sickle cell awareness program is supported by .

Years ago, many parents in   hid their children living with   β€” often seeking advice from the wrong places, with devasta...
05/11/2025

Years ago, many parents in hid their children living with β€” often seeking advice from the wrong places, with devastating consequences πŸ’”.

Today, thanks to stronger community support and better access to accurate SCD education, that story is changing.

In this powerful campaign powered by , Christiana Bakare, Project Cordinator at shares how community networks are transforming caregiving for families affected by SCD β€” turning isolation into empowerment.

Watch her inspiring perspective on how far we’ve come.

Address

No. 2 Mamleshie Road, Commercial Street
Accra
00233

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

+233599599211

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