Harry's Hydrocephalus Awareness Trust

Harry's Hydrocephalus Awareness Trust Harry’s HAT supports children with paediatric hydrocephalus and those who love and care for them. Learn more about our Get-A-Head campaign.

We connect families, push for early diagnosis through our Get‑A‑Head campaign, and raise awareness with training, resources and community outreach. We want all new parents, parents-to-be and health care professionals to know why head circumference measurement is such a crucial tool in spotting babies showing signs of hydrocephalus. www.harrys-hat.org/get-a-head

23/06/2026

When we started Harry’s HAT, we never imagined just how far we would come.

From raising awareness, to driving real conversations about baby brain health, every step has been powered by our community.

This video captures just a glimpse of that journey, and the difference a small charity can make.

But we’re not done yet.

There is still more to do to ensure every child gets the early checks they deserve.

Thank you for being part of our story so far. 💫

https://www.youtube.com/watch?v=P5YDi4ixRB8

🎬 Funded by the Matthew Good Foundation
🎥 Produced by Big Picture Charity Films

Remember that until Monday, donations made to Harry's HAT via this link will be doubled at no extra cost to you: https://donate.biggive.org/campaign/a05WS00000C3g2DYAR?utm_campaign=a05WS00000C3g2DYAR-example1

Small Charity Week

🌡️ With a setting in across the UK, we wanted to re-share our advice for children with .Signs of can mimic the sy...
23/06/2026

🌡️ With a setting in across the UK, we wanted to re-share our advice for children with .

Signs of can mimic the symptoms of shunt failure, so it’s always best to drink plenty of fluids to avoid the onset of headaches, drowsiness and irritability.

Stay safe out there and remember to find shade where you can 🌞

🔄 to spread the knowledge 💡

There's more info here: https://harrys-hat.org/get-help/remember-your-water/

22/06/2026

🧡 It’s Small Charity Week 💙

This week, we wanted to share an incredible story that means so much to us here at Harry’s HAT.

A few months ago, Amy and Kieran Peek got in touch to tell us about their daughter, Millie-Mae, who they say wouldn’t be here today if it wasn’t for the information on our website.

Within 24 hours of finding a list of symptoms on our page, Millie-Mae was diagnosed with hydrocephalus. We are so incredibly grateful Amy found us when she did.

This is exactly why we exist, and it shows the real impact even a small charity can have.

Please take a moment to watch their story, and if you’re able to, support our Small Charity Week week Big Give campaign.

Thanks to the wonderful Postcode Lottery UK players, every donation made will be DOUBLED through match funding from Postcode Society Trust between 22-29 June 🙌

🔗 Here's the link: https://donate.biggive.org/campaign/a05WS00000C3g2DYAR?utm_campaign=a05WS00000C3g2DYAR-example1

💙 Thank you for helping us make a difference.

You can read Millie-Mae's story in full here: https://harrys-hat.org/news/harrys-hat-tattoo/

21/06/2026

This Father’s Day, we’re shining a spotlight on a very special dad 💙

Get to know Harry’s dad, Matt.

He’s our co-founder, co-treasurer, and a driving force behind everything we do here at Harry’s HAT.

His personal connection is at the heart of our mission and continues to inspire our work every day.

We hope you all enjoy a lovely Father’s Day but also know it can be a really tough day for many of us. Please never stay silent and always reach out if you need a chat. 💙🧡

Families often tell us their child's was initially misdiagnosed as .For this week's , we dug into the science behind...
19/06/2026

Families often tell us their child's was initially misdiagnosed as .

For this week's , we dug into the science behind why that might be...

18/06/2026

🎼 You’ll Make it Through

A dad whose son was diagnosed with at two years old has written a heartfelt song about his journey, in the hope of helping other families feel less alone. 🎵

💙 When Ryan first shared this with us, we were blown away by how powerfully the lyrics capture the emotions so many families experience.

🔗 Read Ryan’s story, see the lyrics and listen to the song here: https://harrys-hat.org/news/dad-writes-song-hydrocephalus/

🧠💫 Know Your Neuro: Meet Mr Ramirez!If you’re signed up to our newsletter, you may have already had a sneak peek at our ...
16/06/2026

🧠💫 Know Your Neuro: Meet Mr Ramirez!

If you’re signed up to our newsletter, you may have already had a sneak peek at our brand-new feature, where we shine a spotlight on some of the amazing healthcare professionals from the neurosurgical teams who help care for our children.

We know that hospital admissions can feel scary and daunting, so Know Your Neuro is all about helping children get to know the friendly faces behind their care in a fun, simple and child-friendly way. 🌟

We’d love to hear what you think! 💙

15/06/2026

We are so proud of our Young Ambassador Project and the incredible young people involved 💙🧡

Each of them does an amazing job championing the charity and raising awareness of hydrocephalus, helping to make a real difference in the lives of others.

We’re always on the lookout for more inspirational young people who want to fly the flag for Harry’s HAT and inspire the next generation with their achievements.

If that sounds like you, or a young person you know, we’d love to hear from you!

📩 Email: [email protected]

Learn more about the tests and scans used to diagnose in this week’s .Early diagnosis can make a life-changing differ...
12/06/2026

Learn more about the tests and scans used to diagnose in this week’s .

Early diagnosis can make a life-changing difference. If concerns are raised about head circumference, this can lead to further investigations such as ultrasound, MRI, or CT scans to confirm a diagnosis.

Often, the earlier hydrocephalus is detected, the better the outcome for a child.

💡 A simple measure could change a child’s future.

11/06/2026

🧠 Hydrocephalus can be incredibly tough.

It can look like hospital beds, surgeries and uncertainty.
And it can also look like moments of joy and doing what you love.

This is a tiny snapshot of Harry’s journey, but it’s not the only one.
Every hydrocephalus experience is different, and all of them matter. 💙🧡

We want to reflect the full picture of hydrocephalus, so if you would like to share your story like this, we’d love to hear from you in our DMs.

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Yateley

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Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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+447961001710

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