Harry's Hydrocephalus Awareness Trust

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Harry's Hydrocephalus Awareness Trust Harry’s HAT supports children with paediatric hydrocephalus and those who love and care for them. Learn more about our Get-A-Head campaign.

We connect families, push for early diagnosis through our Get‑A‑Head campaign, and raise awareness with training, resources and community outreach. We want all new parents, parents-to-be and health care professionals to know why head circumference measurement is such a crucial tool in spotting babies showing signs of hydrocephalus. www.harrys-hat.org/get-a-head

Big News! 🗞 Harry's HAT is taking the voices of hydrocephalus families to the world stage!Our poster exploring the move ...
09/10/2026

Big News! 🗞 Harry's HAT is taking the voices of hydrocephalus families to the world stage!

Our poster exploring the move from children's to adult services has been selected for display at the International Society for Paediatric Neurosurgery conference in Cairo, Egypt.

It will be shown between 11am-1pm today.

This gives us a chance to share families' experiences with healthcare professionals from across the globe and help drive improvements in support for young people living with hydrocephalus.

A visit to Sheffield Children’s Hospital 💙🧡Victoria made the trip over the Pennines today to drop off a whole host of Ha...
08/10/2026

A visit to Sheffield Children’s Hospital 💙🧡

Victoria made the trip over the Pennines today to drop off a whole host of Harry’s HAT resources, teddies and feelings cards to help support children and families affected by hydrocephalus in South Yorkshire.

A huge thank you to specialist nurses Liz and Jan for such a warm welcome. It was fantastic to meet you both and to see Ward 5.

We’re proud to work alongside dedicated healthcare professionals who make such a difference to children and their families every day. 🫶

07/10/2026

💙🧡 Hannah’s Journey

Hannah’s family received her hydrocephalus diagnosis at their 20-week scan.

As Hannah is a twin, the rest of the pregnancy was filled with regular appointments, uncertainty, and difficult conversations about what the future might hold.

At just 3 days old, Hannah underwent surgery to have a shunt fitted. A few weeks later, she developed meningitis and was rushed back to hospital, where her shunt had to be removed and replaced.

When Hannah was just over a year old, she began experiencing periods of sickness and vomiting. For five months, her family made repeated trips to hospital before an MRI revealed the cause, leading to emergency surgery that same evening.

Since then, Hannah has had no further hydrocephalus complications and is now approaching her seventh birthday.

While the challenges she faced in her early years have left her needing some extra support in some areas, Hannah continues to make fantastic progress. With the help of her tutor and physiotherapy team, she is thriving in a mainstream school and enjoying life with her twin.

During pregnancy, Hannah’s family were given very little hope and told she might never even breathe independently.

Today, Hannah shows just how unpredictable hydrocephalus journeys can be.

We’re so grateful to Hannah’s family for sharing their story with us. 💙

We want to reflect the full spectrum of hydrocephalus experiences, so if you’d like to share your family’s story, we’d love to hear from you. 💙🧡

06/10/2026

📍 5 days to go until Race Across Yateley!

We’re so grateful to the amazing Race Across the World stars who have shared messages of good luck for everyone taking part this Sunday. 💙🧡

Huge thanks to:
🗺️ Claudia and Kevin (Series 3)
🗺️ Owen (Series 4)
🗺️ Brian and Melvyn (Series 5)
🗺️ Elizabeth (Series 5)

⏰ There’s still time to sign up, but registration closes at 12pm tomorrow.
🔗 https://raceacrossyateley.co.uk/

Whether you take on the 4-checkpoint walking route or the 6-checkpoint, 10K challenge route, it’s set to be a brilliant day.

Not taking part? Come along and enjoy the atmosphere at our event village at Yateley United Football Club. There’ll be food, drinks, entertainment, activities and local stalls while you cheer on the teams racing to the finish.

And the best part? Every penny raised will support the work of Harry’s HAT and Yateley Industries.

🏃‍♀️ Don’t miss out. Gather your team and join us this Sunday! 🗺️🏆

🧠 Is this the BEST half marathon costume ever?! We think so!Meet Ron, a neurosurgical registrar at the University Hospit...
05/10/2026

🧠 Is this the BEST half marathon costume ever?! We think so!

Meet Ron, a neurosurgical registrar at the University Hospital of Wales in Cardiff, who took on the Cardiff Half Marathon yesterday dressed as a GIANT brain to raise awareness of hydrocephalus.

13.1 miles later, he crossed the finish line having turned plenty of heads, sparked conversations, and raised an incredible amount for Harry’s HAT. 🧠💧

What a legend!

Here's his JustGiving page: https://www.justgiving.com/page/harrys-hat-cardiff-half-2026

Think you could top this costume? Get in touch and take on a challenge for Team Harry’s HAT! 👟💪

MCR Half Marathon! 🏃‍♀️🏃‍♂️A huge thank you to our amazing   runners for taking on 13.1 miles to raise funds and awarene...
04/10/2026

MCR Half Marathon! 🏃‍♀️🏃‍♂️

A huge thank you to our amazing runners for taking on 13.1 miles to raise funds and awareness for children living with .

Please join us in celebrating these fantastic fundraisers, and read on to see their reasons for raising money for our cause! 👏

Aimee’s Inspiration 🧡

Aimee was diagnosed with hydrocephalus as a baby and wants to prove that the condition doesn’t define who she is.

She said: “I was born 3 months premature, I have had 2 brain surgeries, I drive a car, I work full time, I go to the gym, and now I run.

“I never thought I’d be able to do any of this with hydrocephalus.

“My family had pretty much no support when I was born 22 years ago. To now seeing Harry’s HAT supporting families and raising awareness really touches mine and my family’s hearts. Thank you.”

Beth’s inspiration 💙

Beth met her best friend Jez at university nearly 15 years ago. Jez is now our fantastic Chair of Trustees, after his little girl Eliza was born with hydrocephalus in 2025.

Beth said: “I have seen how incredible Harry’s HAT has been and the support they have given to Eliza, Jez & Meg. I want to help raise awareness of hydrocephalus because, since raising money for Harry’s HAT, the amount of people in my personal/work life I have spoken to who have some relationship to someone with hydrocephalus is actually crazy - but people still don’t seem to know much about it.”

Jez’s Inspiration 🧡

Jez became our Chair of Trustees after his daughter Eliza was diagnosed with hydrocephalus last year.

He said: “Running has given me a way of getting away from what can be the reality of life as a hydro dad. Being able to pick up a new hobby and raise some funds for the charity has been something I've been proud to have done this year.”

Living with   can sometimes mean navigating other health challenges too. One of these can be  .While not everyone with h...
02/10/2026

Living with can sometimes mean navigating other health challenges too. One of these can be .

While not everyone with hydrocephalus will experience seizures, they are more common within the hydrocephalus community than in the general population.

Every hydrocephalus journey is unique. By sharing trusted information and raising awareness, we hope to help families feel more informed, empowered and confident in navigating any challenges that may arise along the way.

Congratulations are in order! ✨We want to take a moment to celebrate our Clinical Trustee, Ashwin Kumaria, on his new ro...
01/10/2026

Congratulations are in order! ✨

We want to take a moment to celebrate our Clinical Trustee, Ashwin Kumaria, on his new role at the Royal Belfast Hospital for Sick Children, following his recent move from the National Hospital for Neurology and and Neurosurgery in London.

Ashwin is now a Consultant Neurosurgeon, splitting his time between paediatric neurosurgery and adult neurosurgery at the Royal Victoria Hospital in Belfast. 🧠

We feel incredibly proud and grateful to have Ashwin’s expertise on our Board of Trustees. He plays a vital role in advising on clinical matters and helping to shape the resources we create for children and families affected by hydrocephalus.

Ashwin is one of an incredible team of people who generously volunteer their time and expertise behind the scenes, helping us to improve the lives of children living with hydrocephalus.

Please join us in saying a huge congratulations and well done to Ashwin from everyone here at Harry’s HAT! 💙🧡

We’re proud to be growing our support across the North West 💙🧡From delivering training and resources to healthcare profe...
28/09/2026

We’re proud to be growing our support across the North West 💙🧡

From delivering training and resources to healthcare professionals, bringing families together through events, and celebrating the incredible fundraisers who make our work possible, we’re committed to improving awareness, support and outcomes for those affected by .

A special thank you to The Fore for investing in our work for the next three years, helping us reach more families, support more professionals and raise awareness of hydrocephalus across the North West.✨

Want to help us reach even more families and professionals? We’re always looking for funders, partners and supporters who share our vision. Get in touch and help us grow our impact across the region. 📣

Address

Yateley

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+447961001710

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