Metabolic Support

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Metabolic Support The leading patient organisation for inherited metabolic disorders offering support to the 1.43M+ people affected worldwide to live well today, tomorrow

Our social media channels are designed as a way to share our work and to engage with the inherited metabolic community and beyond. Although we welcome healthy debate and feedback we will remove posts or comments that we feel are not in line with our projects, campaigns or organisational aims. Self-promotion, spam and irrelevant links aren't allowed nor is tagging people unknown to you in comments on our work.

16/10/2026

💜 Coming to Metabolic Support’s Community Conference 2026?

We’re so excited to welcome you!
Just a few important reminders before the big day!

🎟️ Check Your Tickets!

📍Saturday 14th November – In Person at The Studio, Birmingham

💻 Sunday 15th November – Online Webinars

You can attend one or both days, but please make sure you’ve booked the correct tickets!

🗣️ Have a Burning Question for Our Experts?
Our Knowledge Exchange session is your chance to put questions to a fantastic panel of healthcare professionals, researchers and people with lived experience of inherited metabolic disorders.
We’d love to hear questions that matter to the wider community! Please note that our panel won’t be able to offer individual medical advice.

👉 Submit your questions here: https://wkf.ms/4ARvkqr

💜 Can No Longer Attend?

No problem! Please let Sarah know at [email protected] so we can offer your place to someone who may be waiting for a ticket.

We can’t wait to see you and bring our wonderful community together! 💜

🎉 Two More Fantastic Speakers Joining Our Community Conference! 💜We're excited to introduce two more people joining us f...
13/10/2026

🎉 Two More Fantastic Speakers Joining Our Community Conference! 💜

We're excited to introduce two more people joining us for Metabolic Support's Community Conference 2026!

🌟 Day One - Saturday 14th November | In Person

We're delighted to welcome Naomi Litchfield, who will be joining our Research Ready topic table. 🔬

🌟 Day Two - Sunday 15th November | Online

We're also pleased to welcome Professor Imalke Kankananarachchi, who will be sharing valuable insights into newborn screening.

💜 Our Community Conference is about so much more than sharing information. It's about bringing people together, learning from one another, making connections and helping families feel supported and understood.

Whether you join us in person, online or for both days, we'd love to see you there!

📍 14th November - In Person
The Studio, Birmingham

💻 15th November - Online

✨ Come for one day or join us for both!

🎟️ Tickets are limited - book yours now!

https://www.eventbrite.co.uk/e/metabolic-supports-2026-annual-community-conference-tickets-1982670615182?aff=erelexpmlt

💬 Who's coming? Let us know in the comments! 💜

💜 October is Homocystinuria (HCU) Awareness Month!We’re proud to be working alongside HCU Network America and HCU Networ...
12/10/2026

💜 October is Homocystinuria (HCU) Awareness Month!

We’re proud to be working alongside HCU Network America and HCU Network Australia on an exciting HCU community gathering in 2027.

Our Community Lead, Sarah Jones, spoke to RARE Revolution about the importance of collaboration, bringing the HCU community together and ensuring the event is shaped by the voices of people living with HCU and their families.

💬 “When we collaborate and align our visions and goals, it has a powerful impact for our community.”

Read the full article to find out more.💜

https://rarerevolutionmagazine.com/digitalspotlight/hcu-2027-and-beyond/

💜 Did you know we’re signed up to Run for Charity?From skydives and Tough Mudders to 5Ks, 10Ks, half marathons, inflatab...
12/10/2026

💜 Did you know we’re signed up to Run for Charity?

From skydives and Tough Mudders to 5Ks, 10Ks, half marathons, inflatable courses and even kids’ races – there really is something for everyone! 🏃‍♀️🙌

Take a look, find your challenge and get signed up! It’s a great way to keep active over winter while raising vital funds to help us continue supporting our wonderful IMD community. 💜

What challenge will you choose? 🤔

https://metabolicsupport.org/get-involved/fundraise/run-for-charity/

Day 1 is almost full – but did you know there’s a Day 2 too? 💜On Sunday 15 November, our 2026 Annual Community Conferenc...
08/10/2026

Day 1 is almost full – but did you know there’s a Day 2 too? 💜

On Sunday 15 November, our 2026 Annual Community Conference continues online with the launch of our new international webinar series.
Join the global IMD community for sessions covering lived experience, research, support and advocacy, with NBS, UCD and LC-FAOD sessions already set to feature.

🎟️ Join from anywhere

💻 Online & 2-Day Pass holders get recordings for one month

📍 A few in-person tickets for Birmingham are still available

📣 Full agenda and guest speakers coming soon!

Don’t miss out – get your tickets today!

📖 Read Kira’s story 📖Kira recently shared her personal journey of living with HCU with HCU Network America, and she has ...
07/10/2026

📖 Read Kira’s story 📖

Kira recently shared her personal journey of living with HCU with HCU Network America, and she has very kindly given us permission to share her story with our community too.

Sharing lived experiences can be such a powerful way to raise awareness, help others feel less alone and bring our community together.

Take a moment to read Kira’s story on our website and hear about her experience of living with HCU. 💜

If you’d like to share your story with our community, we’d love to hear from you! 📣 Please do get in touch.

We’ve had such a lovely time visiting Birmingham Children’s Hospital for the dietetic and transition clinics, as well as...
06/10/2026

We’ve had such a lovely time visiting Birmingham Children’s Hospital for the dietetic and transition clinics, as well as Manchester Children’s Hospital for the transition clinic. It was great to meet some new families and catch up with some familiar faces too! 💜
Our next clinic stops are:
📍 Sheffield Adult Clinic – Royal Hallamshire Hospital
Friday 9th October
📍 Nottingham Children’s Hospital
Wednesday 14th October
If you’re booked in at either of these clinics, please come over and say hello – we’d love to see you! 💜

🏃‍♂️ Joseph is taking on the Cardiff Half Marathon for Metabolic Support this Sunday! 💜Joseph is once again taking on th...
02/10/2026

🏃‍♂️ Joseph is taking on the Cardiff Half Marathon for Metabolic Support this Sunday! 💜

Joseph is once again taking on the challenge in support of a cause very close to his heart. Last year, his son Noah was diagnosed with a rare Inherited Metabolic Disorder, which came as a complete shock to their family.

Thankfully, with the support of specialists, Noah is doing amazingly well and has taken his new way of life in his stride. Joseph is running to help us continue supporting other individuals and families affected by IMDs.

He’s already raised an incredible amount and smashed his fundraising target – but let’s show him some support and see if we can get that total even higher! 🙌

Good luck on Sunday, Joseph! We can’t wait to hear how you get on! 💜🏅

Click here to donate!

https://www.justgiving.com/page/joseph-manley-4?utm_source=SFMC&utm_medium=email&utm_campaign=LFCFRUK_Day1_FTReturnSport&mi_u=18187775&mi_ecmp=LFCFRUK_Day1_FTReturnSport

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Metabolic Support UK, Centurion House, 129 Deansgate
Wrexham
M33WR

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