Seirian versus The Leukaemians

02/10/2026

🍁🍂🎃October is a weird month for us. It's our favourite time of year, we love the cooler days, autumn colours, halloween and the start of the Christmas countdown.
It's also the month Seirian was diagnosed with cancer and flashbacks to that time can catch us unawares. We know it's important to process past traumas, to recognise what they were and feel the pain of them in safe and caring ways. It's ok to talk about it, remember the events and feelings we had, and be sure to say well that was then and this is now.
🧡Now Seirian is doing full days in high school with great support from school. She has a space she can go to for rest and help to move around the huge campus. There are some hurdles but we're fixing things where we can so that Seirian experiences classes in a positive way.
Yes she's hurting a lot more, and is absolutely exhausted. But we can see that usual quiet determination in her that eeks forward, small step after small step.
Balancing her energy 'spoonies' is a daily task as she wants to do so much.
But Seirian is doing more than she realises, a lot of school, a little bit of Taekwondo, a little Badgers, swim lessons and more than a dash of turning into a tweenager with even more sass.
And we're all getting used to our knees hurting going up and down the stairs in our new home which is organised chaos, but we love the place ❤️
Thank you to S hair for Seirian's hair pamper, a lovely generous and caring gift which put a huge smile on her face and a spring in her step 💈✂️

01/10/2026

What a beautiful inspiring young lady.

At I think age 7 she was diagnosed with leukaemia.

She had a horrific 3 years and lost 3 years of her childhood in hospital beds ..

She came in and and was so chatty and lovely I felt very honoured to have done her hair on the house obviously ..

We complain about such trivial things and this put things right into perspective..

We had a lot in common so I'm glad we could offer her a space to talk and someone understand a bit of what's she's been though.

-
-
-

25/09/2026

It’s been almost a year since Cyclists Fighting Cancer provided a trike to Seirian courtesy of Geraint Thomas Cycling Trust funding.

11/09/2026

Tomorrow, we will be in UK Parliament to make the case for what could be the biggest generational change in how this country supports parents of seriously ill children.

For too long, families have been expected to somehow keep working, keep earning, keep paying the bills and keep life functioning while sitting beside a hospital bed wondering whether their child is going to survive.

Hugh’s Law is about changing that.

This is no longer just families asking for help.

The Dame Rachel de Souza has called for change. Major charities are behind it. More than 40 businesses, representing over 30,000 employees, have backed or adopted its principles. Parliamentarians from across the political spectrum are supporting it.

Tomorrow, we take that case back to Westminster.

Not asking for sympathy. Asking for legislation.

Because when a child becomes seriously ill, a parent’s place should be beside them not choosing between their child, their job and keeping a roof over their family’s head.

The consultation is over. The evidence is there. The support is there.

Now is the time to legislate for Hugh’s Law.

For Hugh. And for every family who will one day receive the news that changes everything. 🧡

If you want to join us in Parliament tomorrow and stand with us for Hugh’s Law, please DM me.

03/09/2026

We're doing high school now 💙🩶🤍

01/09/2026

🎗
Going Gold for Childhood Leukaemia Awareness Month
🎗

02/08/2026

11 today ❤️🧡💛💚💙💜🩷
And what a day it's been!

23/07/2026

An epic few weeks!
Seirian has worked her socks off to make sure she's taken part and experienced everything in the last few weeks of school. Yes she's exhausted, hurting and maybe a little overwhelmed but she's coped so well with the demands on her physically and mentally.
🕳Sports Day. Knowing she would come last but still did track, sprint, relay, sack race and egg n spoon.
And ran the whole way around the track, thats a massive step forward in her strength and stamina.
🕳Prom. With a lovely students choice award for bravery.
🕳Leavers Service. Emotional 😢
🕳Awarded the School Leavers Trophy for Respect & Manners.
🕳Badgers. Got her first aid badge and completed her first event shadowing St Johns.
🕳High School Transition. Seirian loved it! And attended all week and full days.
🕳Afternoon Tea. Thank you Aunty Julie 😘
🕳Alder Hey. Walked to the new play park from the hospital, no stick, no wheelchair, and had fun playing in the rain.

21/07/2026

In case you missed the interview live, here it is on BBC Sounds on catch-up

A young patient's artwork returns to the Alder Hey ward that helped her heal.