Leon's Journey

Leon's Journey This is Leon's page! A place to come for updates on how he is getting on, on his SDR journey and living with cerebral palsy.

13/03/2026

Podcast available now! Search for SENDcast on Spotify, IPhone podcasts, YouTube or their website :)

13/03/2026

As Leon’s Mama, I manage Leon’s accounts so I wanted to share something on this platform that I am incredibly proud of as a progression of my advocating role, inspired by our experiences with disability and caring as a family.

I have found a fulfilling job that inspires me everyday and one that has allowed me to use my experiences and knowledge to help support other children and other families 🥰. This recording is incredibly personal and also rewarding for me to share and hopefully inspire others to support carers too.

Enjoy listening ☺️ Kasia x

28/02/2026

This is what it feels like when you watch your toddler walk for the first time 🥰 love watching Leon move the way he wants to.

Wishing the happiest of birthdays to a not-so-little-anymore Leon 😘As loud and as stubborn as any teen I know ;) makes m...
03/01/2026

Wishing the happiest of birthdays to a not-so-little-anymore Leon 😘

As loud and as stubborn as any teen I know ;) makes me incredibly proud. He knows his mind and he will find a way to tell you what that is!

Last year, Leon made big strides with his independence. He’s getting used to the option of switching between manual wheels and electric with an outdoorsy wheelchair and he finally received official recognition of his autistic self. This next year brings the introduction of hoists and more effective communication, if he’ll let us into his world :)

Happy and in charge! Bring on the teen years 🫶

Easter vibes 2025
20/04/2025

Easter vibes 2025

World Book Day 2025This year we are mad about Narnia 🥰 Leon loved his outfit as the Best Aslan Ever and Aniela as Lucy P...
06/03/2025

World Book Day 2025

This year we are mad about Narnia 🥰 Leon loved his outfit as the Best Aslan Ever and Aniela as Lucy Pevensie 😉

📚

Beauty and the Beast Panto this morning at 11am 😍So proud of Leon - he stayed for 2 hours!! This was not a relaxed perfo...
05/01/2025

Beauty and the Beast Panto this morning at 11am 😍

So proud of Leon - he stayed for 2 hours!! This was not a relaxed performance and it took him a while to get used to the sound (it was pretty loud!) and he really enjoyed it! 🥰

The wheelchair seat was at the back of the stalls but as you can see we had a good view and it was a good space for Leon so he felt comfortable. He sat through the 20 minute break but afterwards needed his iPad to watch his favourite game simultaneously and then he started to get restless so he asked to leave at 1pm. He only missed the last 30 minutes so this was such an experience that we were able to have today! ❤️

Sharing this online because I need to document this experience for Leon and for the rest of us, it was an experience we were able to share and these have been few and far between for the past few years.

It’s also important to remember that just because he managed to stay for most of it this one time does not mean the same thing will happen again. It still meant one adult had to leave the performance early and a lot of things had to align for him to be able to enjoy this.
For example, a good nights sleep, a relaxing breakfast, no rushing to leave, a few days of reviewing the programme in advance (he held it up during the performance to point to the performer on stage and in the programme book!), a morning performance, a wheelchair seat in a good place for him, a short wait (by the time we got there - snow was not a problem, the slush was annoying though!), snacks readily available, a small group of family faces supporting him (ie the three of us), his favourite toy and iPad to hand. There may well have been more that I did not notice but it all adds up doesn’t it.

The last of Leon’s birthday celebrations 🎁🎈🎉
And this year, it was a success! x

Wolverhampton Grand

Happy 12th Birthday Leon 🥰Just a chilled day doing all the things you love…presents, shopping, watching cars, eating piz...
03/01/2025

Happy 12th Birthday Leon 🥰

Just a chilled day doing all the things you love…presents, shopping, watching cars, eating pizza and finally chocolate cake!! 🧁 What a day! 😍

Wonder what this next year will bring before you hit the teenage years 🫣😅 starting with, getting you a wheelchair that fits and supports all your needs . Just give Mama a moment before she gets enough strength to fight that battle with wheelchair services 🤪

02/01/2025

Preparing Leon for his birthday treat on Sunday morning (unless snowed in ❄️)…Wolverhampton Grand

I love the way his mind works! First, he reviews the theatre programme gifted to us from a friend (thanks Rebecca!) and then he pulls up the trailer on YouTube 🥰 (in this video) and follows this by watching a walk-through of the theatre, also on YouTube 😍

I think we are prepared 🤞 and hoping to stay for the duration, if Leon can tolerate the whole show. Not managed it since he was little but very hopeful seen as it was all his choice and he is preparing himself 🥰 🙌 Definitely intrinsically motivated 🙌😍

Family theatre trip!! 😅🤞happy birthday (for tomorrow) Leon!

Leon is a big fan of Elsa and I wasn’t sure if he’d enjoy this experience or not but we gave it a go…SO glad we did, his...
15/12/2024

Leon is a big fan of Elsa and I wasn’t sure if he’d enjoy this experience or not but we gave it a go…SO glad we did, his face says it all 🥰😍👍

Merry Christmas Elsa! ❤️🩵

Waiting to see Santa ;)
30/11/2024

Waiting to see Santa ;)

For World Prematurity Day 💜 This happy face that changed the trajectory of my life and purpose :) x
17/11/2024

For World Prematurity Day 💜

This happy face that changed the trajectory of my life and purpose :) x

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