Sickle Cell & Thalassaemia Support Project

14/08/2026

Families had a great time at our picnic this week at West Park in Wolverhampton 🌤️🙌

14/08/2026

Families affected by Sickle Cell and Thalassaemia are invited to join us next week for a Picnic in the Park 🧺⚽️

Tuesday 25th August 2026
11am to 1pm
Walsall Arboretum WS1 2QB

For more details and booking, visit our website or get in touch 😊

14/08/2026

Where do you go for information on your condition?

We know that patients are experts in their condition and there are many resources available to support you as advocates in your own care for sickle cell and thalassaemia. NHS England would like to understand more about where you go to find out more information, how easy it is to find resources and what you would like to see improved.

Please complete this short survey to share your views and experiences. Your responses will be used to shape the development of a new education project to improve the accessibility of patient information and resources.

Scan the attached QR code attached to complete the survey and share with friends and family!

Any questions, please contact: [email protected]

13/08/2026

Radio takeover!🎙️🙌

This evening, the Sickle Cell & Thalassaemia Support Project will be on WCR FM for the Thursday Takeover!

Sydney will be speaking to Sandra, Donald & Kyra about what it’s like to live with Sickle Cell disease, the history of the Sickle Cell & Thalassaemia Support Project and the support that’s available.

Listen today- 6pm to 7pm
101.8 FM (Wolverhampton & Walsall)
https://wcrfm.com

12/08/2026

Adults living with Sickle Cell and Thalassaemia in Wolverhampton are invited to our office to meet the team & learn more about the support that’s available 💛

Feel free to drop-in one of the the following days:

Friday 14th August 2026
Anytime between 1pm and 3pm

Wednesday 19th August 2026
Anytime between 3pm and 5pm

For more details, call 01902 444076

30/07/2026

🌟We’re shortlisted! 🌟

We are incredibly proud to announce that the Sickle Cell & Thalassaemia Support Project (SCTSP) has been shortlisted for the Ethnicity Awards 2026

This recognition celebrates over 35 years of standing with families affected by sickle cell and thalassaemia across the Black Country

We have supported families through every stage of life providing advice, advocacy, education and a trusted source of support when it is needed most.

This nomination belongs to our amazing community:
• The individuals and families we support
• Our board, staff and volunteers
• Our healthcare and community partners
• Everyone who has been part of our journey

Now we need your help!

The winner is decided entirely by public vote, every vote helps us celebrate the impact of SCTSP 🙌

Please vote for us and share with your family, friends and networks, link in comments 🔗

Voting closes 1st September 2026

30/07/2026

On Monday 27th July, a small group of people supported by the Sickle Cell & Thalassaemia Support Project enjoyed a relaxing trip aboard the Ernest Thomas II Narrowboat (Ernest Thomas II)

This was a lovely afternoon travelling along the canal, enjoying the sunshine and spotting plenty of wildlife 🌤️

Thank you to the South Staffordshire Narrowboat Co Ltd for making this trip possible.

13/07/2026

07/07/2026

How easy is it to access your GP? We want to hear about your current experiences of contacting your GP, booking appointments, and accessing care. Has GP access improved over the last 4 years since our previous insight report? What works well, and what could be better? Your feedback will help us understand local experiences and influence improvements to GP services across hashtag .
Share your views and help make GP access work better for everyone.
Complete our short confidential online survey by 30 September 2026. Find out more https://www.healthwatchwolverhampton.co.uk/four-years-on-gp-access

06/07/2026

Please help give Toshi her independence back 💛

Toshi’s powered wheelchair was stolen, leaving her without vital equipment she relies on every day. A fundraiser has been set up to help raise the funds needed for a replacement.

Every donation will make a difference. If you’re unable to donate, please consider sharing this post to help reach more people.

On Thursday 18 June 2026, my friend Toshi's powered wheelchair was stolen. T… Daniel Donaldson needs your support for Help Toshi Replace Her Stolen Wheelchair