Mitrofanoff Support

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Mitrofanoff Support Mitrofanoff Support is a UK registered charity providing information and support in all areas relating to the Mitrofanoff procedure.

Professor Paul Mitrofanoff created the Mitrofanoff (mi-trof-fan-off) procedure in 1976, also known as the Mitrofanoff Appendiciovesicostomy or a Continent Urinary Diversion. The Mitrofanoff was introduced to permit bladder drainage where voiding or urethral self-catheterisation is not possible. For a patient the procedure enables them to maintain dignity and means that there is no need to have an indwelling catheter or wear a stoma bag. What is a Mitrofanoff?

• Creates a channel into the bladder
• A catheter is used visa the channel to empty the bladder

The Mitrofanoff is often situated on the right hand side of the lower abdomen, just below the underwear line or for cosmetic appearances another possible site is the umbilicus. The procedure may be an option due to the following conditions:

• Congenital birth malformations ie; bladder exstrophy, bladder epispadias, spina bifida and neurogenic bladder
• Multiple Sclerosis
• Spinal Cord Injuries and paraplegia
• Bladder cancer patients and in some cases prostate or bowel cancer

Bladder enlargement or replacing a bladder:

• Bladder augmentation, this is to enlarge a small bladder and to create a sufficient reservoir
• Neo bladder, when a new bladder is created due to disease

Complications, post operatively:

• Stenosis (narrowing)
• Leaking
• Stones
• Infections

All procedures and surgery come with risks and complications, the Mitrofanoff procedure may not be suitable or successful in some cases. The benefits

The Mitrofanoff procedure can be a long-term solution to enable patients to maintain a normal quality of life and dignity.

A message from our Bronze Partners, Hunter Urology, part of the Optimum Medical Group  Interested in trying our catheter...
30/09/2026

A message from our Bronze Partners, Hunter Urology, part of the Optimum Medical Group

Interested in trying our catheters?

Contact us for a free sample at [email protected] or call +44 (0) 845 643 5479

A message from our Gold Partners FlexicareOur product portfolio extends beyond catheters!Phone: 0800 999 26 11Website: w...
29/09/2026

A message from our Gold Partners Flexicare

Our product portfolio extends beyond catheters!

Phone: 0800 999 26 11
Website: www.flexicare.com/support

A message from our Gold Partners Vesica UrologyThe OptiSmooth Mitro XL catheters are now being used in major bladder rec...
25/09/2026

A message from our Gold Partners Vesica Urology

The OptiSmooth Mitro XL catheters are now being used in major bladder reconstruction centres in the UK!

4 Extra Large XL drainage eyes that really help improve drainage & flush out mucus

Email [email protected] for samples

A message from our Gold Partners FlexicareWyStopper - A flexible soft stopper to maintain stoma sites, especially contin...
14/09/2026

A message from our Gold Partners Flexicare

WyStopper - A flexible soft stopper to maintain stoma sites, especially continent urinary diversions, such as Mitrofanoff and ACE tracts.

Phone: 0800 999 26 11
Website: www.flexicare.com/support

💚 You don’t have to navigate the Mitrofanoff journey alone.Our Mitrofanoff Support Day in London is a chance to come tog...
08/09/2026

💚 You don’t have to navigate the Mitrofanoff journey alone.

Our Mitrofanoff Support Day in London is a chance to come together with people who understand.

On Saturday 10th October, we’ll have talks from our Surgeon Patron Claire Taylor, nurses and Mitrofanoffers, alongside opportunities to learn, ask questions, share experiences and make new connections.

Whether you’re newly considering a Mitrofanoff, have lived with one for years, or are supporting someone else, you’re welcome.

📍 Central London | ⏰ 10am–4pm
👉 https://www.mitrofanoffsupport.org.uk/events/mons-28-5-sept-2026

Come along. Connect. Feel supported. You belong here. 💚

Address

PO Box 3690
Wokingham
RG409QH

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