Walsall Fibro M.E. Support

10/08/2026

Resources from the ME Association for Clinicians and other Healthcare Professionals.

The ME Association's ME/CFS/PVFS Clinical & Research Guide 2022 Edition (also known as the purple book)

Using our medical education budget, we can send UK healthcare professionals a free copy of this comprehensive resource, please get in touch via the form below:

https://meassociation.org.uk/healthcare-4-me/me-medical/

You can also download the section on Severe ME for free via our website:

https://meassociation.org.uk/literature/items/mea-severe-me/

10/08/2026

Lots of useful and free resources from Action for ME

❔ Did you know that we have a wide range of useful resources available to read and download for FREE on our website?

Our resources contain lots of helpful information, advice and signposting on topics including but not limited to:

• Getting reasonable adjustments at work

• Work Capability Assessment, Adult Disability Payment and Personal Independence Payment

• Living with ME, including what ME is, managing symptoms and accessing health services

• Social care services

• Explaining ME/CFS for young people, including information for siblings

We also have resources available for healthcare professionals, employers and schools!

Visit our website to read, download and share our resources 👇

https://www.actionforme.org.uk/resources/

08/08/2026

From Carolyn Leary, Chair of Forward ME.

'Our message is simple: people with very severe ME cannot wait. Every delay has real consequences for real people. Preventable harm must be prevented, and everyone living with severe and very severe ME deserves compassionate, expert care, wherever they live.

Today, we stand with everyone affected by severe and very severe ME. We will continue to speak up, to challenge, to work collaboratively, and to press for the urgent action that is so desperately needed until meaningful change becomes a reality.'

Click below to read the full message and the latest letter to Department of Health and Social Care - DHSC and NHS

A Message from the Chair of Forward ME August 8, 2026 • Updates Today is Severe ME Day. For most people, it is a day to raise awareness. But for those living with severe and very severe ME, today is simply another day like yesterday or tomorrow. Another day of living in darkened rooms, enduring re...

07/08/2026

MELN UK Annual Meeting.
4th September 2026, 12:00 till 13:00

Message our group for the online meeting details.

Maybe you're a long standing associate of MELN UK and want to come along to keep up with what MELN UK are doing. Or maybe you've never heard of MELN UK and want to come along to find out who we are and what we do. Everyone is welcome to join us for our first annual meeting.

07/08/2026

Ahead of tomorrow, we are launching the Severe ME Inquiry Report.

This inquiry, initially started by the APPG on ME, set out to examine the experiences of people living with severe and very severe ME. It found systemic failings across healthcare, social care, and education.

Around 1 in 4 people with ME have severe or very severe ME, and many experience stigma, prejudice and misunderstanding.

The inquiry found key themes that people with severe and very severe ME experienced, including inaccessible care, institutional prejudice and patchwork service provision.

The report sets out key recommendations for action, including establishing a national care framework for severe and very severe ME and mandatory training across health, social care and education.

You can read more and download the report on our website 👇

https://www.actionforme.org.uk/the-more-ill-you-become-the-less-care-you-receive-severe-me-inquiry-report/

We wish to say a huge thank you to all those who provided evidence and shared their experience for the inquiry. Thank you also to Tessa Munt, the APPG on ME, and the 25% ME Group for their support 🙏

04/08/2026

Raising Awareness of

02/08/2026

A second genetic study of Fibro - at last research like this is taking place 🙌

Uri Bright, PhD, left, and Joel Gelernter, MD, right, are first and senior authors, respectively, of a paper in Nature Communications that investigates the

02/08/2026

From the article - 'Only recently did researchers begin to systematically investigate the biological roots of the disease in earnest. Together with colleagues, Chris Ponting published the results of such a study in 2025. And it was high time, he explains:

"This type of genetic research should have been carried out 15 years ago – the technology existed back then, but was never applied to ME. In fields such as diabetes and autoimmune diseases, genetic findings are already being translated into new and effective treatments. That is exactly what we need with ME."'

You feel exhausted and find it hard to focus, and no matter how much you rest, you cannot shake off the fatigue. This is everyday life for millions of people – yet for decades, many doctors have dismissed the symptoms as pure imagination. Now, researchers have documented that the doctors were wron...