Team Reggie

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We are a fundraising team raising money to help other causes. We have raised over £10,000 in the last few years, which has gone to various causes.

Reggie has Down's Syndrome and has always had the magical power of putting a smile on people's faces.

04/07/2026

Another cycle ticked off ✔️

This week, Reggie attended hospital to begin his next treatment cycle, with a lumbar puncture followed by an IVIG transfusion. That leaves just two and a bit cycles until treatment is complete.

This time last year, we shared a poem. This year, we're sharing a song.

It's a reflection on how far he's come, even though the journey isn't over yet. It's about holding on to hope for brighter days ahead and finding the strength to keep fighting through the difficult ones.

Thank you to everyone who continues to support Reggie and our family. ❤️

07/06/2026

As the weather is a little unpredictable right now, we thought it may be time for a update, showing what Reggie has been upto whilst the weather was better.

Over the last few months We've had to be very tactical in where we go and when, in order to minimise any risk of infections. Reggie has enjoyed trips to a few places and although we have seen some mild infections, he's had been doing ok.

It's easy for people to look at Reggie with his hair all grown back and think all is well, but this couldn't be any further from the truth. In true unpredictable style, Reggie had an hospital admission during the school holidays due to acute kidney injury. This is something that we are still currently dealing with and have ongoing concerns, but to look at Reggie, you wouldn't know.
Despite all this when Reggie had his last lumbar puncture, he was gifted a players shirt from ex-Featherstone Rovers and Bradford Bulls player, Brandon Pickersgill. Many thanks and love to Brandon and his lovely family who we met in hospital.

And for icing on the cake. Reggie was going to clinic every 2 weeks. This has now been moved to every 4 meaning less trips back and forth (unless there are concerns.) Reggie will continue to have his Immunoglobulin transfusion every 4 weeks and the next one also falls on a lumbar puncture day which is the antepenultimate (or for Reggie's mum, third from last 😂) procedure before ringing the Bell 🤞

19/05/2026

Yesterday we received some wonderful news. Reggie's Nurse Dawn was awarded a very prestigious national health care award, The Dr Kate Granger monthly award for compassionate care.

Many of you won't know this but Dawn has played a substantial, and very important role in our lives way before Reggie was even diagnosed as having Leukaemia. But most notably for the fact that her fast acting, no nonsense and compassionate approach is the reason we still have Reggie in our lives.

Before we found out Reggie had cancer, we had concerns about his health, which over a few weeks become progressively worse. Not obvious of something serious but enough for us to have growing concerns. After the GP had no concerns, we still did, and after another day or so of no improvement we asked Dawn for advice. She listened, understood and acted immediately. Within a few hours Reggie had been seen, had blood tests and our worst nightmare confirmed.

Even once under the care of a different trust, Dawn continued to check in, offer support and sort things out for Reggie to take our burden away.

There is so much more to the story but this snapshot should at least show how very deserving she is of this award.

We miss "My Nurse Dawn" 😔

21/03/2026

Today is World Down Syndrome Day 💙💛

And today, we celebrate Reggie, and the wider Down's Syndrome community.

Reggie’s smile has always had a way of lighting up a room, the kind that makes everything feel brighter. Every step he’s taken, every word he’s learned, every challenge he’s faced… he’s met it with determination, courage, and a spirit that inspires everyone around him.

He’s funny, playful, a little stubborn, and full of love, and he reminds us daily that progress isn’t measured by speed, but by heart.

Today is also about celebrating the wider Down Syndrome community, individuals, families, and supporters who show strength, resilience, and joy in ways that truly change the world. Together, they are breaking barriers, challenging perceptions, and proving that difference is something to be celebrated, not hidden.

Reggie, you are part of something truly special, and we couldn’t be prouder. 💛

07/03/2026

What a rollercoaster of a day for our brave Reggie! 🎢 After being first on the list for his procedure, he handled everything like a pro, even drifting off with a quick kiss from Dad.
The recovery was a bit of a marathon with some stubborn bleeding from his incision that kept us on our toes (and led to an extra hospital visit last night), but our little fighter never lost his spark. We are so happy to report that the bleeding has stopped, and he’s back home doing what he does best: dancing, singing, and playing like nothing even happened! 🎶🕺 Thank you for all the love and surgery vibes!

05/03/2026

Reggie is headed back into the hospital tomorrow to have his new central line placed. Since we removed the problematic one a few weeks ago, the infection has cleared beautifully, and he even managed a full week or so back at school!

He’s been "roll-calling" his favorites constantly, he can’t wait to see "his" Alice, "his" Mark, "his" Lorna, and "his" friend Rachel. We’re crossing our fingers that at least one of his beloved oncology nurses is on shift tomorrow to welcome him back! Aside from being a little "spirited" at school today (usually a sign he’s feeling a bit under the weather), he is in top form and ready to tackle this next step.

13/02/2026

Hi everyone, it's been a while. We'd be lying if we said we hadn't been nervous today being friday the 13th and all.

To tell the truth, the last few weeks have been testing our nerves. Last summer Reggie had two back to back blood infections originating in his double portacath central line. We have since had issues with the scarring fusing to the bottom port. Since clearing these infections everything has been ok. Now for some reason over the last couple of weeks this scarring seems to have separated from the port and an infection has developed around the port which antibiotics have struggled to clear.

Things have progressed quickly over the last few days after Reggie went into clinic midweek for an infusion which had to be done by cannula which resulted in his arm swelling substantially.

Today Reggie had to go under the knife and have his portacath removed as it is no longer safe to use without risking further infection or sepsis. The plan had originally been to remove this at a later date and replace it with a single port for the remainder of his treatment, but due to the infection, Reggie will have to go back under the knife later this month for his single port placing, after we know he is clear of this infection.

Once he came around he was fairly upset and spent quite a while feeling very irritable, but slowly started to feel more himself after a few hours. He's back home now and recovering after what as been a very tiring couple of weeks.

Address

Wakefield

Website

https://gofund.me/da42bcbf

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