Chasing Connor's Cure

Chasing Connor's Cure On the 4th February 2016, our beautiful son Connor was diagnosed with Duchenne Muscular Dystrophy. DMD is fatal unless we support research.

In February 2016, our beautiful son Connor was diagnosed with a form of Muscular Dystrophy called Duchenne. Duchenne effects 1 in 3500 boys in the UK. It attacks the muscles and in most cases mobility is lost by the age of 10. It will eventually attack the lungs and heart which will lead to prematurely taking life from the late 20’s. Unfortunately, it has no cure. However, with your help good news

is on the horizon. Research is underway for both enhanced therapy and a cure, but it’s vital for Connor these projects receive funding to continue and even accelerate their development. Over the coming weeks we hope to set up a charity to fund research and enhanced therapy for DMD. This page has been setup to keep you informed on Connor, what is happening in the DMD community, fundraising events we have planned and updates on research. Please like to keep informed.

03/09/2026

What do you believe?

A team of incredible people are riding in memory of Ali Robertson, to support his son Felix on our mission to

This video captures the spirit and determination as they continue their ride. It quite simply left us speechless - amazing words and for an amazing feat.

Please like, share and donate - we would be very grateful.

In 2014 our close friend Ali Robertson’s son, Felix was diagnosed with Duchenne Muscular Dystrophy. a severe, muscle wasting disease. It’s currently incurable and the prognosis is grim. However, there is real hope, mainly because of the incredible research and drug development work being funded by Duchenne UK.

Over the last 10 years Ali has been a force of nature in his support for the amazing Duchenne UK charity and has put his energy and influence to work with incredible success in raising awareness and funds. Ali inspired countless friends to join his mission, determined to make a difference for his son and for other boys and their families affected by this devastating disease. He has been instrumental in recruiting friends and participants who have cycled both the charity’s signature Duchenne Dash 24 hour ride to Paris, and since 2016 it’s longer sister event the DashMAX covering the length of the UK and France over the Alps. Ali’s charisma, passion and leadership has helped raise over £1 million for Duchenne UK while spreading awareness and building a community of dedicated ambassadors for the cause.

Despite being a larger-than-life sportsman with a huge physical presence, Ali faced his final challenge with quiet courage. Tragically, he passed away in September 2025, after a short battle with cancer, leaving behind his 12-year-old daughter, Lumi, and his disabled 14-year-old son.

In September 2026, we will honour Ali's incredible legacy by taking on one of our toughest cycling challenges yet. A team of riders will cross the Pyrenees from the Atlantic to the Mediterranean, covering over 750 kilometres in 7 days and climbing more than 16,500 metres. Every pedal stroke will be in memory of Ali and in support of Felix.

This time, we are raising funds for the Felix Robertson Disabled Persons Trust, newly established to help provide Felix with the specialist therapies, assistive equipment, daily care, and ongoing medical support he needs now and in the years ahead.
If you are able to donate, no matter how large or small, you will be making a real difference to Felix's quality of life and helping continue the legacy of our friend Ali Robertson.

https://gofund.me/7f328ed05

Thank you for your kindness, generosity, and support. Together, we can honour Ali's memory by ensuring Felix has the care, opportunities, and support he deserves.

Team Connor have done it. 👏🏻👏🏻👏🏻Over the last 24 hours, our incredible riders have completed the Duchenne Dash from Lond...
09/05/2026

Team Connor have done it. 👏🏻👏🏻👏🏻

Over the last 24 hours, our incredible riders have completed the Duchenne Dash from London to Paris — a gruelling, relentless, brutal and emotional challenge that has tested every single one of them physically and mentally.🇬🇧🚴🏻🇫🇷

Through the heat, exhaustion, pain and sheer intensity of the ride, they kept going.

Some are broken.
Some are emotional.
Some are a little wobbly.

But every single one of them should feel immensely proud, because they have achieved something truly extraordinary.🥰🥰🥰

Not only have they completed one of the toughest endurance challenges imaginable, but together they have raised an absolutely incredible amount of money for Chasing Connor’s Cure and the fight against Duchenne muscular dystrophy.

A very special thank you must once again go to Barry and his team. Quite simply, this would not have been achievable without your support, commitment and belief in what we are doing. We are endlessly grateful.

Right now, we are still trying to process the scale of what has been achieved over the last 24 hours. More updates, photos and reflections will follow once we have all come back down to earth a little and found our feet again.

For now, thank you — from the bottom of our hearts — to every rider, supporter, sponsor, donor and person who has stood behind Team Connor.

You have all helped make something very special happen.

💙

Tomorrow, we ride for something much bigger than ourselves. The Duchenne Dash. Another year for Team Connor to support t...
07/05/2026

Tomorrow, we ride for something much bigger than ourselves. The Duchenne Dash. Another year for Team Connor to support this awesome event.

This year’s Dash is especially meaningful — this is the first in a series of posts recognising what makes it so special.

This year Team Connor is 28 strong — a group brought together by hope, determination, and one very special man, Barry Kennedy.

Connor’s Dad first met Barry over six years ago at a charity golf day. Within minutes, it was clear he genuinely cared — not just about Connor, but about the mission to end Duchenne. And since that day, he’s never stood still.

In 2021, when the Duchenne Dash to Paris couldn’t happen, Barry didn’t accept it. He created something of his own — rallying his incredible family, colleagues, and network to deliver an alternative that raised an unbelievable £215,000. It was nothing short of extraordinary.

Most would take a step back after that. Barry? He’s come back stronger — bringing with him another powerful team, united by purpose.

So tomorrow, we set off to Paris. For some, it’s their 10th ride. For all of us, it’s deeply personal.

Every mile we ride is powered by the people around us — those who’ve donated, sponsored our shirts, organised events, and shared our story. Every single act of support matters more than you know. No donation is ever too small.

The Duchenne Dash isn’t just a ride. It’s hope. It’s belief. It’s the drive to one day find a cure for this devastating disease.

Thank you to everyone who has supported us — and especially to Barry, for bringing this incredible team together and inspiring us all.

If you are reading his and would like to support us - below is the link: https://www.justgiving.com/page/tc-chasingconnors-2026

With less than 4 weeks to go until the Duchenne Dash 2026, training rides are on! On 8-9th May we ride London to Paris i...
12/04/2026

With less than 4 weeks to go until the Duchenne Dash 2026, training rides are on!
On 8-9th May we ride London to Paris in 24 hours to help end Duchenne.
As always, your support during this event is invaluable to us, whether you are able to donate or just sending us messages of support and interacting with social media posts - everything helps to raise awareness!
Together we can end Duchenne

https://www.justgiving.com/page/martin-tracey-dash2026

Address

Tonbridge

Alerts

Be the first to know and let us send you an email when Chasing Connor's Cure posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to Chasing Connor's Cure:

Shortcuts

Share