Sabrina's World

Sabrina's World I am living my happy life and raising awareness of my disease Alg1-CDG. Follow me 4 fun and wonder.❤️ Sabrina is 7 years old and was born in 2014.

Her mantra is READY STEADY GO......! We believe that Sabrina feels like a caged bird who just wants to spread her wings and fly, explore and experience everything life has to offer. And why shouldn’t she. Heartbreakingly this is not always possible. Her diagnosis of ALG1 CDG – a very rare metabolic disease – causes many health issues but mainly affects her brain. She has Epilepsy, Microcephaly, Hy

potonia or low muscle tone to name a few. What does this mean... she can walk but not jump, she can understand but not fully communicate, she can strive but not achieve and she takes risks but doesn’t see the danger. Through sheer grit and determination, Sabrina started to walk when she was 4 – one week before our wedding. It was a dream come true to see our little flower girl take a few heavily supported steps down the aisle, and it was extremely emotional for us all. Since then she has continued to practice walking, driven by the desire to run with her brother. If she falls – which she does all the time – she gets straight back up and will try again and again and again. She is a joy and an inspiration to everyone she meets. What she needs is therapy to improve her strength and balance, so that one day she will jump on a trampoline and touch the sky. Therapy to help her speech and to draw out the words that seem to be locked inside. Equipment to help her access and experience everything life has to offer. And an adapted home environment which allows independence and safety, so we her family are free to play, laugh and love. Our hope is that through donations via Just4Children, Sabrina’s and our lives will be easier and fuller. And that our darling daughter continues to smash down barriers, push to the limit and achieve her full potential, living the life she deserves. After all, this is Sabrina’s World too.

15/08/2026
It's too hot to sleep...Cooling off in Mum's treatment room. 💫🤍😁
09/07/2026

It's too hot to sleep...
Cooling off in Mum's treatment room. 💫🤍😁

04/07/2026

Sports day at school & Warhorse Training 👊🏻

Because of you... ❤️Because of the fundraising and everyone who has donated to Sabrina's World - A New Chapter, I get to...
04/07/2026

Because of you... ❤️

Because of the fundraising and everyone who has donated to Sabrina's World - A New Chapter, I get to do exciting new things like this!

I've started training with Anton at Warhorse Training, and I had so much fun at my first session.

My body works much harder than most people's because I have a rare genetic condition. My muscles get tired quickly, my joints can be wobbly, and I need lots of help to get stronger.

Anton is helping me with: 💪 Gross motor skills 💪 Functional fitness 💪 Strength around my hypermobile joints 💪 Balance and coordination 💪 Building my confidence 💪 Learning how my body moves and so much more.

Every session is designed just for me, so I can strengthen my hips, joints, ligaments and muscles while having lots of fun.

And he has a therapy dog called Rocky who is funny.

I don't always find movement easy, but every little bit of strength I build helps me in everyday life – whether that's walking, climbing, balancing or keeping up with everyone else.

Thank you to every single person who has donated, fundraised, shared my story or cheered me on.

Because of you, I get opportunities like this, and I can't wait to see what I can achieve.

Love,
Sabrina x

https://just4children.org/sabrinas-world-a-new-chapter/

Have a happy day 😁
30/06/2026

Have a happy day 😁

Today's the day! 🪂💜My lovely family, Barbara and Giuseppe are jumping out of a plane today!Barbara is jumping for me, an...
27/06/2026

Today's the day! 🪂💜

My lovely family, Barbara and Giuseppe are jumping out of a plane today!

Barbara is jumping for me, and Giuseppe is jumping to help his friend Pete and Croydon Hydro Pool.

I think they are both so, so brave. I hope they have lots of fun and a big smile all the way down!

Please can you wish them good luck?
If you would like to help too, my mum will put their fundraising links in the comments.

Good luck, Barbara and Giuseppe!
I love you and thank you for helping lots of people. ❤️🪂💜

26/06/2026

pareidolia...what do you see?

My art work....😁Pareidolia 🌊🫟🖌️
26/06/2026

My art work....😁

Pareidolia 🌊🫟🖌️

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Swindon

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