ICP Support

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ICP Support Our vision is that every ICP baby is born safely Intrahepatic cholestasis of pregnancy (ICP) is the most common liver condition specific to pregnancy.

It affects around 5,500 women a year in the UK (that's about 0.7% of all pregnancies), while in parts of South America the incidence has settled at around 4-5%: it's a geographically diverse condition! Although ICP is not life-threatening to the mother-to-be, there are concerns for the baby as it is associated with fetal distress, spontaneous premature labour and, in very severe cases, stillbirth. We know therefore that it can be a very worrying and distressing condition to have so as a charity we provide support and information to people affected by ICP, raise awareness of the condition, and promote and fund research into it. We have active Facebook groups (for during and after an ICP pregnancy) that you can go to for support or to ask questions and we can provide one to one support via email. Our replies to you will be based on research and personal experience. You can find out more about our support here: https://bit.ly/OurSupportForYou

We believe it is important that you have the most up to date scientific information about the condition so what is written on our website about ICP is verified by researchers, scientists and doctors. Jenny Chambers, Founder of ICP Support, is also part of the Maternal and Fetal Medicine Group - a London-based research group investigating ICP. Jenny remains in contact with the charity as our research advisor and can be contacted if you are interested in taking part in research ([email protected]). Please share this page with friends, family and health professionals and help us achieve our vision that every ICP baby will be born safely. NB: Any photos we post on here will always be with the permission of the people involved and, if required, with the permission of the organisation (such as a hospital or company) too.

Today marks the first day of Baby Loss Awareness Week (Friday 9th – Thursday 15th October)We’re raising awareness to tac...
09/10/2026

Today marks the first day of Baby Loss Awareness Week (Friday 9th – Thursday 15th October)

We’re raising awareness to tackle the stigma still surrounding pregnancy and baby loss.

Currently, every day in the UK, 13 babies die shortly before, during or soon after birth. At least 1 in 6 of pregnancies end in miscarriage.

So we’re speaking out about this to make sure no one is going through this alone.

We are here to support anyone who has experienced the loss of a baby due to ICP.
If you need support around this, you can join our private Facebook group (Search 'ICP Support - Precious Memories' in Facebook groups) or see our website for details of the support we can offer.

ICP Support is a proud member of the Baby Loss Awareness Alliance - a group of organisations committed to raising awareness of pregnancy and baby loss, providing support to anyone affected by pregnancy loss and the death of a baby, working with health professionals and services to improve bereavement care, and reducing preventable deaths.

We're delighted to share Group B Strep Support (GBSS)'s news that the BEATRIX study is recruiting in 10 UK hospitals and...
05/10/2026

We're delighted to share Group B Strep Support (GBSS)'s news that the BEATRIX study is recruiting in 10 UK hospitals and is evaluating a maternal vaccine to help protect babies from serious GBS infection.

👉 Find out more about the study and participating hospitals in the post below

💙 A major new group B Strep (GBS) vaccine trial is recruiting pregnant women and people in the UK, offering hope for the future of GBS prevention.

The BEATRIX study is taking place at 10 hospitals across the UK and is evaluating a maternal vaccine designed to help protect babies from serious GBS infection.

Around 50 babies in the UK die each year as a result of group B Strep infection, while 70 others experience long-term complications. Researchers hope a successful vaccine could help prevent thousands of infant deaths worldwide.

If you're between 24 and 36 weeks pregnant, you may be eligible to take part.

👉 Find out more about the study and participating hospitals: https://gbss.org.uk/latest-news/pregnant-women-in-uk-invited-to-join-major-group-b-strep-vaccine-trial/

NIHR - Health and Care Research

04/10/2026

💜 LITTLE ITCHES LOTTERY 💜

Join our Little Itches Lottery and help grow our winner's jackpot!

https://bit.ly/Little-Itches-Lottery

Last month's winner swooped £98.75 - this could be you! 🤩

It's also a great way to support our small charity doing big work 🙏

Thanks for your support!
Lisa, Support & Liaison Officer

01/10/2026

📢 LITTLE ITCHES LOTTERY - WINNER! 📢

🎊🎊 Number 29 ... you are our winner!! 🎊🎊

Our lucky winner has supported us by playing our lottery since it first started back in 2019! 🤩

The prize pot this month is £98.75 - enter now to be in with a chance of winning next month!

https://bit.ly/Little-Itches-Lottery

Thanks for your support!
Lisa, Support & Liaison Officer

27/09/2026

** Support our Little Itches Lottery! **

Have you signed up to play our monthly Little Itches Lottery yet? Don’t forget - the more of you in, the more you can win! Tickets are £5 each – you can have as many as you’d like and can sign up monthly, or buy one off tickets. Sign up or find out more here:

🎫 https://bit.ly/PlayLittleItchesLottery 🎫

🌏Players can join our lottery no matter where they are in the world as we accept all currencies! (You must ensure that gambling is legal in your country/state - see T&Cs via the link).

We are incredibly grateful to our Little Itches Lottery players – your regular donations are vital to ensure we can continue supporting families affected by ICP, like the Little Itches you’ll see featured in our posts.

If you're unable to sign up and play out Little Itches Lottery, there are other ways you can support it! Help us by:

💜 Sharing our posts on your social media channels - let your friends and family know why you and how ICP Support has supported you. Sharing our posts means we can reach many more people and many more potential lottery players! 🤞

💜 Sharing photos of your Little Itches and we’ll include them in our posts! The photos in this series have kindly been shared by families we’ve supported. If you’d like your Little Itches to feature, please send your photos to aligilroy .org

🍀 Best of luck! 🍀

Ali, Engagement & Development Officer

16/09/2026

** Support our Little Itches Lottery! **

Have you signed up to play our monthly Little Itches Lottery yet? Don’t forget - the more of you in, the more you can win! Tickets are £5 each – you can have as many as you’d like and can sign up monthly, or buy one off tickets. Sign up or find out more here:

🎫 https://bit.ly/PlayLittleItchesLottery 🎫

🌏Players can join our lottery no matter where they are in the world as we accept all currencies! (You must ensure that gambling is legal in your country/state - see T&Cs via the link).

We are incredibly grateful to our Little Itches Lottery players – your regular donations are vital to ensure we can continue supporting families affected by ICP, like the Little Itches you’ll see featured in our posts.

If you're unable to sign up and play out Little Itches Lottery, there are other ways you can support it! Help us by:

💜 Sharing our posts on your social media channels - let your friends and family know why you and how ICP Support has supported you. Sharing our posts means we can reach many more people and many more potential lottery players! 🤞


💜 Sharing photos of your Little Itches and we’ll include them in our posts! The photos in this series have kindly been shared by families we’ve supported. If you’d like your Little Itches to feature, please send your photos to aligilroy .org

🍀 Best of luck! 🍀

Ali, Engagement & Development Officer

Thank you to everyone raising donations for ICP Support with  !Not joined yet? Sign up to easyfundraising and when you s...
14/09/2026

Thank you to everyone raising donations for ICP Support with !

Not joined yet? Sign up to easyfundraising and when you shop online with your favourite brands, they’ll donate to us. It's free and your shopping won't cost you any extra - the brands you shop with will donate, not you!

Sign up today: https://bit.ly/4xXUhi6

11/09/2026

💜 LITTLE ITCHES LOTTERY 💜

We always ask our supporters to share with us why they play our Little Itches Lottery 🥰

If we have supported you or a family member in any way, playing our monthly lottery is a great way of helping our tiny charity to continue it's important work.

Sign up now and be entered into our monthly draw -

https://bit.ly/Little-Itches-Lottery

Thanks for your support!
Lisa, Support & Liaison Officer

04/09/2026

📢 LITTLE ITCHES LOTTERY ANNOUNCEMENT 📢

Great news, our lucky cash-prize winner this month is ... number 40! 🎊

Congratulations, our jackpot of £93.75 is on it's way to you! 🥳

Sign up to our Little Itches Lottery and this could be YOU next month!

https://bit.ly/Little-Itches-Lottery

Thanks for your support!
Lisa, Support & Liaison Officer

02/09/2026

Support our Little Itches Lottery!

Have you signed up to play our monthly Little Itches Lottery yet? Don’t forget - the more of you in, the more you can win! Tickets are £5 each – you can have as many as you’d like and can sign up monthly, or buy one off tickets. Sign up or find out more here:

🎫 https://bit.ly/PlayLittleItchesLottery 🎫

🌏Players can join our lottery no matter where they are in the world as we accept all currencies! (You must ensure that gambling is legal in your country/state - see T&Cs via the link).

We are incredibly grateful to our Little Itches Lottery players – your regular donations are vital to ensure we can continue supporting families affected by ICP, like the Little Itches you’ll see featured in our posts.

If you're unable to sign up and play out Little Itches Lottery, there are other ways you can support it! Help us by:

💜 Sharing our posts on your social media channels - let your friends and family know why you and how ICP Support has supported you. Sharing our posts means we can reach many more people and many more potential lottery players! 🤞

💜 Sharing photos of your Little Itches and we’ll include them in our posts! The photos in this series have kindly been shared by families we’ve supported – like Lucy’s Little Itch Agatha was. If you’d like your Little Itches to feature, please send your photos to aligilroy .org

🍀 Best of luck! 🍀

Ali, Engagement & Development Officer

Address

Lytchett House, 13 Freeland Park, Wareham Road
Sutton Coldfield
BH166FA

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