28/08/2026
Everyone meet brave and courageous Charlie. Since birth Charlie, who has hypoplastic left heart syndrome, has been in and out of hospitals in London and Scotland. Having had what should have been his last open heart surgery age 3, Charlie then started developing a series of rare complications relating to his circulation.
After a diagnosis of plastic bronchitis and hemoptysis (bleeding lungs and airway), Charlie had an extra open heart surgery in 2025 which hasn't helped to resolve the complications. He's had several trips back and forth to Glasgow childrens hospital on air ambulance helicopters and planes, but most recently spent 10 weeks on the cardiac ward in Glasgow with the medical team trying to find any treatments to help. Charlie is now on the palliative care pathway, and waiting on a decision from the Freemans hospital in Newcastle as to whether he'll be assessed for heart transplant or if he is deemed too high risk.
His mum Sara O'Brien quotes below.
Charlie was absolutely over the moon to get gifts sent to him from Laura at the Ava Foundation. The smile on his face trying on the celtic football kits is just the absolute best thing. And the excitement over planning the next shopping trip so he can head to Smyths with his gift card to buy more treats.
Thank you so much Laura, itβs an amazing thing youβre doing for these kids, and it certainly brings so much joy after being stuck in hospital for so long.
These smiles are the ones that make this all worthwhile. The pain this family have to endure waiting for answers can only be described as a living nightmare but if we can make things a bit easier then we are doing what we set out to do.
Thank you once again to those that help us make this possible. Your kindness will never be forgotten ###