11/05/2026
This is our reality and that of some many families we help. These kids may look well in themselves but things are so unpredictable. The worry and anguish is overwhelming at times. We want to help ease that in any way we can x
Most people have never heard of the BT Shunt.
The Glenn.
The Fontan.
But for HRHS families these three words are everything.
Three open heart surgeries.
Three times handing their baby to a surgeon.
Three chances to keep their child alive.
The BT Shunt comes first.
Days old. Sometimes hours.
A small tube placed to create a pathway for blood to reach the lungs.
Buying time for a heart that needs it.
The surgery that gets them stable enough to fight another day.
The Glenn comes next.
Around three to six months old.
The BT Shunt removed.
Blood from the upper body rerouted directly to the lungs.
The heart’s workload reduced so it can keep going.
The Fontan is the final stage.
Around two to four years old.
The remaining blood rerouted to the lungs completely.
Without passing through the heart at all.
Three surgeries.
Not to fix the heart.
To work around it.
And it comes with a cost that lasts a lifetime.
Heart failure.
Liver disease.
Fluid buildup.
Arrhythmias.
Exercise intolerance.
These children are not fixed.
They are rerouted.
Brave.
Defying everything medicine said was possible.
And they carry it every single day.
They deserve to be understood.
Their families deserve to be seen.
💙 Drop a 💙 if this is your child’s road.
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