Caring Matters Now

Caring Matters Now The UK charity supporting those affected by Congenital Melanocytic Naevus (CMN) The condition can also grow internally, which in the worst cases can be fatal.

Caring Matters Now is the UK charity supporting those affected by Congenital Melanocytic Naevi (CMN) – a genetic condition, consisting of a dark brown hairy birthmark covering up to 80% of the body. Our vision:
We have a vision of a world where no one suffers from CMN. Caring Matters Now focuses its work in three areas:
We support those affected by CMN
We fund pioneering research to find a cure fo

r CMN
We raise national and international awareness of CMN

Registered Charity in England and Wales (1192670)

📣 Volunteer Opportunity: Data Entry Support NeededWe’re currently looking for a dedicated Data Entry Volunteer to help s...
05/06/2026

📣 Volunteer Opportunity: Data Entry Support Needed
We’re currently looking for a dedicated Data Entry Volunteer to help support our team with essential admin tasks. This is a great opportunity to make a meaningful contribution while gaining valuable experience in a supportive environment.

If you’re organised, detail-oriented, and keen to make a difference, we’d love to hear from you!

✅ Help with data entry and administrative tasks
✅ Support a passionate and purpose-driven team
✅ Flexible volunteering opportunity

💡 Interested?
Register your interest by emailing [email protected] and we’ll send you a full Job Description with more details.

Join us and help make a difference 💙

💙 Volunteer Week 2026 💙Behind every step we take at Caring Matters Now is a group of dedicated individuals who help guid...
04/06/2026

💙 Volunteer Week 2026 💙
Behind every step we take at Caring Matters Now is a group of dedicated individuals who help guide the way; our amazing Trustees.

Today, we’re proud to recognise and celebrate the time, care, and expertise you give so generously. Your support enables us to stand beside families affected by CMN, amplify awareness worldwide, and keep crucial research moving forward.

Your leadership may often be behind the scenes, but its impact is felt everywhere.🌟
Thank you for being such an integral part of our journey. We appreciate you more than words can say! 💙

🌟 Volunteer Spotlight: Sophie 🌟A huge shoutout this Volunteers’ Week to Sophie, our amazing Teens Contact and Young Amba...
03/06/2026

🌟 Volunteer Spotlight: Sophie 🌟
A huge shoutout this Volunteers’ Week to Sophie, our amazing Teens Contact and Young Ambassador Programme Volunteer 💙

Sophie recently went above and beyond her role by taking part in the Glasgow Kiltwalk 👏 Not only did she complete this incredible challenge, but she also raised funds for Caring Matters Now, which is just fantastic!

Her dedication, energy, and willingness to go the extra mile truly embody the spirit of volunteering. We are so proud to have Sophie as part of our community 🙌

Thank you, Sophie, for everything you do 💙

We’re delighted to share that this year’s edition of our annual INSPIRE magazine is now in the post and should be arrivi...
01/06/2026

We’re delighted to share that this year’s edition of our annual INSPIRE magazine is now in the post and should be arriving with you soon.

This year’s edition celebrates a remarkable year for Caring Matters Now; one of growth, connection and impact. Together, our global membership has grown to more than 900 families and individuals, and we’ve continued to expand the support, resources and events available to our community.

We would also like to extend our sincere thanks to DL Accounts, one of our valued corporate partners, whose generous sponsorship has helped make this year’s INSPIRE magazine possible.

If you have not opted in to receive postal communications from us, or if you are keen to read it straight away, a digital PDF version is also available to view on our website here:
https://www.caringmattersnow.co.uk/about-us/publications/

We hope you enjoy reading this year’s INSPIRE magazine and celebrating all that has been achieved across our community over the past year.

This Volunteers’ Week, we’re celebrating the incredible people who work tirelessly behind the scenes to support our char...
01/06/2026

This Volunteers’ Week, we’re celebrating the incredible people who work tirelessly behind the scenes to support our charity at every level 💙

From our Peer Support Contacts to our Key Volunteers, their impact reaches across everything we do; supporting members, planning events, creating resources, managing social media, analysing data, editing personal stories, coordinating mail-outs, handling merchandise, graphic design, medical advocacy, leading our young ambassador programme, attending conferences, and championing family engagement. (To name just a few!)

This year, we’re proud to have grown our volunteer team to 48 amazing roles 🙌
Every single contribution makes a real difference.

Thank you to all of our volunteers for your passion, dedication, and commitment. We couldn’t do it without you 💙

Could you be part of something life-changing? 💙By becoming a monthly donor for Caring Matters Now, you can help us conti...
30/05/2026

Could you be part of something life-changing? 💙
By becoming a monthly donor for Caring Matters Now, you can help us continue to make a real difference for those affected by CMN, every single month.

Your support helps us achieve our three core aims:

✨ SUPPORT
£10 a month could help us be there for families from the very moment of diagnosis, because no family should face CMN alone.

📢 AWARENESS
£20 a month helps us continue educating medical professionals, because understanding truly changes lives.

🔬 RESEARCH
£40 a month can fund a full genetic investigation for a patient with melanoma, because every breakthrough has to start somewhere.

No matter the amount, your regular gift creates lasting impact and hope for the future 💙

👉 Join our community of monthly supporters today and help us change lives, one month at a time: https://www.caringmattersnow.co.uk/give-monthly/

✨ What a year of incredible fundraising! ✨Over the 12 months, our amazing community has taken on some truly unforgettabl...
27/05/2026

✨ What a year of incredible fundraising! ✨
Over the 12 months, our amazing community has taken on some truly unforgettable challenges to support Caring Matters Now 💙 Here are just a few of the highlights:

🇮🇹 Karl, Jake & Calvin pushed themselves to the limit at the Rome Marathon, pounding the historic streets of the Eternal City and raising £1,469 🏃‍♂️
🏴 Sophie, our Teens Contact, took on the Glasgow Kiltwalk, stepping out in style to raise awareness and an amazing £378 👏
🌸 Terri powered through the Cheshire Spring Half Marathon, smashing her goal and raising over £470 💥
🏙️ Hannah & Rhiannon took on the electric atmosphere of The Big Half in London, working as a team to raise an incredible £2,369 🙌
🌍 DL Accounts went above and beyond with a year-long fundraising journey, taking on multiple half marathons before finishing in spectacular style at the New York Marathon, raising over £10,000 🎯
🎶 Some of our wonderful families got creative, even busking in their local communities, spreading awareness and support in the most inspiring ways 🎤
🏃‍♂️ David has been unstoppable, taking on the Whitehead Road Race and Carrickfergus 10K, with even bigger challenges ahead, already raising £776 and counting 🔥
☕ Across the UK, supporters brought people together with coffee & cake events, raising over £2,200 while sparking powerful conversations about CMN 🍰
🧗 10 of our incredible teens faced their fears and scaled the iconic O2 Arena, raising £2,665 while building confidence and teamwork 💪
⛰️ And in our boldest challenge yet, Phil & Nick conquered Pico de Orizaba, the highest peak in Mexico, battling altitude and extreme conditions to raise £5,626 as part of our 7 challenges in 7 continents campaign 🌋

💥 Together, you helped us raise an amazing £145,486 this year!

We are so grateful for every single person who has taken on a challenge, hosted an event, or supported us along the way 💙

🚀 Now we’re aiming even higher… our target this financial year is £180,000. Are you ready to take on a challenge and be part of something extraordinary? Find out more and get involved here: https://www.caringmattersnow.co.uk/fundraise/get-involved/

Our next online workshop is almost here: School and CMNJoin us on Sunday 14th June 2026 at 8pm, we will be exploring our...
26/05/2026

Our next online workshop is almost here: School and CMN

Join us on Sunday 14th June 2026 at 8pm, we will be exploring our Age Specific Support, Schools Guide and Be Seen Quality Mark as useful tools to engage with your community and educate those around you about CMN in both Primary and Secondary School! We will also be hearing from lived experiences and finding out more about how to engage with charity life.

Don’t miss it, we can’t wait to see you there. Sign up today: https://www.caringmattersnow.co.uk/support/online-communities/online-workshops/

By taking part in the 'Be Seen' Quality Mark, schools can commit to creating a culture where every child feels seen, val...
24/05/2026

By taking part in the 'Be Seen' Quality Mark, schools can commit to creating a culture where every child feels seen, valued, and accepted.

This is a unique programme for schools that are ready to celebrate visible differences and champion true inclusion. 💙

If you are involved in a school (as a member of staff, a governor, or a member of the Parents' Association), or if you think your child's school would be interested, click here to find out more and join us in being part of making a difference: https://www.beseenaward.co.uk/

May is Birthmark Awareness Month 💜“By raising visibility, we raise understanding. By raising understanding, we raise sup...
20/05/2026

May is Birthmark Awareness Month 💜
“By raising visibility, we raise understanding. By raising understanding, we raise support. By raising support, we create a brighter future.”

At our core, this is what we stand for every single day of the year. Raising awareness and championing those with birthmarks isn’t something we do just for a month, it’s who we are.

But May gives all of us a moment to amplify that message even louder, to shine an extra light on the importance of visibility, understanding, and support.

Every mark is part of someone’s story and everyone deserves to be celebrated. Together, we can continue to build a world where differences are embraced, not hidden.

Share your own story, and let’s keep encouraging each other to love the skin we’re in, this month and always.

Love, Jodi (Founder and CEO) x

Address

PO Box 184
St Ives
PE279DU

Telephone

+447786458883

Website

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