Haemochromatosis UK

Haemochromatosis UK Haemochromatosis UK is a patient organisation and charity. Visits to the Haemochromatosis UK Office by Appointment Only.

We aim to support people affected by genetic haemochromatosis, educate, raise awareness and encourage research. The Haemochromatosis UK is patient organisation and charity. We aim to support people affected, educate and raise awareness, and encourage research.

* Disclaimer *

We facilitate discussion in this forum in good faith but without any warranty of any kind, express or implied, as to the

accuracy or validity of the information provided by any contributor, whether an officer of the charity or not. HUK shall not be liable for any loss, damage, or other consequences arising from the use of the forum or attributed to any inaccuracies or omissions therein. Specifically, information provided about haemochromatosis and associated physiology or treatment does not constitute individual medical advice and must not be regarded as such. Users must consult their own doctor or consultant. Do not rely on information on the site to manage your or your family's health. The charity accepts no liability and will not entertain any form of claim in this regard.

A new diagnosis of Genetic Haemochromatosis can be overwhelming- especially if you don't know anyone else with the condi...
03/09/2026

A new diagnosis of Genetic Haemochromatosis can be overwhelming- especially if you don't know anyone else with the condition. But you don't have to face this journey alone. Our Iron Overload Buddies are here for you ❤️

Our Buddies are fully DBS checked volunteers who are here to offer you 1-2-1 peer support, by phone, at a time that suits you.

Request your Iron Overload Buddy here today: http://www.haemochromatosis.org.uk/News/iron-overload-buddies-we-are-here-for-you

Be part of the conversation that could help save lives.Join Haemochromatosis UK at Stormont for the presentation of our ...
31/08/2026

Be part of the conversation that could help save lives.

Join Haemochromatosis UK at Stormont for the presentation of our landmark report into haemochromatosis prevalence in Northern Ireland, revealing insights from five years of community screening across Derry/Londonderry, Belfast, Carrickfergus, Newry, Irvinestown, Portadown, Magherafelt and Ballymena.

Hosted by John O'Dowd MLA, we'll explore the opportunity to prevent ill-health, improve early diagnosis, and encourage future generations of blood donors.

You'll also have the chance to view Overloaded, the powerful haemochromatosis awareness photography exhibition by Cathal McNaughton, on display in the Long Gallery 🖼️

🎟️ Places are limited - booking is essential: http://haemochromatosisuk2.beaconforms.com/form/cfdf528c

A gentle reminder that our office and helpline will be closed on Monday ❤️
30/08/2026

A gentle reminder that our office and helpline will be closed on Monday ❤️

After weeks of scorching sunshine, the rain has finally arrived! 🌧️ It’s a good reminder that, just like our gardens, we...
29/08/2026

After weeks of scorching sunshine, the rain has finally arrived! 🌧️ It’s a good reminder that, just like our gardens, we need watering too.

The Summer months can be full-on with busy diaries, holidays, family plans, days out, BBQs and everything in between. With the Bank Holiday weekend here, make sure you leave a little time to slow down and take care of yourself too.

So, what are you doing to water YOUR garden this weekend? 🌱

A quiet cuppa? A walk? An afternoon in the garden? Switching off your phone? Spending time with people who make you feel good?

Whatever it is, make some time for it. You deserve a little nourishment too ❤️

Introducing Dr Shane McKee!Dr McKee is a Consultant in Genetic and Genomic Medicine with Northern Ireland’s Regional Gen...
28/08/2026

Introducing Dr Shane McKee!

Dr McKee is a Consultant in Genetic and Genomic Medicine with Northern Ireland’s Regional Genetics Service, based at Belfast City Hospital.

His work sits at the intersection of genomics, rare disease, clinical informatics and digital health. He has played a key role in major genomics programmes and the development of Northern Ireland’s region-wide electronic health record - bringing together clinical expertise, technology and innovation.

Dr McKee is one of many leading experts who will be who will be sharing their knowledge and insights at our We Are Family Event in October!

We are thrilled that he will be joining us 👏

Book your tickets today! http://haemochromatosisuk2.beaconforms.com/form/d581ef41

🚨Local Iron Brew alert! 🚨In September, join long-time charity member and We Are Overloaded participant, Sarah and Neil I...
27/08/2026

🚨Local Iron Brew alert! 🚨
In September, join long-time charity member and We Are Overloaded participant, Sarah and Neil Irwin from Team Iron Overload at The Community Hub, Draperstown, for a relaxed opportunity to connect, share experiences, and meet others who understand what it is like to live with genetic haemochromatosis❤️

Book your space here: http://www.haemochromatosis.org.uk/Event/member-led-iron-brew-in-draperstown

Our office and helpline will be closed on Monday 31st August for the Bank Holiday weekend.Any shop orders, including Gen...
25/08/2026

Our office and helpline will be closed on Monday 31st August for the Bank Holiday weekend.

Any shop orders, including Genetic Test Kit orders made after midday on Friday 28th August will be dispatched when we re-open on Tuesday 1st September.

Thank you for your patience ❤️

For many people living with genetic haemochromatosis, regular blood tests and venesections are an important part of mana...
24/08/2026

For many people living with genetic haemochromatosis, regular blood tests and venesections are an important part of managing the condition. But if you have a fear of needles, the idea of treatment can feel scarier than the condition itself.

Over the coming weeks, we'll be sharing a series of posts dedicated to needle phobias - exploring practical tips for managing your phobia before, during and after a blood test or venesection.

Whether you've avoided or cancelled appointments, feel anxious before every blood test, or simply want to support someone who struggles, keep an eye out on our social channels over the next few days. Managing your condition does not mean that you have to struggle with your phobia alone ❤️

Address

The Flaxmill, Flaxmill Lane
Spalding
PE113YP

Opening Hours

Monday 9am - 3pm
Tuesday 9am - 3pm
Wednesday 9am - 3pm
Thursday 9am - 3pm
Friday 9am - 3pm

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