Haemochromatosis UK

10/10/2026

09/10/2026

Some more fantastic photos of Wednesday's We Are Family Event, taken by our Bookkeeper (and now unofficial, amateur photographer!), Alex!

We had a magnificent day with all of you and we'd like to extend huge thank you to everyone who helped make the day such a success! ❤️

We’d especially like to thank our wonderful speakers for taking the time to join us and share their knowledge, expertise and experiences:

👏 Howard Don
👏 Professor Jim Wilson
👏 Dr Shane McKee
👏 Dr Johnny Cash
👏 Dr Allamadine Allamadine
👏 Janice Atkins
👏 Dr Luke Pilling and Luke Sharp

We’re incredibly grateful for you time, support and expertise!

And finally, a big thank you to everyone who came along to share the day with us. It was fantastic to see so many people joining us, learning more about haemochromatosis, sharing experiences and supporting one another.

09/10/2026

Our Christmas Cards are still just £1 for a pack of 10!🎅
That’s just 10p per card! ✨

Choose from three stunning designs:
🦉 Carol-singing owls
🐧 Sweet penguins with festive signs
⭐ The Three Wise Men

Beautiful Christmas cards at a brilliant price - available while stocks last!

http://www.haemochromatosis.org.uk/pages/shop/department/christmas-cards

08/10/2026

Yesterday, patients, families, healthcare professionals and international experts gathered at Belfast’s Titanic Hotel for Haemochromatosis UK’s ‘We Are Family’ conference, focused on earlier diagnosis, treatment and research into genetic haemochromatosis.

Often known as the ‘Celtic curse’, haemochromatosis causes the body to absorb too much iron, which can lead to serious health problems if left undiagnosed.

With around 1 in 71 people in Northern Ireland estimated to have the main high-risk genetic profile, earlier detection could make a significant difference. Research suggests screening could save up to £95 million in healthcare costs over 40 years.

Find out more here: http://www.haemochromatosis.org.uk/news/celtic-curse-puts-belfast-at-centre-of-haemochromatosis-conference

07/10/2026

Pull up a chair and join us for a cosy evening with a brew!☕
On 11th November, join friend of the charity and Overloaded participant Sarah, alongside Haemochromatosis UK’s very own Neil Irwin, for a special in-person Iron Brew gathering in Draperstown.

These friendly get-togethers are a chance for anyone affected by genetic haemochromatosis (GH) to come together, enjoy a cuppa and a biscuit, and spend time with people who understand what it’s like to live with the condition.

Whether you’d like to share your own experiences, listen to others, or simply enjoy a relaxed evening in good company, there’s a chair and a brew waiting for you. It’s completely free to attend, with tea, coffee and biscuits provided.

Come along, pull up a chair, pour yourself a brew and enjoy the warmth of a community that understands ❤️

Book your place now: https://haemochromatosisuk2.beaconforms.com/form/ee9723fc

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07/10/2026

We’re having a fantastic time in Belfast so far 🤩

The eagle-eyed among you will notice our Iron Nurses, Victoria and Diogo sat amongst the crowd! This does mean that sadly that our Helpline will be closed until Friday 9th October ❤️

In the meantime, if you have any queries, you’re more than welcome to email us at [email protected] - Victoria or Diogo will get back to you on their return to HQ!😊

07/10/2026

A change of scenery for Team Iron Overload today as we prepare for our We Are Family event in Belfast today! 🤩

https://www.haemochromatosis.org.uk/Event/we-are-family-haemochromatosis-uk-event-for-patients-and-experts-hold-the-date

06/10/2026

Join us online for a relaxed and friendly Iron Brew on Zoom, where you can meet others living with genetic haemochromatosis (GH) - whether you’ve just been diagnosed or have been on your haemochromatosis journey for years.

Grab a cup of tea or coffee, get comfortable and join the conversation from wherever you are. There’ll be an opportunity to:
🩸 Meet and chat with others affected by GH
🩸 Share your experiences - but only if you want to
🩸 Ask questions about haemochromatosis
🩸 Connect with people who understand

Joining us will be Diogo Gomes, our Advanced Nurse Practitioner, who’ll be on hand to answer your questions and offer support.

There’s no pressure to speak or share - simply pull up a chair, pour yourself a brew and listen in if that’s what feels right for you.

Everyone is welcome. Whether you’re newly diagnosed, further along your journey, or supporting someone with GH, we’d love you to join us.

Book your place here: http://us02web.zoom.us/webinar/register/WN_WsxWVVgWQ0K2gB35pxizRg #/registration

Please register the day before the event, or at least 4 hours before it starts, to make sure you receive your confirmation email and joining link in time.

See you there!

05/10/2026

Overloaded. No longer Overlooked.

“At the end of the day, it’s not down to me getting old.”

Chris had always led an active lifestyle - working as a carpenter and regularly weightlifting. But gradually, fatigue, vertigo and brain fog began taking away the things he loved.

It was only after his sister was diagnosed with haemochromatosis that Chris discovered what was really going on.

🎥 Watch Chris's story here

https://youtu.be/V-d7jzwQVoE?si=_ghMPOtojEbhRGA_

05/10/2026

'Living with Haemochromatosis'. Great article in The Galway Advertiser with Dr. Paul Grant, a Donegal GP who was diagnosed with haemochromatosis over 20 years ago. Paul is a great supporter of the work of the Irish Haemochromatosis Association and has recently given a talk at our AGM and did a series of Healthy Library talks in Galway city and county. Thank you Paul for putting patients first and raising awareness of haemochromatosis!

https://www.advertiser.ie/galway/article/152679/living-with-haemochromatosis
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