Haemochromatosis UK

Haemochromatosis UK Haemochromatosis UK is a patient organisation and charity. Visits to the Haemochromatosis UK Office by Appointment Only.

We aim to support people affected by genetic haemochromatosis, educate, raise awareness and encourage research. The Haemochromatosis UK is patient organisation and charity. We aim to support people affected, educate and raise awareness, and encourage research.

* Disclaimer *

We facilitate discussion in this forum in good faith but without any warranty of any kind, express or implied, as to the

accuracy or validity of the information provided by any contributor, whether an officer of the charity or not. HUK shall not be liable for any loss, damage, or other consequences arising from the use of the forum or attributed to any inaccuracies or omissions therein. Specifically, information provided about haemochromatosis and associated physiology or treatment does not constitute individual medical advice and must not be regarded as such. Users must consult their own doctor or consultant. Do not rely on information on the site to manage your or your family's health. The charity accepts no liability and will not entertain any form of claim in this regard.

Last week, our CEO Jonathan Jelley, alongside Julia Hoult and Trustees Aaron Venables and Dieter Krapp, met with our All...
15/06/2026

Last week, our CEO Jonathan Jelley, alongside Julia Hoult and Trustees Aaron Venables and Dieter Krapp, met with our All-Party Parliamentary Group (APPG) to discuss key issues and priorities.

The meeting included Sir John Hayes and Torcuil Crichton MP and provided an important opportunity to raise awareness and continue conversations with parliamentarians 🧬🩸

We look forward to continuing this important work and sharing more updates in the months ahead.

We realise this may be a tad controversial… but we are just over 6 months out from the big day, after all 😉🎄We’ll be mov...
14/06/2026

We realise this may be a tad controversial… but we are just over 6 months out from the big day, after all 😉🎄

We’ll be moving to e-cards later down the line, but whilst we make room for the change and clear our current stock, ALL of our Christmas Cards are officially half price! That’s right - just £3 for a pack of 10 in our online shop ✨
So why not get organised early and stock up while you can? 🎅

http://www.haemochromatosis.org.uk/pages/shop/department/all

Last year, our Research Intern, Leah Craven-Smith worked with our members to develop a fantastic piece of research, delv...
13/06/2026

Last year, our Research Intern, Leah Craven-Smith worked with our members to develop a fantastic piece of research, delving into the broader impact of GH on the Quality of Life in People with Genetic Haemochromatosis.

Anne, one of our talented volunteers has recently done a marvellous job of turning this research into an e-book.

Read Leah's full report here: http://heyzine.com/flip-book/f01d812f54.html

Today is World Blood Donor Day! 🩸Did you know that if you have genetic haemochromatosis, you may be eligible to become a...
12/06/2026

Today is World Blood Donor Day! 🩸

Did you know that if you have genetic haemochromatosis, you may be eligible to become a GH Blood Donor? 🧬

When it comes to blood, every drop counts. Find out whether you could be eligible today:
http://www.haemochromatosis.org.uk/can-i-donate-blood

Abigail will be undertaking a local Walk & Talk in her local area in aid of Haemochromatosis UK. Inspired by Awareness W...
11/06/2026

Abigail will be undertaking a local Walk & Talk in her local area in aid of Haemochromatosis UK. Inspired by Awareness Week, she and her mum, Marie will be walking 18 miles around their peninsula, in memory of Abigail's Granda Gerry ❤️

Best of luck, Abigail & Marie! We will be with you every step of the way🚶‍♀️🍀

http://www.justgiving.com/page/abigail-welsh-1?utm_medium=FR&utm_source=CL

Help Abigail Welsh raise money to support Haemochromatosis UK

A new diagnosis of Genetic Haemochromatosis can be overwhelming- especially if you don't know anyone else with the condi...
11/06/2026

A new diagnosis of Genetic Haemochromatosis can be overwhelming- especially if you don't know anyone else with the condition. But you don't have to face this journey alone. Our Iron Overload Buddies are here for you ❤️

Our Buddies are fully DBS checked volunteers who are here to offer you 1-2-1 peer support, by phone, at a time that suits you.

Request your Iron Overload Buddy here today: http://www.haemochromatosis.org.uk/News/iron-overload-buddies-we-are-here-for-you

The University Hospitals Bristol and Weston NHS Foundation Trust Clinical Research Facility are looking participants to ...
10/06/2026

The University Hospitals Bristol and Weston NHS Foundation Trust Clinical Research Facility are looking participants to take part in their FERROCLEAR study.

Researchers want to determine if the study medication can reduce liver iron overload when compared to a placebo; they also want to assess how safe and well-tolerated the study medication is.

Find out if you qualify here - space is very limited!: http://uk.reduceexcessiron.com

Anne, a wonderful volunteer of ours, has been working very hard over the last few weeks transforming some of our recent ...
09/06/2026

Anne, a wonderful volunteer of ours, has been working very hard over the last few weeks transforming some of our recent research projects into e-books!

In 2025, Maureen Ng'etich completed an insightful report on Iron Overload in Lincolnshire, highlighting disparities in care and opportunities for change.

Read the full booklet online here: http://heyzine.com/flip-book/3670758336.html /1

This week is National Blood Week!🩸For many people living with genetic haemochromatosis, regular blood donation can be us...
08/06/2026

This week is National Blood Week!🩸

For many people living with genetic haemochromatosis, regular blood donation can be used as an alternative to venesection - a positive way to support their own health, while helping others and potentially saving lives.

Every donation matters. Every donor makes a difference.

Find out if you can donate and join the movement❤️
http://www.blood.co.uk/who-can-give-blood/haemochromatosis-and-blood-donation/

Address

The Flaxmill, Flaxmill Lane
Spalding
PE113YP

Opening Hours

Monday 9am - 3pm
Tuesday 9am - 3pm
Wednesday 9am - 3pm
Thursday 9am - 3pm
Friday 9am - 3pm

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