Myositis UK

12/05/2026

Over 1250 people across Scotland shared what it’s really like living with inflammatory conditions like rheumatoid arthritis — from delays in diagnosis to daily impact on quality of life.

Read the full report here: https://nras.org.uk/thescottishreport/

🏴󠁧󠁢󠁳󠁣󠁴󠁿 Over 1250 people across Scotland shared what it’s really like living with inflammatory conditions like rheumatoid arthritis — from delays in diagnosis to daily impact on quality of life.

Your voices matter. This report is a step towards better care, earlier diagnosis and stronger support.

Read the full report here: https://nras.org.uk/thescottishreport/

06/05/2026

Dr James Lilleker and Dr Hector Chinoy of The University of Manchester put together this information about immune mediated necrotising myopathy to support those diagnosed with it or simply wishing to know more.

https://www.myositis.org.uk/2022/09/09/what-is-immune-mediated-necrotising-myopathy/?fbclid=IwY2xjawRoBRlleHRuA2FlbQIxMQBicmlkETFZTGdVcURWQTZxRmdyczFqc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHhveymV1UUvSV20Uvv7gjdxSf-y8Bho4mZ5UgoXniYKYgTCvBmd1GKNx4-eW_aem_edbrFPNTxKiMezMi8-B74Q

Dr James Lilleker and Dr Hector Chinoy of The University of Manchester have put together this information about immune mediated necrotising myopathy.

02/05/2026

Looking for information & support in the UK?

https://www.myositis.org.uk/myositis-info/recently-diagnosed/

25/04/2026

Good luck to Myositis UK's "Team Muscle" running the London Marathon tomorrow 💪

Noah Sims number 54300 https://www.justgiving.com/page/noah-sims-1

Jenny Rowlinson number 63290 https://www.justgiving.com/page/jenny-rowlinson-3

Hugo Moreno-Rivas number 18379 https://2026tcslondonmarathon.enthuse.com/.../hugo-moreno...

Michaela Oakley number 76068 https://2026tcslondonmarathon.enthuse.com/pf/michaela-oakley

Bilal Mawji https://2026tcslondonmarathon.enthuse.com/pf/bilal-mawji

Emma Bateman number 34836 https://www.justgiving.com/.../emma-bateman...

General page for donations to all the runners https://www.justgiving.com/campaign/myositisuk2026

Good luck to Myositis UK's "Team Muscle" running the London Marathon tomorrow 💪

Noah Sims number 54300 https://www.justgiving.com/page/noah-sims-1

Jenny Rowlinson number 63290 https://www.justgiving.com/page/jenny-rowlinson-3

Hugo Moreno-Rivas number 18379 https://2026tcslondonmarathon.enthuse.com/pf/hugo-moreno-rivas

Michaela Oakley number 76068 https://2026tcslondonmarathon.enthuse.com/pf/michaela-oakley

Bilal Mawji number ? https://2026tcslondonmarathon.enthuse.com/pf/bilal-mawji

Emma Bateman number 34836 https://www.justgiving.com/page/emma-bateman-fifthandfinalfornora

General page for donations to all the runners https://www.justgiving.com/campaign/myositisuk2026

24/04/2026

The ballot for the 2027 TCS London Marathon is OPEN!

BACK YOURSELF IN THE BALLOT! ✅

The ballot for the 2027 TCS London Marathon is OPEN! 🎉

Whether you are a PB-chaser or new to running, looking to support a charity close to your heart or just keen to take on a personal challenge to see what you can do, the TCS London Marathon is for everyone! 🏃‍♂️🏃‍♀️🏃👨‍🦽👩‍🦽🧑‍🦽

REMEMBER - the only way to get your own place in the world’s most popular marathon is to be in the ballot. 🙌

Enter now via the link in the comments ⬇️

22/04/2026

Check Myositis UK's fundraing page "Team Muscle" to see our runners for London Marathon 2026 💪

https://www.facebook.com/MyositisSupportGroup

01/04/2026

You are the expert in how your condition affects you and will know your job well enough to judge what reasonable adjustments could make a difference to how you manage work.

Find out more about what is available to you: https://www.arthritis-uk.org/.../applying-for-reasonable.../

Want to find out more about working with arthritis?

You are the expert in how your condition affects you and will know your job well enough to judge what reasonable adjustments could make a difference to how you manage work.

Find out more about what is available to you: https://www.arthritis-uk.org/information-and-support/living-with-arthritis/work-benefits-and-finances/work-and-arthritis/applying-for-reasonable-adjustments/