European Lung Foundation

European Lung Foundation The European Lung Foundation (ELF) was founded by the European Respiratory Society (ERS) to bring together patients and the public with professionals.

πŸ“£ One week to go until the Wednesday Special Programme at . From rare respiratory diseases and youth engagement to ear...
03/09/2026

πŸ“£ One week to go until the Wednesday Special Programme at .

From rare respiratory diseases and youth engagement to early detection and lung transplantation, the Wednesday special programme brings together patients, healthcare professionals, researchers and policymakers to discuss some of the most important issues in lung health.

Whether you are interested in patient partnership, advocacy, research or the future of lung health, there is something for everyone in this interactive programme.

Highlights include:

🫁 ERN-Lung: a patient-focused network
🌍 Inspiring youth to engage in the future of lung health
πŸ” New frontiers in respiratory health: the present and future of early detection
❀️ Lung transplantation: a dialogue between patients and professionals

πŸ“… 9 September 2026
πŸ“ Barcelona

πŸ‘‰ Explore the sessions and plan your day: https://europeanlung.org/en/get-involved/events/wednesday-special-programme-at-ers-congress-2026/

These sessions are open to the public (with advance registration) and to anyone attending the ERS Congress.

European Respiratory Society

πŸ’™ September is Pulmonary Fibrosis Awareness Month. A diagnosis of pulmonary fibrosis can feel overwhelming, but informa...
02/09/2026

πŸ’™ September is Pulmonary Fibrosis Awareness Month.

A diagnosis of pulmonary fibrosis can feel overwhelming, but information, support and connection can make a difference.

Pulmonary fibrosis is a serious lung condition that causes scarring of the lungs and can be difficult to diagnose. Recognising symptoms and accessing specialist support early can help people get the care and information they need.

Explore ELF's pulmonary fibrosis resources:

🫁 Information hub, available in 9 languages
🫁 Self-care guide created by patients for patients, available in 17 languages
🫁 Patient stories, practical resources and support tools
🫁 Opportunities to connect through the ELF Pulmonary Fibrosis Patient Advisory Group


πŸ‘‰ Explore our pulmonary fibrosis hub: https://europeanlung.org/en/information-hub/lung-conditions/pulmonary-fibrosis/

πŸ”¬ How can patients, clinicians and researchers work together to improve research?Join the final webinar in the ERS–ELF p...
01/09/2026

πŸ”¬ How can patients, clinicians and researchers work together to improve research?

Join the final webinar in the ERS–ELF pre-Congress series to explore how patients can help shape research, from setting priorities and designing studies to sharing results.

πŸ—“οΈ Today, 1 September 2026
⏰ 17:00–18:00 CEST

πŸ‘‰ Register now: https://channel.ersnet.org/media-121690-pre-congress-webinar-discovering-together-advancing-science-through-collaborative-research-1-september-2026

Hear from Hilary Hodge, patient co-chair of the SHARP Clinical Research Collaboration, Dominique Hamerlijnck, a long-standing patient advocate involved in research projects and clinical trials, Helen Parks, who will share perspectives on patient involvement across the research journey, and Lucie Widmann, who will discuss patient involvement in the NEUROCOUGH Clinical Research Collaboration alongside Dr Marta DΔ…browska.

European Respiratory Society

πŸ“’ How can patient involvement be strengthened?In a new open letter published in the European Respiratory Journal, member...
01/09/2026

πŸ“’ How can patient involvement be strengthened?

In a new open letter published in the European Respiratory Journal, members of the ELF Patient Advisory Committee and ELF's 2026 Congress Working Group reflect on progress made and highlight opportunities to strengthen patient involvement in research, education and care.

πŸ‘‰ Learn more: https://europeanlung.org/en/news-and-blog/open-letter-welcomes-ers-congress-2026-theme-and-calls-for-meaningful-partnership/

European Respiratory Society

πŸ“£ With just days away, ELF Chair Dimitris Kontopidis shares the sessions he is most excited about and why.Reflecting o...
31/08/2026

πŸ“£ With just days away, ELF Chair Dimitris Kontopidis shares the sessions he is most excited about and why.

Reflecting on this year's theme, "United for better breathing: partnership between patients, clinicians and researchers", Dimitris shares his thoughts on patient involvement, health inequalities and access to care across Europe.

🀝 From Patient Organisation Networking Day to discussions on patient partnerships, healthcare equity and lung transplantation, discover his top Congress picks.

πŸ‘‰ Read now: https://europeanlung.org/en/news-and-blog/ers-congress-2026-top-picks-from-the-elf-chair/



European Respiratory Society

🀝 Happening today!What does it mean for patients to be equal partners in their care?Join patient representatives Louise ...
31/08/2026

🀝 Happening today!

What does it mean for patients to be equal partners in their care?

Join patient representatives Louise Bouman, Tanja Hedberg and Richard Muller for the next ERS-ELF pre-Congress webinar as they discuss shared decision-making, healthy lifestyles and digital health, and how partnership can lead to better outcomes for people living with lung conditions.

πŸ—“οΈ Today, 31 August 2026

⏰ 17:00–18:00 CEST

πŸ‘‰ Register now: https://channel.ersnet.org/media-121686-pre-congress-webinar-co-creating-care-patients-as-equal-partners-31-august-2026

European Respiratory Society

πŸ“’ Planning your schedule? Explore our timetable of sessions involving or of interest to patients, carers and advocacy ...
29/08/2026

πŸ“’ Planning your schedule? Explore our timetable of sessions involving or of interest to patients, carers and advocacy organisations.

This year's Congress features a record level of patient involvement, with patients, carers and advocacy organisations helping to shape around 90 sessions across the programme.

Whether you are coming to Barcelona or joining online, use our timetable to plan the sessions you do not want to miss.

πŸ‘‰ Browse the timetable: https://europeanlung.org/en/news-and-blog/elf-events-at-ers-congress-2026

🌍 As the approaches, we'd like to say a huge thank you to everyone who has contributed to !With 92 stories from 32 co...
28/08/2026

🌍 As the approaches, we'd like to say a huge thank you to everyone who has contributed to !

With 92 stories from 32 countries, you are helping bring this year's Congress theme, "United for better breathing: partnership between patients, clinicians and researchers", to life.

πŸ“Έ But we are not finished yet! There is still time to contribute and help us build an even bigger collection of voices from across the global respiratory community.

We are looking for photos that capture patient-professional partnership in action.

πŸ‘‰ Share yours: https://woobox.com/ayfu33

European Respiratory Society

🫁 Everyone deserves to !Air pollution remains one of the biggest threats to lung health, but solutions exist. From clea...
27/08/2026

🫁 Everyone deserves to !

Air pollution remains one of the biggest threats to lung health, but solutions exist. From cleaner transport to stronger air quality measures, positive changes can help create healthier places to live, work and learn.

Happening next week, join our event in Barcelona to learn more about why clean air matters, how to protect your lungs and how small changes can support better lung health.

πŸ“ PlaΓ§a de la Universitat, Barcelona
πŸ“… 6 September
πŸ•™ 10:00–18:30

πŸ”— Learn more: https://europeanlung.org/healthy-lungs-for-life/get-involved/events-in-your-country/spain/

With thanks to the European Respiratory Society and all our supporting partners: FundaciΓ³n Lovexair, Barcelona Convention Bureau, ISGLOBAL - Barcelona Institute for Global Health, Separ Respira, Fenaer Pacientes, AsociaciΓ³n de Pacientes con EPOC, Hospital ClΓ­nic de Barcelona, Hospital Universitari Arnau de Vilanova de Lleida, Asma y Alergia EspaΓ±a, Vall d'Hebron Barcelona Hospital Campus, with support from the Clean Air Fund.

🫁 Every lung transplant journey is unique. What can we learn from patients' experiences?Register now to join the discuss...
26/08/2026

🫁 Every lung transplant journey is unique. What can we learn from patients' experiences?

Register now to join the discussion on the final day of in Barcelona about what is working, what challenges remain and how care can be improved for people before and after lung transplantation.

Chaired by ELF Chair Dimitris Kontopidis and featuring patient representatives Natalia Maeva and Stefano Pavanello, this session will bring together patients and healthcare professionals to explore the future of lung transplantation.

πŸ“… 9 September 2026
πŸ•š 11:15–12:45 CEST
πŸ“ Barcelona

πŸ‘‰ Learn more and register: https://europeanlung.org/en/get-involved/events/wednesday-special-programme-at-ers-congress-2026/

European Respiratory Society

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