21/05/2026
"I would avoid wearing anything that would show off my back and I would even wear hoodies in the height of summer."
For years, campaigner Katie hid her scoliosis under heavy clothes, even in hot weather. Enjoying summer with a visible difference was hard, until she decided to put her own comfort first. Today, she shares her story:
"I have Kyphosis Scoliosis, which causes severe curvature of the spine.
"Until 2022, I’d never been to the beach in a swimsuit, at least not since I was little. I was so afraid of what people would say or do. In the past, I’ve had people stare, whisper or make unwanted comments and for a long time it made me feel ashamed, as if my visible difference is something I should cover up.
"As I’ve got older, I’ve learnt that I shouldn’t have to conceal any part of myself to make myself “acceptable” to other people. Do the stares and whispers still make me uncomfortable? Yes. But I was uncomfortable when I was covering up in the heat of summer, too. I’m proud of who I am, and I shouldn’t have to hide.
"When I decided to wear a swimsuit to the beach while on holiday, it was nerve-wracking. However, it turned out to be a really positive experience!
After a while, it wasn’t anywhere near as scary as I imagined it would be – I even did it more than once that holiday. It felt so empowering, and it gave me that push and confidence to go out my comfort zone more often.
"It hasn’t been easy to get to this point. It’s been years of work and there are still some days where I do want to cover up. On these days, I try to 'fake it till I make it'. I walk into a room like I deserve to be there: because I do. I wear the shorts, the cute dresses and the swimsuits, regardless.
"If you’re on the journey to finding your confidence, take it a day at a time, be kind to yourself, and surround yourself with the right people. You deserve to enjoy summer too."
☀️ Summer can be tough for people with visible differences, with more time outside sometimes bringing more stares or comments. At Changing Faces UK, we're here to support you with any questions or concerns related to your visible difference.
Get in touch with our Support & Information line via 0300 012 0275 🦋