07/10/2026
💬 “To any parents of children with visible differences, please consider sharing your story with Changing Faces. It can help other parents feel less alone.” - Kate, William’s mum.
When William was born with Treacher Collins syndrome, Kate found comfort in hearing from other families who had been there before her:
"It really helped to know that we're not alone, and that there are other parents and children out there who understand – even if the condition or situation is not exactly the same."
Since then, Kate, William and the family have gained a lot from sharing their story:
"I think it’s important to normalise difference, both inside and outside, and part of that is sharing some of our more ‘invisible’ stories. Each time we share our experiences, we’ve been met with huge support and encouragement in doing so."
Since sharing William's story with us, he has also featured in our Christmas campaign, where he met author, presenter and advocate Jono Lancaster. William has also appeared in "Find Your Fabulous", a children's book by Vie Portland, celebrating difference.
Now, we want to hear from more parents and carers. 💜
Share your experiences of raising a child with a visible difference: the joys, challenges, milestones and the things you wish others understood. Your story could help another family feel less alone and help create greater understanding and representation.
We’d also love to hear from families who have experienced Changing Faces support, from webinars to workshops and 1-1 support.
If you’d like to share your story, get in touch through our webform: https://social.changingfaces.org.uk/PTgo9H