Tom's Trust

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Tom's Trust is the UK’s leading charity dedicated to providing psychological support to children with brain tumours and their families.

Tom's Trust is set up in memory of our beautiful son, Tom, who died of a brain tumour aged only 9, he was so brave and we are so proud of him. We raise money to fund Clinical Psychologists for children with brain tumours and their families to be there from the devastating point of diagnosis and help them through the tough operations and aggressive treatment necessary for these tumours and then after treatment helping them back to their schools and their lives. If like Tom they do not survive we would like the psychologists to help the bereaved family for the first year. Psychology is under funded and needs more recognition as an essential help to the children and their families. Join us on our journey to provide Clinical Psychologists throughout the UK for this group of children. We are the only UK charity funding Clinical Psychology for children with brain tumours.

06/11/2026

Susy, Tom’s godmother, and her daughter Daisy, took on the London Royal Parks Half Marathon last month, raising nearly £3,000 for Tom’s Trust in his memory.

Their fundraising efforts didn't stop at race day either! Ahead of the half marathon, Susy took on a sponsored 24 hours of silence.

Every pound raised by Susy and Daisy will help us continue funding specialist clinical psychologists within NHS paediatric neuro-oncology services and providing wider support for families affected by a childhood brain tumour.

A huge thank you to Susy, Daisy and everyone who supported them. We're so grateful! 💙

Read more about their challenge - https://www.tomstrust.org.uk/mother-daughter-raise-money-toms-trust-half-marathon/

04/11/2026

A huge well done to Joanne and her son Robin, who raised an amazing £685 for Tom’s Trust by taking on the Great Eastern Half Marathon last month!

We’re so grateful for their support and the fantastic effort they put into fundraising for children and young people with brain tumours and their families.

Thank you both so much! 💙

02/11/2026

“We remember saying to each other this must be what true heartbreak really feels like. It was crushing, a physical chest pain.”

In July 2022, Andy Smith’s daughter Emily, was diagnosed with a brain tumour aged just eight. Just 11 days after her family first went to hospital, Emily sadly died.

The death of a child can have a devastating impact on a dad’s mental health, but grief is not something anyone should have to face alone.

This Men’s Mental Health Month, Andy is sharing his story to help other dads feel less alone and highlight why psychological support for the whole family matters.

Read Andy’s story – https://www.tomstrust.org.uk/coping-with-grief-after-losing-a-child/

02/11/2026

We had such a wonderful time celebrating Halloween with Liverpool CHICS and all the families! It was lovely to see everyone enjoying the games, dancing and dressing up. Thank you to everyone who joined us and helped make it such a special day. 💙

29/10/2026

Half term tip: check in with your child’s energy levels.

A day out, seeing friends or taking part in activities can take more energy than you might expect for a child or young person affected by a brain tumour.

Try using a simple battery chart to help your child show how much energy they have and when they might need a break.

It can help you find a balance between activities and rest that works for them.

Read more practical advice on our blog - https://ow.ly/9LaF50ZZjEW

27/10/2026

Half term can be a welcome break from school, but a change in routine can also bring challenges for children and young people affected by a brain tumour.

Keeping a balance between activities, rest and time to recharge can help support your child’s wellbeing during the holidays.

Our latest blog, written by Tom’s Trust Assistant Psychologist Amy Cottrill, shares practical tips to help families manage changes in routine, navigate worries and support their child’s energy levels.

Read the blog for advice and ideas to try this half term - https://ow.ly/bvBR50ZZjzI

26/10/2026

Don’t miss out! Our 2026 Tom’s Trust Christmas Card Competition is closing soon.

The winning designs will feature on our Christmas cards, spreading festive cheer while supporting children and young people with brain tumours and their families.

How to enter:

Complete our Christmas card colouring template (download from our website), then take a clear photo or scan of your finished artwork and email it to [email protected].

Make sure your whole design is visible and the image is clear.

Find the template and full entry details via the link below! 💙
https://www.tomstrust.org.uk/christmas-card-competition-2026/

25/10/2026

Good luck Harriet! 💙

Wishing our amazing runner Harriet the best of luck as she takes on the Venice Marathon today in support of Tom’s Trust. You’ve got this!

Want to support Harriet? Donate now - https://ow.ly/9wK450ZZkp0 ⭐

24/10/2026

You can’t always see what someone is struggling with.

Living with an invisible disability can be challenging. Young people may worry about being misunderstood, feel different from their friends or feel they need to hide their difficulties.

So how can you help?

Listening to the young person and asking what you can do to support them lets them know you care and that they have a voice.

Our Bitesize Resource also introduces practical tools developed by Tom’s Trust Assistant Psychologist Caitlin Grey, including a Three Sentence Summary and a Health Passport, to help young people communicate their needs.

Read the resource on our website to learn more - https://ow.ly/FxIY51001st

23/10/2026

“Although I may look like any other young person, the effects of my brain tumour and acquired brain injury mean that things like processing information, fatigue and staying organised can be challenging.”

At 14, Tom’s Trust Young Ambassador Jamie was diagnosed with a cancerous metastatic midbrain germinoma.

Although his brain tumour was successfully treated, Jamie continues to experience hidden disabilities, including slower processing speeds, memory issues, anxiety and difficulties with organisation.

As Jamie explains, “Becoming more independent through driving, volunteering and work experience has shown me what I can achieve with the right understanding and support.”

Read our Bitesize Resource on Invisible Disabilities to learn more about Jamie’s experience and how to support young people.

https://ow.ly/bkI151001rc

Address

Tom’s Trust, PO Box 276
Saffron Walden
CB109GE

Telephone

+443001028667

Website

http://www.tomstrust.org.uk/

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