Eva Rose Trust

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Eva Rose Trust The Trust was set up from the loss of Eva Rose to NEC in March 2017 | Raising awareness of Necrotising Enterocolitis | Supporting families |

On 19th March 2017, our beautiful Eva lost her battle with prematurity. Eva suddenly fell very poorly with Necrotising Enterocolitis (NEC), where the intestine becomes inflamed and begins to die. NEC is much more common in premature babies. Of the babies who get this cruel condition, around 50% will lose their lives before or after surgery. Despite the technology we have today, there is still so much to learn about NEC and what truly causes it and more importantly, what can prevent it and save lives. Nothing will ever make it ok, our family will always have something missing but we will always remember our strong, brave baby girl and everything she was and achieved in her short 5 1/2 weeks in the world. We are now looking to set up a trust in Eva's name to help others who go through the unimaginable journey of having a premie. We are working through establishing a trust but first must do our research into what needed and reflect on what would have supported us more during our 11 weeks in hospital and the coming months when we start coming to terms with what has happened. We would be so very grateful if you could spare a few pennies towards what will be Eva's trust. Thank you in advance,
Lou, Tom, Una and the many others going through the heartache we feel X

Tonight we light a candle in memory of all  babies taken too soon and send love to all those left behind, navigating lif...
15/10/2026

Tonight we light a candle in memory of all babies taken too soon and send love to all those left behind, navigating life with a missing piece.

Please join us for Baby Loss Awareness Wave of Light, tonight at 7pm. Thank you ๐Ÿ’œ

13/10/2026
It's Baby Loss Awareness Week and we're thinking of everyone who has lost a baby ๐Ÿ’–๐Ÿ’™Whenever it happened, your loss deser...
09/10/2026

It's Baby Loss Awareness Week and we're thinking of everyone who has lost a baby ๐Ÿ’–๐Ÿ’™

Whenever it happened, your loss deserves to be officially acknowledged.

That's why the baby loss certificate is available.

You can request one if all the following apply:

๐Ÿ”น you've lost a baby before 24 weeks of pregnancy (or 28 weeks before 1 October 1992)
๐Ÿ”น you're one of the baby's parents or surrogate
๐Ÿ”น you're at least 16 years old
๐Ÿ”น you live in England

Find out more: https://brnw.ch/21x6hY6

Today marks the beginning of BabyLoss Awareness Week 2026. Every family affected by the loss of a child will know that e...
09/10/2026

Today marks the beginning of BabyLoss Awareness Week 2026.

Every family affected by the loss of a child will know that everyday on the journey forward brings with it painful reminders, deep loss and sadness. The bereavement journey is forever but every time our children's name is said aloud, written in a card, on a ribbon, it brings many families comfort and feeling of joy that our loved ones are not forgotten- that no matter how long they were able to stay, they still existed, they were loved, brought joy and will always be remembered.

This week, we use the opportunity to open the eyes of many who are fortunate enough to not have experienced losing a child, to support them to better support others. To allow them to ask question and understand better what living with something missing is like.

We highlight the conversations, the time and commitment of many to push for better maternity services and fight for babies to have the highest chance of a healthy beginning and for mothers to recieve high quality care before, during and after birth.

Address

Rustington
BN162RQ

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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