27/05/2026
fans
Refused Right to Choose for Autism / ADHD?
Try These 6 Steps
Across some parts of England, parents are being told they cannot access NHS Right to Choose autism or ADHD assessments unless they first go through local CAMHS pathways or school referral systems. But what happens when:
• CAMHS already declined the child?
• the school does nothing?
• the child is deteriorating emotionally?
• and the GP says “this is the local protocol”?
One recent case involved a 6-year-old girl screened positive for:
• autism traits
• ADHD-related hyperactivity
• severe emotional dysregulation
• sensory processing difficulties
• anxiety-related eating difficulties consistent with ARFID presentations
Her anxiety amplified her sensory overwhelm and reduced her motivation to eat.
Yet the family were reportedly told the GP could not refer directly via Right to Choose and the CAMHS pathways had to be followed first
Meanwhile:
• school support remained limited,
• CAMHS did not intervene,
• and the child continued to struggle.
This is where parents need to understand something important:
Right to Choose is not merely a “local favour”. It is rooted in national NHS patient choice rights.
So if you are blocked, try these 6 steps:
1️⃣ Ask for the refusal in writing
Ask whether the refusal is:
• clinical,
or
• purely administrative.
That distinction matters legally.
2️⃣ Ask for a copy of the ICB or Trust policy
Many parents are told “this is the protocol” but never actually shown the written policy.
3️⃣ Refer directly to NHS England Patient Choice Guidance
National guidance supports patient choice for qualifying NHS services.
4️⃣ Keep evidence of functional impact
Document:
• school distress,
• eating difficulties,
• sensory overwhelm,
• emotional dysregulation,
• anxiety,
• sleep difficulties,
• supervision needs,
• and risk escalation.
Function matters more than labels.
5️⃣ Escalate safeguarding concerns where appropriate
If a child’s mental health, nutrition, attendance or safety are deteriorating, this is not a routine waiting list issue anymore.
6️⃣ Make a formal complaint if necessary
Families can complain to:
• the GP practice,
• the ICB,
• PALS,
• NHS England,
• or ultimately the Parliamentary and Health Service Ombudsman.
The uncomfortable reality is this if a local pathway cannot assess or support a child in a timely way, systems should be very cautious about simultaneously blocking access to alternative NHS-funded providers. Children with neurodevelopmental needs should not fall into a gap between CAMHS, schools and commissioning bureaucracy.
Delayed assessment delays the chance to improve outcomes.
Swinton Lock Activity Centre