CdLS Foundation UK & Ireland

10/05/2026

09/05/2026

A conversation at one of our conferences could change someone's future 💜.

From Southampton to Glasgow, Dublin to Birmingham, each year the CdLS Foundation UK & Ireland hosts 2 conferences where we bring together families and carers of those with Cornelia de Lange Syndrome with some of the most globally sought after CdLS professionals.

From reflux advice to behaviour workshops, signing sessions to inheritance guidance and just as importantly; the chance to talk with someone else who's experiencing the same challenges.

No family should feel alone in their journey.

Help us continue our mission by donating today 💜🧬

09/05/2026

Watch Sara and Robot Ryan sign the Story then look at this.

09/05/2026

A lovely story for a special day!

09/05/2026

Great to see your videos of what everyone has been up to this year. Thank you Andrea Baker

09/05/2026

Are you wearing your Cdls colours today? Post your photos below ⬇️

09/05/2026

Have you completed the CdLS Care Card? 💜🩺🚑

The Care Card provides critical information about a person with CdLS, helping healthcare professionals understand their unique needs and access their professional network quickly for cross treatment queries, especially important in emergency situations.

You can download it here:https://www.cdls.org.uk/media/files/cdls_carecard_2018.pdf