REDS4VEDS Day

18/05/2026

REDS4VEDS SAVE THE DATE! FRIDAY 14 MAY, 2027❗

Check out our new countdown graphics! ❤

17/05/2026

16/05/2026

Hazel is excited to see everyone that has participated! Let's show her and everyone else with Vascular EDS some love!❤️

Hazel deserves more tomorrows!

16/05/2026

"Wear red, snap a photo and post it on social media to help raise awareness for vascular Ehlers-Danlos!!

Let's see if we can get more people involved this year!! These photos are from the last two years 🥰❤️ In loving memory of our beautiful daughter, Jessica."

Kathleen Aikins-Coggins

15/05/2026

Today is REDS4VEDS Day, a day dedicated to shining a light on Vascular EDS and the families who live with this life threatening condition every single day.

As our community wears red, shares photos and spreads awareness, we’re also asking those who can to help us take the next vital step.

Your donation today directly supports:
🔴 Lifesaving emergency resources for families
🔴 Specialist counselling and support
🔴 Research that brings hope
🔴 Our mission to make more tomorrows possible for people living with vEDS

If you’re able, please consider making a gift, no matter the size, it truly makes a difference.

Donate here: https://annabelleschallenge.enthuse.com/REDS4VEDS
Your generosity today helps change tomorrow for someone living with vascular EDS.

15/05/2026

“Today is Reds for veds day my yearly post of trying to raise awareness for people living with Vascular Ehlers-Danlos Syndrome to try give them more tomorrows

My best friend was diagnosed in 2019 with this sh*tty condition, and shortly having her little boy he was also diagnosed.Watching my best friend live with VEDS has shown me how strong someone can be while carrying invisible pain every day.

The condition affects her blood vessels, organs, and connective tissues, meaning even simple things most people take for granted can become dangerous or exhausting for her.

She lives with constant uncertainty, frequent pain, fatigue, and the fear of sudden medical emergencies, yet she still finds ways to smile, support the people she loves, and keep going.

It can be heartbreaking to watch her struggle with things her body won’t allow her to do, especially when others don’t understand how serious her condition is because she doesn’t always “look sick.” Living alongside her has taught me patience, empathy, and how important it is to cherish every moment with the people you love as you never know when Vascular Ehlers-Danlos Syndrome will take her.

Recently she had a serious episode with VEDS that put her in hospital, on that visit most of the doctors hadn't even hurd of the condition. So here's to raising awareness and hopefully getting some management for a condition with no cure.”

Sinitta Williams

❤️

15/05/2026

"We wear red to advocate and bring awareness on an international level about VEDS. In the past I have had time to educate all week on the impact VEDS has our family.

Lately my advocacy has been focused on the emergency departments we have entered, staff there and the rotation of specialists that walk into his room. This past year has been a hard year for Brayden.

The last 3 weeks we have been on edge with the increase of blood being coughed up.

He traveled for the first time in 2 years to be there for his sister at graduation. Today is 2 days of no immediate concern. We celebrate every moment that we have. Wear red with us!"

Beth Dendinger

15/05/2026

The EDS Service Sheffield team supporting helping to raise awareness of vascular EDS. ❤

15/05/2026

"I think back to being a kid and the constant constellations of bruises littering my body.

Constant shifting and never being able to get comfortable in my seat.
My self confidence tanking in dance class for not being flexible in the “right way” and having to work twice as hard to keep my ankles from giving out.
Making sure I had a drink with every meal in case I had difficulty swallowing, and the relentless teasing for always having a flushed red face.

Endless nights when my legs throbbed, dismissed as growing pains and permanently marking me as the girl who cried wolf.

As I got older, it became weekly migraines and daily nausea. Micro tears and waking up in pain no matter what position I slept in. Ice pick pain in my knees from hyperextension, and not understanding because that’s just how I stand. Random joint dislocations and self consciousness of having so many stretch marks as a teen.

The consistent fatigue becoming an everyday problem, but during a worldwide pandemic who cares if you can’t make it through the day without a nap?
I always felt like I had to prove to people that I was unwell, that all of these things weren’t just inside my head. That this was real and was happening to me.
I’m grateful to finally have the answer.

A few days before my 25th birthday, I was officially diagnosed with vEDS.

vEDS can present in many ways, some may go their whole lives without a single complaint, while others get their diagnosis from life-threatening incidents.

I hope to raise awareness and inform others about this life-long condition, and hopefully next year you might remember to wear red on the 3rd friday of May in support for vEDS, so that some other little girl might get the answers she’s looking for a little sooner than me" ❤️

Amanda Machado