Neurokin Family

Neurokin Family Supporting parents, carers & families of neurodivergent children & young people in Wyre, Fylde & Blackpool with lived experience peer support groups.

Come & join us this Tuesday!
14/06/2026

Come & join us this Tuesday!

We are excited to be 'popping up' at Carleton St Hilda's Primary School on 16th June for a parents coffee & chat - it would be great if you can join us!

03/06/2026

A balanced introduction to home education, including the current EHE picture in Lancashire. Explore different approaches, the benefits and challenges, and gain practical information to help you make an informed decision.

03/06/2026

📣 WE'RE HIRING - BLACKPOOL SUPPORT WORKERS 📣

Play Inclusion Project are on the look out for Support Workers for our Blackpool Area to support the Area Manager & Group Supervisor in the running our Saturday Clubs and Holiday Clubs for children with Complex Needs and Disabilities 😁

If you are interested in this role and want more information please visit our website: https://www.playinclusionproject.com/work-with-us for the Job Description and Application Form

We are excited to be 'popping up' at Carleton St Hilda's Primary School on 16th June for a parents coffee & chat  - it w...
03/06/2026

We are excited to be 'popping up' at Carleton St Hilda's Primary School on 16th June for a parents coffee & chat - it would be great if you can join us!

02/06/2026

The wait is over, our Virtual SEN Conference has just launched, and you’re invited 💌

Join us and our expert speakers to learn practical, evidence-based strategies to understand and support your child’s needs.

Be the first to sign up: https://eu1.hubs.ly/H0vNvzL0

02/06/2026

After-school restraint collapse isn’t a child 'acting out'.

It’s the moment their nervous system finally exhales after holding everything in all day long.
And when you understand the timeline of a meltdown, the behaviours suddenly make so much more sense — and so does your response.

02/06/2026

The comments are always the same.

Children out of education for months.

Children out of education for years.

No school place.

No Section 19 provision.

Tribunal hearings over 12 months away.

Children struggling.

Parents exhausted.

And then come the opinions from people who have never lived it.

Do people really think parents want this?

Do they think parents want to spend their days chasing appointments that should have happened months or years ago?

Fighting for assessments?

Chasing reports?

Writing complaints?

Preparing tribunal bundles late into the night?

Do they think parents enjoy receiving phone calls from school asking them to collect their child yet again because they are overwhelmed, dysregulated, suspended, excluded or simply unable to cope?

Do they think parents want to sit in car parks trying to convince a terrified child to walk through the school gates?

Do they think parents want to give up careers, reduce hours, lose jobs and sacrifice financial security because no school can or will meet their child's needs?

And let's not forget many of our children don't sleep.

Some sleep for a few hours.

Some are awake half the night.

Some are awake most of the night.

Yet somehow parents are expected to spend the next day fighting systems, attending appointments, chasing professionals and advocating for their children on little more than caffeine and determination.

Many of our children still need full support with basic daily tasks.

The evening routine that might take another family 20 minutes can take us two hours.

First comes the battle to get them into the bath or shower.
Then the battle to wash.
Then the battle to get out.
Then the battle to get dry.
Then the battle to get dressed.

And some parents are doing this with two, three or four children at the same time whilst trying to keep everyone safe.

Meanwhile we're told Disability Living Allowance is some sort of luxury.

The reality?
Many families are using that money to fund private assessments because NHS waiting lists stretch into years.

Private tutoring because children have been left without education.

Private therapies because provision isn't being delivered.

All whilst paying the additional costs that come with raising a disabled child.

And after all of that, there is always someone ready to tell us:

"You should have waited until you were financially stable before having children."

As though any parent can predict disability.

As though any parent can predict a system that repeatedly fails children.

As though the answer to a broken system is simply not having disabled children in the first place.

No parent dreams of becoming an expert in SEND law.

No parent dreams of spending years fighting schools, local authorities, health services and tribunals.

We do it because the alternative is watching our children be failed.

The people making decisions about our children rarely live with the consequences of those decisions.

But our children do.
And so do their families.

29/05/2026
27/05/2026

The DfE has updated its guidance on suspensions and permanent exclusions: SEND families really need to read this one carefully.

Read here:
https://www.gov.uk/government/publications/school-suspensions-and-permanent-exclusions

There are TWO versions:
☀️ Current guidance until 25th July 2026
☀️ New guidance from 26th July 2026

A few things worth looking out for:
• increased focus on off-site direction
• continued use of suspensions/exclusions as behaviour tools
• reminders that SEND and mental health SHOULD be considered before exclusion
• more mention of internal suspension and alternative provision routes

Please don’t assume that because something is “school policy” it automatically means it is lawful or appropriate for your child.

Read it.
Question it.
Know your rights.

Because exclusions can have life changing consequences for SEND children and young people.





21/05/2026

💜 In the latest episode of our podcast, SENsational, we speak to Dr Annie Clements, Founder of Autism & ADHD, who draws on both her professional expertise and lived experience to explore AuDHD.

Listen or watch now: https://eu1.hubs.ly/H0vbGjn0

Address

Fylde Cricket Club
Poulton Le Fylde

Opening Hours

11am - 12:30pm
8pm - 9pm

Website

Alerts

Be the first to know and let us send you an email when Neurokin Family posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to Neurokin Family:

Share