Fanconi Hope Charity

Fanconi Hope Charity Fanconi Hope helps those affected by the rare genetic condition Fanconi Anaemia

05/06/2026

Ella is a member of The Aplastic Anaemia Trust's youth board and would love to welcome you to their Young People's support group taster session on 16th June at 6pm.
If you are aged 16-25 with a rare bone marrow failure condition, such as Fanconi Anaemia, and would like to meet other people who truly understand, this session is not to be missed.
Sign up at https://www.theaat.org.uk/Event/young-peoples-support-group-taster-session

03/06/2026

Coming up this week!
Friday 5th June at 1pm, The Aplastic Anaemia Trust are holding an online session with Clarise Pattison, an experienced Breathworks guide and mindfulness teacher who will talking about how to keep emotionally healthy. If you, or someone you know is affected by a rare bone marrow failure condition such as Fanconi Anaemia, you are welcome to join this free to attend online event.
To book your place, please visit www.theaat.org.uk/events

More highlights from our FA Europe Scientific Meeting 2026 in Gdansk! 🙌
02/06/2026

More highlights from our FA Europe Scientific Meeting 2026 in Gdansk! 🙌

This Volunteers' Week, we'd like to say a huge THANK YOU to all of the amazing volunteers and fundraisers who make what ...
01/06/2026

This Volunteers' Week, we'd like to say a huge THANK YOU to all of the amazing volunteers and fundraisers who make what we do possible. Your time, enthusiasm, and dedication are truly inspirational! You are all incredible, and we're proud to celebrate each and every one of you this week 💜

💜Spotlight on Fundraisers💜Getting ahead and planning for next year, Alex has signed up to the 2027 Manchester Marathon, ...
31/05/2026

💜Spotlight on Fundraisers💜

Getting ahead and planning for next year, Alex has signed up to the 2027 Manchester Marathon, to support those including her family who are impacted by Fanconi Anaemia. We all wish Alex the best of luck for her training for this.

Are you aged 16-25 living with a rare bone marrow failure condition, or know someone who is?We are working with The Apla...
30/05/2026

Are you aged 16-25 living with a rare bone marrow failure condition, or know someone who is?
We are working with The Aplastic Anaemia Trust who have worked with young people living with rare bone marrow failure conditions and Dr Catarina, a Clinical Psychologist to create a space where you can come together to talk honestly about stress, identity and uncertainty, without pressure or judgement. Whether this be surrounding treatment, appointments, education and career changes or any aspect that is causing you concern, this support group will be here for you.
The AAT are holding a taster session on 16th June 6-7pm before they commence a 6 week support group on 25th June.
If you would like to sign up for the taster and/or group sessions, or would like more information, please visit https://www.theaat.org.uk/Pages/Events/Category/events?Take=5

From the Scottish Borders to the Shetland Islands, and everywhere in between.We are working with The Aplastic Anaemia Tr...
29/05/2026

From the Scottish Borders to the Shetland Islands, and everywhere in between.

We are working with The Aplastic Anaemia Trust who are holding their first online chat for everyone affected by a rare bone marrow failure condition who is living in Scotland.

We understand that living in rural areas of the country can make it difficult for patients to come together to meet people living through similar experiences. Therefore there will be an online chat where you can meet others living in Scotland who are also affected by rare bone marrow failure conditions.

Please join The AAT Support & Outreach Coordinator, Linzi online on 17th June at 6:30pm by registering for the event here https://www.theaat.org.uk/Event/scotland-online-chat

We are working with The Aplastic Anaemia Trust who are holding a free information session on Tuesday 7th July led by sol...
28/05/2026

We are working with The Aplastic Anaemia Trust who are holding a free information session on Tuesday 7th July led by solicitor Sarah Crowther who specialises in all things Wills, Trusts & Lasting Powers of Attorney.
Sarah will cover topics that include:
- Key considerations when making a Will
- Different types of Trusts in Wills
- Explaining the different types of Lasting Powers of Attorney (LPA) and how to make an LPA
There will also be an opportunity to ask any questions around the topic of Wills & LPAs.
You can sign up by following the link: https://www.theaat.org.uk/Event/wills-trusts-in-wills-and-lasting-powers-of-attorney

It's World Blood Cancer Day ❤ and today we think about how we can support those living with these diseases that have suc...
28/05/2026

It's World Blood Cancer Day ❤ and today we think about how we can support those living with these diseases that have such a huge effect on both those living with them and their friends and families. Here are a few ideas on how you can help:

🎗 Consider stem cell donation - it could literally save lives! For more information, visit blood.co.uk/stem-cell-donor-registry/donating-stem-cells
🎗 Fundraise for Fanconi Hope! The money you raise will help to fund life-changing research and support families living with Fanconi Anaemia. You could do a sponsored run, host a coffee morning, or even do a sponsored skydive!
🎗 Raise awareness by wearing a cancer ribbon, sharing stories, and posting on social media in support of organisations like Fanconi Hope, or projects like the Better Together Campaign

There's still time to catch the wonderful Katie Carr at one of her book launch events! Katie is our Head Communications ...
27/05/2026

There's still time to catch the wonderful Katie Carr at one of her book launch events! Katie is our Head Communications Volunteer, and we're delighted for her that she's now published her second book, 'Thundery at Times', detailing her own story after her brother Toby passed away from Fanconi Anaemia in 2022, aged 40. Her first book, 'Moderate Becoming Good Later', was begun by Toby before his passing, and was later finished and published by Katie at his request.

Don't miss the rest of Katie's book launch tour at the following
⭐ Thursday 28th May, 7pm: St. Mary's Lighthouse Whitley Bay, Tyneside
⭐ Friday 29th May, 7.30pm: The Pickering Book Tree 43a Market Place, Pickering, Yorkshire
⭐ Thursday 11th June, 6pm: Backstory Bookshop, Calle Mallorca 330, Barcelona
⭐ Thursday 18th June, 7pm: Chapters Bookstore, Ivy Exchange, Parnell Street, Dublin

For more information, including how to book tickets, visit katieannicecarr.com/events. Well done, Katie! 🙌

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