Plymouth Epilepsy Support Group

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Plymouth Epilepsy Support Group To provide positive support to people in Plymouth and surrounding areas, living with and/or caring for people with epilepsy and seizure disorders.

Does your child have epilepsy?Do you live in the UK?Researchers from the University of Leicester are looking for parents...
30/09/2026

Does your child have epilepsy?

Do you live in the UK?

Researchers from the University of Leicester are looking for parents/carers of children under 12 to complete an online questionnaire about epilepsy medication.

The aim of the study is the prioritise factors that make it harder or easier for your child (under 12 years of age) to take their epilepsy medicine.

Your experience will help improve future support for families.

Take part here:
https://forms.cloud.microsoft/e/DVGsLVzJtZ

Contact: [email protected] for any enquiry.

💜 Dates for your diary! ☕Here is our monthly Coffee & Chat schedule for the coming months. Come along for a friendly and...
30/09/2026

💜 Dates for your diary! ☕

Here is our monthly Coffee & Chat schedule for the coming months. Come along for a friendly and supportive catch-up, share experiences, or simply sit back and enjoy the company!

📍 Where: Plymouth Unitarian Church, Notte Street, Plymouth, PL1 2HG
🗓️ When: Every 2nd Wednesday of the month
⏰ Time: 12:00 PM – 2:00 PM

💜 Everyone is warmly welcome, including carers, family, and friends (of all ages). The venue features full step-free access, an accessible toilet, and on-street parking outside (free for Blue Badge holders).

💜 Entry is completely free and fully funded. We just welcome a small, optional donation towards hire costs and refreshments if you're able to. We have tea, coffee, biscuits, and healthy options available!

💜 We look forward to seeing you at our next meeting on Wednesday 14th October, where we'll be joined by the awesome charity Headway Plymouth as our guest speakers. See you there!

My sister and I did it!! 💙❤️💜 💪💪 Helping to raise the total amount of £24, 027! Raised by everyone who took part 👏👏👏 Ply...
30/09/2026

My sister and I did it!! 💙❤️💜 💪💪 Helping to raise the total amount of £24, 027! Raised by everyone who took part 👏👏👏

Plymouth Hospitals Charity

This Saturday at 11am! 🙈 Please spread the word and support us if you can 💜On Saturday 19th September at 11am my sister ...
14/09/2026

This Saturday at 11am! 🙈 Please spread the word and support us if you can 💜

On Saturday 19th September at 11am my sister and I are taking on the Derrirford hospital abseil challenge! Yes from the very top! 🙈

I’m taking on this challenge for three very personal reasons.

Firstly, I’m doing it to support my sister, Charley, who has experienced first-hand the incredible support provided by Plymouth Hospitals Charity. Following the heartbreak of a miscarriage that she and Matt went through, The aftercare they received helped them through an incredibly difficult time. The charity was also there for them when their son, my beautiful nephew Jakey, was born with breathing difficulties and needed to be transferred to intensive care.
Having seen first-hand the difference this support made to them during the most frightening and emotional moments of their lives, I want to give something back.

Secondly, I want to raise funds to enhance care and support for people living with epilepsy at Derriford Hospital. Through my work with Plymouth Epilepsy Support Group , I know how important specialist care, equipment, education, and support are for people with epilepsy and their families.

And finally, I’m doing this because my sister Charley asked me to join her on this incredible challenge. Charley is absolutely terrified of heights, so I am incredibly proud of her for being brave enough to take this on. I know she has deeply personal and heartfelt reasons for wanting to do it, which makes it even more special for me to stand beside her and take that leap together.

So, although abseiling down the side of Derriford Hospital is definitely outside my comfort zone, I have three very personal reasons to take the leap — my sister, my family and the epilepsy community I care so deeply about ❤️

Not to mention the amazing charity we are raising funds for. As my sister and I have both personally experienced the trauma of hospital, it's charities like this that truly make the difference.

I’d be incredibly grateful for any support, big or small. Every donation will help us give something back to this amazing charity.

Please help us take the leap! 🧗‍♀️ ❤️

Link to donate 👇 Thank you so much in advance ❤️🙏❤️ Wish us luck!!

https://plymouthhospitals.enthuse.com/pf/caroline-williams

Much love, Caroline ### 💜 ###

Plymouth Hospitals Charity

✨ Yesterday’s Coffee & Chat was a great success! ✨We had a fantastic turnout, with lots of new and familiar faces. It wa...
10/09/2026

✨ Yesterday’s Coffee & Chat was a great success! ✨

We had a fantastic turnout, with lots of new and familiar faces. It was such a lovely and positive meeting 💜

🌿 We continued with last month’s theme of what positive changes we can make to help reduce seizure triggers.Iincluding:

☀️ * Morning light & fresh air: Getting outside in natural morning light and enjoying a gentle walk can help support sleep, mood and overall wellbeing.

😴 * Good sleep: Finding a sleep routine that works for you, winding down before bed, reducing screen time, and listening to your body.

💗 * Movement & positive activities: Finding exercise you enjoy, getting outdoors, practicing mindfulness, and doing things that bring you joy can all help support mood and reduce stress.

🧘‍♀️ * Managing stress: Stress can be a significant seizure trigger, so finding ways to calm the body and mind is really important.

🥑 * Balanced nutrition & blood sugar: Including plenty of protein, healthy carbohydrates (fruit, vegetables, and whole grains), and good fats to support brain health and overall wellbeing.

🚫🍷 * Reducing or avoiding alcohol: As our lovely epilepsy nurse Sara highlighted, alcohol can contribute to seizures in several ways, including dehydration, disrupted sleep, changes in blood sugar, and the direct effects of alcohol itself.

💊 * Medication & daily habits: Taking medication on time and building positive, consistent habits into our daily routines.

🧠 * Listening to your own body: Understanding your individual triggers and speaking to your healthcare professional when you need support.

💚 📖 I really hope everyone finds the free book useful. It covers mental health, positive change, breaking and creating habits, nutrition, and lots of practical ideas to help us become the best version of ourselves. I’d love to hear your feedback once you’ve had a chance to read it! 😊

☕🧁 The second half of the meeting was spent in smaller groups, enjoying a brew and cupcakes, chatting, and celebrating our small wins. It was so lovely hearing everyone’s successes and positive news ✨

🆕 It’s looking very promising that Tom and Emma are hoping to set up a young persons’ epilepsy meet up for 16+ to young adults. It’s early days, so watch this space! We’ll keep you updated.

Also a big thank you to Sara for joining us, always a pleasure to have you there 🙂💜🙏

📅 Our Next Meeting:

🔹 * Date: Wednesday 14th October
🔹 * Time: 12:00 pm to 2:00 pm
🔹 * Location: Plymouth Unitarian Church, Notte Street

🧠💜 We have a guest speaker joining us from Headway Plymouth to talk about the impact of trauma on the brain, which promises to be really insightful.

Everyone and every age is welcome. Looking forward to seeing you all there! 💜✨

08/09/2026

Please sign and share 💜

💜 A little reminder about our Coffee & Chat this Wednesday! We’ll start the session with a positive Q&A around nutrition...
07/09/2026

💜 A little reminder about our Coffee & Chat this Wednesday!

We’ll start the session with a positive Q&A around nutrition, lifestyle, and healthy habits. I’ll be sharing my own experience of living with epilepsy, my knowledge as a nutritionist, and the lifestyle changes I’ve made to help reduce triggers and support overall wellbeing.

💚 📖 Free Gift: Everyone is welcome to take a free copy of my nutrition & lifestyle book, packed with simple tips to help you feel your best. (Please leave a quick comment or thumbs up if you're planning to come so I know roughly how many copies to bring!)

Following on from last month's success, we’ll then break into a couple of smaller support groups tailored to what people need on the day.

(If our lovely Epilepsy Nurse Sara is able to join us, we'll also look at setting up a group with her for anyone who would benefit from her support)

The idea is simply to share experiences, support one another, and learn from people who truly understand.

📅 When: Wednesday, 9th September, from 12:00 p.m. to 2:00 p.m.

📍 Where: Unitarian Church, Notte Street, Plymouth

I’m really looking forward to seeing you all there!

Warm wishes, Caroline 💜

💜 Our monthly Coffee & Chat is next week! ☕️We’re looking forward to seeing you all on Wednesday 9th September for our u...
04/09/2026

💜 Our monthly Coffee & Chat is next week! ☕️

We’re looking forward to seeing you all on Wednesday 9th September for our usual coffee, chat, support and plenty of friendly conversation! 😊

🌱 We’ll be continuing our discussion around positive lifestyle changes and reducing seizure triggers — looking at the things we can do to support ourselves alongside medication and medical care.

✨ It’s about listening to your own body and needs, making small, positive changes and finding what works for you. There’s no one-size-fits-all approach — we’re all individuals!

📚 I’ll also be bringing along some of my books, which are free to everyone thanks to the funding we’ve received. They focus on becoming the best version of yourself through nutrition, healthy habits and lifestyle changes.

🌟 We may also be joined by Sara (our wonderful epilepsy nurse), who is hoping to come along 🤞

☕️ Wednesday 9th September | 12–2pm
📍 Plymouth Unitarian Church Notte Street
💜 Everyone welcome — all ages and abilities!

Come along, grab a cuppa and meet some lovely people. We’d love to see you there! 🥰💜

💜 Coffee & Chat – What a great session! ☕️We had such a lovely, positive session last Wednesday, with familiar faces and...
19/08/2026

💜 Coffee & Chat – What a great session! ☕️

We had such a lovely, positive session last Wednesday, with familiar faces and some new ones joining us. It was great to see everyone getting involved in some really open and insightful conversations. 💜

🧠 We focused on understanding our seizure triggers, including:

• 😴 Lack of sleep
• 😟 Stress
• 🍷 Alcohol
• 🩸 Low blood sugar
• 🔄 Hormonal changes, including changes in oestrogen
• 🍔 Poor diet and highly processed foods

We talked about the things we can do to help reduce our triggers and support our overall wellbeing:

✨ Prioritising good-quality sleep
🥗 Eating a balanced diet with plenty of protein, healthy fats, vegetables and fruit
🌿 Spending time outdoors and in nature
🧘‍♀️ Mindfulness and meditation
🚶‍♀️ Gentle, regular exercise
💜 Finding ways to reduce stress and bring calm to the body

And most importantly, epilepsy does not define us. 💜

We may have epilepsy, but we are not epilepsy. It is just one part of who we are. It’s important to keep doing the things that make us happy, whilst finding safe ways to enjoy them and taking sensible precautions when needed.

People with epilepsy can — and do — live happy, active and fulfilling lives. 🌈💪

We also split into smaller groups for the second part of the session, giving carers the opportunity to chat with other carers and members to share experiences with others living with epilepsy. It worked really well and created a lovely, supportive flow to the afternoon. 💜

Thank you to everyone who came along and contributed. It was a really positive and insightful session. ☕️💬

📅 Our next Coffee & Chat:
Wednesday 9th September
🕛 12–2pm
📍 Plymouth Unitarian Church Notte Street

Everyone is welcome — all ages, all abilities, friends, family members and carers too. 💜

We look forward to seeing you there! 🫶

✨ TODAY’S THE DAY! ✨Hope it all goes well Alana’s Epilepsy Mission 💜 Perfect day for you all! 💜Here all the information...
27/06/2026

✨ TODAY’S THE DAY! ✨

Hope it all goes well Alana’s Epilepsy Mission 💜 Perfect day for you all! 💜

Here all the information:

We are SO excited to welcome all of our amazing Purple Warriors and their families to our Big Messy Art Event & Picnic! 💜🎨

After weeks of planning, we can’t wait to spend the afternoon getting messy, creative, and making wonderful memories together. Seeing our epilepsy community come together means the world to us, and we’re counting down the hours until we see all your smiling faces! 💜

Thankfully, it’s much cooler today, making it the perfect day to get outdoors and enjoy some creative fun together. 🌤️

Just a few reminders before you head out:
💦 Bring plenty of water to stay hydrated.
🧴 Don’t forget your suncream.
🧺 Pack your picnic.
👕 Wear old clothes that you’re happy to get messy in!

We’ll have giant canvases to paint, slime, nature pit, and lots more for everyone to enjoy.

Safe travels everyone—we can’t wait to see you all for an afternoon of laughter, creativity, friendship, and fun. Let’s make today one to remember! 💜🎨🌿

Address

Plymouth

Opening Hours

Monday 10am - 3pm
Tuesday 12pm - 5pm
Wednesday 12pm - 5pm
Thursday 12pm - 2:30pm

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