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Kidney Research UK

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Kidney Research UK

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We are the leading kidney research charity in the UK. Kidney disease ends here. Only research will end kidney disease.
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We believe that no one should live in fear, anxiety and pain with this life-limiting condition. Your help means our fantastic doctors, nurses, and scientists can continue their life-saving work and achieve a better life for those with kidney disease. Follow us to keep up to date with what's happening with our research. Our page should be a safe place where followers can share their personal experiences of kidney disease and thoughts about our research. We love to hear your feedback, both positive and negative, as it’s important to us that we hear your views. Our social media house rules aim to ensure everyone can enjoy engaging with our page:

We ask everyone interacting with our page to be considerate and respectful of each other. Please ensure that your contributions to the page are civil, polite, tasteful, and are suitable for individuals of all ages and backgrounds. We do not accept disruptive, offensive, or abusive behaviour, or unlawful content. This includes any posts that are deemed to be defamatory, offensive, infringing, obscene, lewd, pornographic, violent, abusive, insulting, threatening, harassing, discriminatory, blasphemous, indecent, unlawful, or objectionable. This includes any posts that are aggressive, argumentative, or can be deemed to be bullying. Spamming or the repetition of posts that are unrelated to our page are not acceptable on our page. We try to avoid moderating posts from our followers, except in some instances - for example where posts are offensive, threatening, or include libellous content. We have a duty to protect the wellbeing of our staff and volunteers, so while we try to avoid deleting comments, any post containing a libellous accusation, will be removed. We will also remove any posts that target individual teams or members of staff. If anyone has feedback to share about any individual members of staff or teams, please get in touch with us directly. If an individual continues to post offensive, threatening or libellous content, we will remove them from our page. We do not tolerate posts that are deemed to be racist, sexist or homophobic. We also do not permit posts that support illegal activity, or activities that go against the values of the charity. If you feel that any user content has broken our social media house rules, email us at [email protected]. Comments and content posted on our page by our followers are their views and may not represent the views Kidney Research UK.

28/10/2026

Over the past 100 days, more than 12,000 of you added your name to our 100 Days Kidney Test petition! 🎉

While the petition has now closed, your support continues to send a powerful message that kidney disease cannot be ignored. We'll now use our collective voice to keep pushing for action.

This week, we stood outside parliament with our 'report card' for Andy Burnham and his Cabinet to show them exactly where they're falling short when it comes to implementing meaningful change for people living with kidney disease. It's clear to us that they must do better.

Over the coming weeks, we'll be sharing what happens next, including how we're taking your support to decision-makers and continuing to push for meaningful change.

We are incredibly grateful for the overwhelming amount of support and we thank every single person who took the time to add their name. You're helping us to improve life for millions of people across the UK who are living with kidney disease, alongside the families and loved ones 💜

28/10/2026

After 84-year-old Lilian's kidney became severely infected, it needed to be removed. However, she was too unwell to undergo surgery and she sadly died in 2023.

Her son, Robert, has many wonderful memories with Lilian, who he describes as his "role model".

"Mum was incredibly special. Everyone enjoyed spending time with her. Whether she’d known someone for ten minutes or ten years, she would always put people at ease."

Robert has honoured Lilian's last wishes by ensuring charities close to her heart receive gifts left in her Will as a final act to help others.

“Charities are only able to do a lot of what they do because of people like my mum leaving gifts in their Wills. Her legacy will live on and hopefully it will go some way to helping researchers find solutions or even cures for people facing kidney problems."

As Free Wills Month draws to a close, we want to remind everyone of the importance of having an up-to-date Will, so that your wishes can be honoured, just like Lilian's 💜

27/10/2026

Busted's James Bourne has revealed that his younger brother Chris saved his life by donating a kidney to him - after doctors had given him “a few years to live”.

He shared the news on his Spotify account: “Wow, what the hell happened? One minute you're heading out on tour, the next thing you know you're on the bench and out of the game.

‘I’m happy to share now that my youngest brother, Chris, who stepped in for me on tour last year, has saved my life yet again. This time quite literally by donating me one of his kidneys.”

We're so pleased to hear that James and his ‘hero’ Chris are both currently recovering from their transplant operations.

26/10/2026

⏰ ONE DAY LEFT to make your voice heard.

Over the past 99 days, more than 10,000 of you have stood up for change by signing our petition✍️

Thank you to every single one of you. Together, you’re helping us fight for a better future for millions of people living with kidney disease.

But there are still many more voices to be heard.

Around 7.2 million people across the UK are living with kidney disease, alongside the families and loved ones whose lives are affected every day. They deserve meaningful change.

This is the final day for you to take a minute of your time to add your name and help a community in desperate need of meaningful change. Sign now 👇

25/10/2026

In our latest episode of Kidneys Unfiltered, Mandy opens up about the recent loss of her dad, Sam, alongside her mum and Sam’s wife, Pam.

Bereavement and loss can turn everything upside down, and it’s often difficult to make sense of the emotions we feel after losing a loved one. Everyone processes grief differently.

Today, on what would have been Sam’s birthday, we’re encouraging conversations like these. Because while grief and loss can be an uncomfortable topic to approach, talking about it together can help us feel less alone.

Today, we’re remembering Sam and sending love to his family and everyone who knows the pain of losing someone they love 💜

23/10/2026

Mandy and Pam open up about loss and grief in the latest episode of Kidneys Unfiltered 💜

If you’ve lost someone you love, you’ll know just how difficult it can be to talk about grief. Opening up takes strength, and sharing these experiences can help remind others that they’re not alone.

Catch the full conversation this Sunday.

23/10/2026

Kev developed calciphylaxis in 2021 - a condition that causes painful skin sores that are prone to serious infection. It's caused by a build up of calcium in the small blood vessels in and around the skin, which blocks the blood flow.

Calciphylaxis is mostly seen in people with kidney disease on dialysis, and is extremely painful.

“It’s impossible to explain how painful it is. I couldn’t escape. I’d wake up crying because the pain was so intense. I bled profusely, had endless infections and experienced muscle atrophy."

Despite the huge impact the condition has had on Kev and his family, with both him and his wife having to stop working, he highlights the lack of awareness and understanding surrounding calciphylaxis, and that more research into the condition is needed.

"At the beginning of my treatment, even experienced doctors had never heard of calciphylaxis. With a better understanding, some of what I’ve gone through could have been avoided. I want to raise awareness so patients can be diagnosed more quickly in future."

This coincides with Dr Sharon Huish and Professor Smeeta Sinha's findings from interviews carried out to better understand the experiences of patients with calciphylaxis. The team have recently published research that identifies several key priorities to inform improvements in calciphylaxis care, including better education on the condition for patients and healthcare professionals, improved pain management and wound care, and more emotional and psychological support for patients.

22/10/2026

Dear UK Government,

As our new Prime Minister has been recently appointed, and with a new government in place in Westminster, we believe now is the perfect time to make sure kidney disease takes its rightful place far, far higher up the health agenda.

Kidney disease has a huge impact on individuals, the economy, the environment and, of course, the NHS - costing it £6.4 billion per year - and yet, it’s still being overlooked.

That’s why we’ve set you three clear tests for your first 100 days in office, backed by people across the UK who have added their names in support of urgent action on kidney disease.

At the end of the 100 days, we’ll see if you passed the kidney test, based on whether you did the right thing by taking meaningful action to help protect millions of kidney patients across the UK, or if you fell short and failed to treat kidney disease with the urgency it desperately deserves.

Don’t let us down - you could help us find kidney disease earlier, stop more people progressing to kidney failure, and make sure children and families affected by rare and inherited kidney conditions are heard.

Yours sincerely,

Kidney Research UK

22/10/2026

We're bringing you some incredibly exciting research news this week!

Thanks to the Stoneygate Trust, we're supporting the creation of a £5.2 million network which aims to revolutionise kidney transplants and enable more life-changing surgeries.

Working across five leading transplant centres in Cambridge, London, Oxford, Edinburgh and Newcastle, the PERFUSE-UK network will support the adoption and roll-out of normothermic machine perfusion (NMP) across the NHS.

Currently, the majority of kidneys from deceased donors are stored and transported via cold storage before transplant. This keeps the kidney alive but once cut off from blood circulation it can become damaged. NMP circulates warmed oxygenated fluid into a kidney which preserves it better and allows more time to assess its suitability for transplant.

Every year, more than 300 kidneys from deceased donors are found to be unsuitable for transplant, but around 80% of these could be healthy enough for perfusion treatment, which could lead to a large proportion of them becoming approved for transplant.

Professor Michael Nicholson has been pioneering the development of NMP for over 20 years, funded by us and the Stoneygate Trust, and carried out the first perfusion-enabled kidney transplant in 2010, which is still working well today.

Founder of the Stoneygate Trust, Sir Will Adderley says, "I’m confident this latest phase will help deliver real change for the patients who need it most.”

21/10/2026

Take a look at some of the incredible work that's been done over the past financial year to change the future for kidney patients!

Thanks to our incredible community of researchers, patients, volunteers and partners, with a record investment into research to improve our understanding of kidney health, halt kidney disease in its tracks and improve outcomes for patients.

Here are just a few highlights you've all helped us to achieve:

- £15.5 million, a record year for income
- £15.2 million invested in research, awareness and education
- 50 research grants awarded to help drive discoveries forward
- 400 volunteers raising awareness for kidney disease
- 268 gifts received in Wills helping build a brighter future for generations to come

Behind every one of these numbers are people, families and communities who could benefit from a better future for kidney health.

We’re proud of how far we’ve come, but we’re even more excited about what we can achieve next. The year ahead promises exciting opportunities to deliver even greater impact for people affected by kidney disease.

Thank you to every single person who has provided support, expertise and insight into lived experience to make this possible💜

Address

Stuart House, City Road
Peterborough
PE11QF

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+443003031100

Website

http://www.kidneyresearchuk.org/, http://en.wikipedia.org/wiki/Kidney_Research_UK, http://www.worldkidneyday.org.uk/, ht

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