Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis đź’ś UK charity supporting people affected by pulmonary fibrosis. We're a UK charity who put patient support & research first.

Our vision: A world in which everyone living with pulmonary fibrosis has a better future. APF is a patient driven organisation, it is vital to us that our community is a safe space for all, regardless of background, sexuality, gender, disability, or race. We gain strength from the wide variety of backgrounds that people come with. We value your unique experience and want your voice to be heard.

Got five minutes? Could you help us speak up for better PF care? While you’re having a cup of tea, on your lunch break o...
04/09/2026

Got five minutes? Could you help us speak up for better PF care?

While you’re having a cup of tea, on your lunch break or waiting for the bus or train, you can email your MP and ask them to support faster diagnosis, better support and fairer access to care for people affected by pulmonary fibrosis.

We’ve made it simple. Enter your details and we’ll help you send an email to your MP.

👉 https://actionpf.eaction.org.uk/speakupforpf

You can use our suggested wording or add your own experience to make your message more personal.

It only takes a few minutes, but every voice adds to the call for better care for people affected by PF.

Talking PF: Planning for End of Life đź“… Wednesday 16 September, 3-4pm Thinking about end of life planning can feel diffic...
03/09/2026

Talking PF: Planning for End of Life

đź“… Wednesday 16 September, 3-4pm

Thinking about end of life planning can feel difficult, but having the right information and support can help.

Join our free online webinar where we’ll explore these topics in a sensitive and supportive way:

• Why end of life planning is important
• Key things you may want to think about
• What support is available

You’ll hear from legal and healthcare professionals, get personal insights from people living with PF and have an opportunity to ask questions.

Register here: https://bit.ly/APFwebinarSept16

Cannot join us live? Register anyway and we will send you a link to the recording.

Coming together to Take Action for PF đź’śPF Awareness Month is underway and our community is already making a difference. ...
03/09/2026

Coming together to Take Action for PF đź’ś

PF Awareness Month is underway and our community is already making a difference.

The Nottingham Pulmonary Fibrosis Support Group were joined at their summer party by James Naish MP and Michelle Welsh MP for tea, cake and conversation about pulmonary fibrosis.

Both MPs have a personal connection to PF. James lost an uncle to PF, while Michelle lost her dad David to PF last year. David was a member of the Nottingham group.

“It was incredibly moving to attend the party with James Naish,” says Michelle. “The support group provided my mum and dad with an enormous amount of support, friendship and vital information during an incredibly difficult time.

“I promise that I will continue raising awareness of the disease in Parliament, pressing for better care, greater support and more research for everyone affected by this terrible disease, including carers.”

This is what Take Action for PF is all about, people coming together to help people affected by PF. And we’re only just getting started.

How will you Take Action for PF this September? Get involved and register today: https://takeactionforpf.co.uk/action

Pulmonary Fibrosis Awareness Month starts today. And we’re asking you to Take Action for PF! Some of you have already ma...
01/09/2026

Pulmonary Fibrosis Awareness Month starts today. And we’re asking you to Take Action for PF!

Some of you have already made your pledge, ordered materials or planned something for September. Still deciding how you want to get involved? We would love you to join us.

Your action could be sharing information about PF, telling your story, displaying a poster, bringing people together, taking on a challenge, speaking up for better care or making a donation.

It can be something small. It can be something you do once or throughout the month. What matters is that, together, we make pulmonary fibrosis harder to overlook and help more people find the support they need.

So, what will your action be?

Complete the sentence:

I’m taking action for PF by…

Tell us in the comments, share your pledge or post your action using

If you are only just getting started, you can find ideas, materials and support here: https://takeactionforpf.co.uk/action

Big or small, every action helps people affected by PF đź’ś

Set your own goal and Go Your Distance for PF this September. Last year, Sandra and the East Midlands Interstitial Lung ...
31/08/2026

Set your own goal and Go Your Distance for PF this September.

Last year, Sandra and the East Midlands Interstitial Lung Disease team raised more than ÂŁ1,300 through their Go Your Distance challenge.

Sandra has worked in respiratory medicine for almost 30 years and sees first-hand the effect PF can have on people and their families.

Her advice to anyone considering a challenge is simple: “Do it! Rope in your family and friends, especially if they are fitter, creative or have whacky ideas. Do something that makes you smile and have fun doing it!”

You could walk, run, wheel, cycle, swim or create a challenge of your own.

Register now and tell us what you are planning: https://register.enthuse.com/ps/event/goyourdistance

Every challenge helps bring us closer to better treatments and, one day, a cure.

Big or small, every action helps people affected by PF đź’ś

Get involved and Go Your Distance for PF Month! There’s lots happening behind the scenes at APF as we get ready for PF A...
29/08/2026

Get involved and Go Your Distance for PF Month!

There’s lots happening behind the scenes at APF as we get ready for PF Awareness Month this September!

Our 'I’m Taking Action' T-shirts have arrived and the team have been busy putting together fundraising packs for everyone taking on a Go Your Distance challenge.

Choose a distance and activity that works for you. Whether you’re walking, wheeling, running, cycling, swimming or setting your own personal challenge, we’ll be here to support you with fundraising guidance and campaign materials along the way.

👉 Register your challenge here: https://register.enthuse.com/ps/event/goyourdistance

Big or small, every action helps people affected by PF đź’ś

Meet the Emperors, fundraising for APF one match at a time ⚽💜 West Didsbury and Chorlton Emperors are a junior football ...
28/08/2026

Meet the Emperors, fundraising for APF one match at a time ⚽💜

West Didsbury and Chorlton Emperors are a junior football team based in Manchester who proudly wear the APF logo on their shirts.

Their sponsor Sevo have decided that instead of displaying their company logo, the Emperors should carry the APF logo for two seasons.

Sevo is a town planning consultancy founded by Stephen Morgan-Hyland, an APF Trustee and long-standing fundraiser who lost his dad to IPF in 2017.

Inspired by that connection, the Emperors have embraced the opportunity to raise awareness and funds for APF and have already raised ÂŁ820 towards their ÂŁ1,200 target, helped last season by a fantastic campaign that saw them earn promotion and reach a cup final. They start their new season on September 5.

"The more fundraisers APF has, the more good work it can do,” says Stephen. “My dad died from IPF after receiving a diagnosis that came too late for treatment. That's why APF's work is so important.”

Thank you to the Emperors, Sevo and everyone supporting APF. Together, we’re working towards a better future for everyone affected by pulmonary fibrosis.

NICE, the organisation that decides which treatments should be routinely available on the NHS in England, has issued dra...
27/08/2026

NICE, the organisation that decides which treatments should be routinely available on the NHS in England, has issued draft guidance saying that nerandomilast should not currently be routinely available for adults living with idiopathic pulmonary fibrosis (IPF) or progressive pulmonary fibrosis (PPF).

We are deeply disappointed by this draft decision. Like many people affected by pulmonary fibrosis, we have been hoping to see another treatment option become available.

But importantly, this is not NICE’s final decision.

The draft guidance is now open for consultation. NICE will consider further evidence and the responses it receives before making its final recommendation.

Action for Pulmonary Fibrosis will be responding formally. We will continue to make the case for greater treatment choice and ensure NICE fully understands the impact that side effects from existing treatments can have on people living with pulmonary fibrosis.

Read our full update: https://actionpf.org/news/article/nice-draft-decision

Could you Go Your Distance this September? Last year, Bradley ran 5km every day throughout September, raising more than ...
27/08/2026

Could you Go Your Distance this September?

Last year, Bradley ran 5km every day throughout September, raising more than ÂŁ1,000 for APF in memory of his dad, Paul.

Bradley says: “Sometimes people think they have to do something extraordinary to make a difference, but that’s not true. Even a small challenge can inspire others, generate vital support and contribute towards improving the lives of people affected by pulmonary fibrosis.”

This year, Bradley plans to run 8km every day throughout September.

Your challenge can be completely different. Choose a distance and activity that works for you.

Register now and tell us what you are planning: https://register.enthuse.com/ps/event/goyourdistance

Big or small, every action helps people affected by PF đź’ś

Talking PF: Planning for End of Life Wednesday 16 September, 3-4pm Planning ahead can feel difficult. Our free online we...
25/08/2026

Talking PF: Planning for End of Life

Wednesday 16 September, 3-4pm

Planning ahead can feel difficult. Our free online webinar will explore advance care plans, palliative care, wills and funeral plans in a sensitive and supportive environment.

Our panel will share expert information and personal insight, discuss the support available and answer questions.

Register here: https://bit.ly/APFwebinarSept16

Cannot join us live? Register anyway and we will send you a link to the recording.

Address

Studio 8, Stuart House, St Johns Street
Peterborough
PE15DD

Opening Hours

Monday 9:30am - 5pm
Tuesday 9:30am - 5pm
Wednesday 9:30am - 5pm
Thursday 9:30am - 5pm
Friday 9:30am - 5pm

Telephone

+441733839642

Website

Alerts

Be the first to know and let us send you an email when Action for Pulmonary Fibrosis posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to Action for Pulmonary Fibrosis:

Shortcuts

Share

Category