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Action for Pulmonary Fibrosis

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Action for Pulmonary Fibrosis

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💜 UK charity supporting people affected by pulmonary fibrosis. We're a UK charity who put patient support & research first.

Our vision: A world in which everyone living with pulmonary fibrosis has a better future. APF is a patient driven organisation, it is vital to us that our community is a safe space for all, regardless of background, sexuality, gender, disability, or race. We gain strength from the wide variety of backgrounds that people come with. We value your unique experience and want your voice to be heard.

03/11/2026

⭐ Meet our 2026 Summer Studentship researchers!

Gouri Nayathil and Amy Rivers spent eight weeks investigating pulmonary fibrosis (PF), supported by Action for Pulmonary Fibrosis and the British Association for Lung Research (BALR).

Gouri worked with Dr Robert Hall at the University of Nottingham to explore how certain genes may contribute to lung diseases, including idiopathic pulmonary fibrosis.

Amy worked with Dr Simon Cleary at King's College London to investigate a new way of examining lung tissue that could help researchers detect scarring more effectively.
By supporting opportunities like these, we're helping to inspire the next generation of respiratory researchers and encouraging more young scientists to pursue careers in lung research.

Bettina Schock, BALR Partnership Secretary, said:

“We vastly appreciate this important collaboration, which will increase the number of highly motivated respiratory researchers to improve the lives of people with pulmonary fibrosis.”

Read more about Gouri and Amy's research on our website: https://actionpf.org/news/article/summer-studentship-2026

02/11/2026

Lorna, Jamie and their dog Bertie took on the huge challenge of climbing Carn Mor Dearg and Ben Nevis in memory of Lorna’s brother, Iain, who died of pulmonary fibrosis (PF).

There were some nerve-wracking moments and a few unexpected twists along the way. But after two demanding days in the mountains, the trio completed their challenge!

Reflecting on the experience, Lorna said: "We were so pleased that the three of us had accomplished this feat in memory of my brother, Iain. It was a couple of days never to be forgotten."

A massive thank you to Lorna, Jamie and Bertie for taking on this incredible challenge and helping to shine a light on PF.

Feeling inspired? There are so many ways you can support Action for Pulmonary Fibrosis. From organising a quiz night to taking on a personal challenge, every effort helps us raise vital funds and awareness for people affected by PF: https://actionpf.org/get-involved/fundraising

30/10/2026

Do you know what benefits and support may be available to people affected by pulmonary fibrosis?

Join our Talking PF: Benefit Entitlement webinar to find out about the benefits you may be entitled to and where to start.

📅 Wednesday 18 November
⏰ 3-4pm

Hear from experts and people living with PF as they share their knowledge and personal experiences.

Register here: https://actionforpulmonaryfibrosis.beaconforms.com/form/71cf754b

Can't join us live? Register to receive the recording!

28/10/2026

❄️ Cold weather can bring extra challenges for people living with pulmonary fibrosis.

Our Senior ILD Nurse, Jo, shares some helpful tips for staying warm at home.

27/10/2026

A family from Leeds have completed an incredible series of fundraising challenges in memory of their much-loved mum, wife and grandma, Lou, who died in 2025 after being diagnosed with pulmonary fibrosis.

From 100 laps of Yeadon Tarn to a 110km ultramarathon, Lou's family have gone to extraordinary lengths and raised more than £10,000 for APF.

Daughter Karis said: “This fundraising journey comes from the hardest place imaginable. Losing Mum is still something I find extremely hard to digest. Mum was such a funny, witty person and she loved her family and friends more than anything.

“When she told me she had an incurable disease, we had never even heard of pulmonary fibrosis. From that moment, I knew I wanted to put those emotions into something good, so I found APF and decided I was going to fundraise for them.

“What started with the Leeds Marathon has grown into something our whole family and friendship group has got behind. Everyone has wanted to do something in Mum’s memory.

“We hope to keep going! We already have more family and friends planning challenges for 2027.”

A huge thank you to Karis, her family and friends for their fundraising efforts. 💜

Read the full story in the Yorkshire Evening Post: https://ow.ly/aHMv50ZYW7T

Want to fundraise for APF? Head to our website: https://ow.ly/QOPc50ZYW7S

26/10/2026

💜 Thinking about end of life planning can feel difficult, but having the right information and support can make a real difference.

Our recent webinar, Talking PF: Planning for End of Life covered why planning matters, what you may want to consider and where to find support.

Didn't see it live? It's now available to watch on YouTube: https://www.youtube.com/watch?v=CK0POiSLkXM

22/10/2026

Yesterday, we took your voices to Parliament.

Alongside people affected by pulmonary fibrosis, we spoke directly to MPs and Peers about what needs to change in PF care.

Our message was clear: people affected by PF need faster diagnosis, better support and fairer access to high-quality care closer to home.

More than 1,600 people in our community emailed their MP ahead of the event, reaching 520 of the 650 MPs. That’s 80 per cent of the House of Commons. Thank you to everyone who took action, and to those who joined us to share their experiences.

We shared findings from our 2026 State of the Nation report, highlighting the postcode lottery in care. We spoke with representatives and offices from Labour, the Conservatives, the Liberal Democrats and Independents across England, Scotland and Wales, and gave MPs clear action to take.

We asked MPs in England to support a cross-party letter calling on NHS England to finalise and publish updated national standards for specialist interstitial lung disease (ILD) services. We want these standards, known as the ILD service specification, completed during the changes taking place at NHS England.

A big thank you to Michelle Welsh MP and Mohammad Yasin MP for sponsoring our event.

Together, we’ll keep pressing for faster diagnosis, better support and fairer access to care.

22/10/2026

Gifts in Wills help shape the future of pulmonary fibrosis.

They fund more than one fifth of our work - supporting people affected by PF, driving research and advocating for change.

You could help make a lasting difference.

Find out more about leaving a gift to Action for Pulmonary Fibrosis in your Will: https://actionpf.org/get-involved/leave-a-gift-in-your-will

21/10/2026

🎄 Our 2026 Christmas cards have arrived!

Send love while supporting families affected by pulmonary fibrosis this festive season.

APF Christmas cards are on sale now.

Choose from four designs to let the people you love know you’re thinking of them.

Every card you buy helps us be there for more people living with pulmonary fibrosis and their families.

👉Shop our Christmas Card range now: https://actionpf.org/get-involved/shop

20/10/2026

It has been an encouraging month for pulmonary fibrosis research, with two promising clinical trial announcements offering hope for future treatments.

APF welcomes findings from an early-stage trial of taladegib as another step in the search for more effective treatments for IPF, following last week's announcement of results from a trial of admilparant.

The results showed that people receiving taladegib experienced improved lung function. Lung scans also showed improvements in measures of scarring and lung capacity.

Only headline findings from the trial have been announced so far. Full results are needed to understand the size of the benefit and the medicine’s side effects and what the findings could mean for people living with IPF.

Bradley Price, Director of Policy, Research and Involvement at APF, said: “To see promising results from two trials in the space of a month gives us real reason for optimism.

"Further research is needed, particularly for taladegib, but this progress shows why continued investment in pulmonary fibrosis research matters.

"We are proud to have helped support this trial in the UK. Above all, we thank the people who took part and the clinical teams who made it possible. Their contribution helps bring potential new treatments closer.”

APF will follow the research closely and keep our community informed.

Read the full story on our website: https://actionpf.org/news/article/taladegib-trial

Address

Studio 8, Stuart House, St Johns Street
Peterborough
PE15DD

Opening Hours

Monday	9:30am - 5pm
Tuesday	9:30am - 5pm
Wednesday	9:30am - 5pm
Thursday	9:30am - 5pm
Friday	9:30am - 5pm

Telephone

+441733839642

Website

http://www.actionpf.org/

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