Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis 💜 UK charity supporting people affected by pulmonary fibrosis. We're a UK charity who put patient support & research first.

Our vision: A world in which everyone living with pulmonary fibrosis has a better future. APF is a patient driven organisation, it is vital to us that our community is a safe space for all, regardless of background, sexuality, gender, disability, or race. We gain strength from the wide variety of backgrounds that people come with. We value your unique experience and want your voice to be heard.

It's Pulmonary Rehabilitation Awareness Week. Pulmonary rehabilitation is a programme of exercises and advice for people...
15/06/2026

It's Pulmonary Rehabilitation Awareness Week.

Pulmonary rehabilitation is a programme of exercises and advice for people who experience breathlessness. During the sessions, you'll learn how to manage your breathing to help with daily activities.

➡️ Scroll through our pictures to find out more about the benefits of pulmonary rehabilitation.

If you've done pulmonary rehabilitation, let us know in the comments! 👇

https://actionpf.org/information-and-support/pulmonary-rehabilitation

💜 A huge thank you to Marie, Nicholas and Judi who have kindly shared their experiences of being a carer to mark this ye...
12/06/2026

💜 A huge thank you to Marie, Nicholas and Judi who have kindly shared their experiences of being a carer to mark this year’s Carers Week.

Their stories offer valuable insights into the realities of caring for a loved one with pulmonary fibrosis (PF). You can read their full stories on our website: https://actionpf.org/news/article/carers-week-q-and-a

If you’re caring for someone with PF, remember that support is always available. You don’t have to navigate your caring journey alone. Head to our website for information and support options for your caring journey: https://actionpf.org/information-and-support/carer-family-friends

Could you take on a challenge to help raise vital funds for people affected by pulmonary fibrosis (PF)? After losing her...
11/06/2026

Could you take on a challenge to help raise vital funds for people affected by pulmonary fibrosis (PF)?

After losing her husband Dennis to idiopathic pulmonary fibrosis in 2024, Tara Roche Schiavon set herself an extraordinary challenge to climb 52 mountains and big hills in one year to raise awareness and funds for Action for Pulmonary Fibrosis (APF).

Dennis was a talented musician, charity worker and passionate advocate for bringing music to people from all walks of life. Dennis, Tara and their dog Eddie spent many happy years walking mountains and hills together. When PF took that away from him, Tara decided to climb them in his memory.

Now, despite her own health challenges, Tara is climbing mountains across the UK and beyond in Dennis’ memory as part of her campaign, ‘To Help Them Breathe.’

So far, Tara has:
🏔️ Climbed 16 mountains
💜 Raised almost £5,000
📣 Helped spread awareness of PF to countless people along the way

We are incredibly grateful for Tara’s passion and determination to help fund research into PF and support families affected by this disease.

Feeling inspired by Tara’s story? Take on your own challenge for Team APF. Whether it’s a walk, run, trek, cycle or something completely unique, every challenge helps us support people affected by PF.

Find your challenge today and help make a difference: https://www.actionpf.org/get-involved/fundraising

10/06/2026

💜 Marie, Judi and Nicholas have first-hand experience of supporting a loved one with pulmonary fibrosis (PF).

Marie cared for her husband, Mark, Judi cared for her friend, Pauline and Nicholas cares for his father. For Carers Week, we asked them what kind of support has helped them most on their caring journey.

Watch this video for their responses.

You can read their full stories on our website: https://actionpf.org/news/article/carers-week-q-and-a

💜 At Action for Pulmonary Fibrosis, we know caring for someone can be rewarding, but it can also be challenging - and no...
09/06/2026

💜 At Action for Pulmonary Fibrosis, we know caring for someone can be rewarding, but it can also be challenging - and no one should feel they have to do it alone.

We have an online Carers Support Group - a safe space where you can share your experience and find useful information.

📅 Next meeting: Tuesday 7 July at 2pm

Together, we’ll explore:
- practical support available for carers
- ways to maintain a fulfilling life alongside caring responsibilities

Find out more about our Carers Community:
https://actionpf.org/information-and-support/carers-community

💜 It’s Carers Week.  This week, we’re sharing the stories of Marie, Nicholas and Judi, who have first-hand experience of...
08/06/2026

💜 It’s Carers Week.

This week, we’re sharing the stories of Marie, Nicholas and Judi, who have first-hand experience of supporting a loved one with pulmonary fibrosis (PF).

Marie cared for her husband, Mark, Nicholas cares for his father and Judi cared for her friend, Pauline. We asked them what advice they would give to other carers supporting a loved one with PF.

Scroll through the images to read their responses, based on their own unique experiences.

Read Marie, Nicholas and Judi’s full stories on our website: https://actionpf.org/news/article/carers-week-q-and-a

⭐ This Volunteers Week, we want to celebrate our lovely community who give up their own time to volunteer at our events....
05/06/2026

⭐ This Volunteers Week, we want to celebrate our lovely community who give up their own time to volunteer at our events.

Volunteers like Marianne and Kayla, who recently joined a group of Action for Pulmonary Fibrosis (APF) volunteers as part of a bucket collection at Cardiff City Football Stadium in memory of Brent Davies, who sadly died of pulmonary fibrosis.

“I wanted to volunteer to give something back to the charity for all the help they have given me. It was something fun and different to do and raised money towards research as well, which will hopefully find a cure one day.” – Marianne.

“I volunteered at Cardiff Football Stadium to support APF. This cause is very close to my heart because my mum has PF, and I have seen first-hand the challenges it can bring. I helped raise awareness to help make a positive impact.” – Kayla, Marianne’s daughter.

💜 A huge thank you to all who support us at events. We really appreciate all that you do.

Do you have questions about managing a pulmonary fibrosis (PF) cough and want to ask the experts?💬 If so, join our upcom...
03/06/2026

Do you have questions about managing a pulmonary fibrosis (PF) cough and want to ask the experts?

💬 If so, join our upcoming webinar, Talking PF: Managing PF Cough Q&A.

📅 Date: Wednesday 15 July
⏰ Time: 3-4pm

We'll explore:
- What causes a PF cough
- Techniques for cough management

You'll also have the opportunity to have your questions answered by our panel of experts.

What to expect:
- Expert information from healthcare professionals
- Personal insights from people living with PF
- Information about available support and where to learn more

Register here: https://ow.ly/ZLSO50Z735m

Can't join us live? Register anyway and receive a link to the recording.

Did you know we have a support group for carers?Caregivers play a vital part in supporting loved ones with pulmonary fib...
28/05/2026

Did you know we have a support group for carers?

Caregivers play a vital part in supporting loved ones with pulmonary fibrosis, and your wellbeing matters too.

Our online Carers Support Group offers a welcoming space to connect with others, share experiences and talk with people who understand.

🗓️ Next meeting: Tuesday 2 June, 2-4pm
💜 We’d love you to join us!

Find out more here: https://actionpf.org/information-and-support/carers-community

Address

Studio 8, Stuart House, St Johns Street
Peterborough
PE15DD

Opening Hours

Monday 9:30am - 5pm
Tuesday 9:30am - 5pm
Wednesday 9:30am - 5pm
Thursday 9:30am - 5pm
Friday 9:30am - 5pm

Telephone

+441733839642

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