Shine - Spina bifida • Hydrocephalus • Information • Networking • Equality

Shine - Spina bifida • Hydrocephalus • Information • Networking • Equality Shine provides specialist support throughout the life of anyone living with spina bifida, hydrocephalus, normal pressure hydrocephalus, and related conditions.
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Want to join us? Become a Shine Member at www.shinecharity.org.uk/jointoday (it's free to join!)


HOUSE RULES
To help create an open and inclusive experience for users of this Shine page we ask that you observe the following house rules:

- This page is aimed at users from the community, Shine members and stakeholders.
- You will not submit information that is, or is likely to be, discri

minatory, hateful, false, inaccurate, threatening, defamatory, abusive, obscene, indecent, seditious, offensive, pornographic, harassing, profane, sexually oriented, invasive of a person's privacy, liable to incite racial hatred, menacing, scandalous, inflammatory, blasphemous, in breach of confidence, or which may cause annoyance or inconvenience or otherwise be a breach of the law.
- You will show respect and courtesy at all times to other users.
- You will not use copyrighted material unless the copyright is owned by yourself or you have obtained all necessary licenses and/or approvals.
- You will not carry out or encourage conduct that would be considered a criminal offence, give rise to civil liability, or otherwise be contrary to the law or infringe the rights of any third party, in the UK or any other country in the world.
- You will not make any postings that would constitute chain letters, pyramid schemes or other forms of solicitation.
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- You will not post content that violates any copyright.
- You will not make a posting that would be technically harmful (including without limitation hacking, the introduction of computer viruses, Trojan horses, worms, harmful components, corrupted data or other malicious software).
- You agree not to use the page for spamming.
- You will use your real name and not adopt a user name which is inappropriate or offensive.
- You agree that you use this page at your own risk and that the site owners are not responsible for any of the material posted.
- Any posting only gives the views of the author of the posting and does not reflect necessarily the views of Shine and therefore you agree that we cannot and will not be held responsible for the contents, accuracy or validity of the postings in any manner whatsoever.
- You agree that you are solely responsible for the content of your postings.
- You agree that Shine will remove any material it chooses entirely at its discretion and without prior consent of the author.
- You agree that the responsibility for your postings rests solely with yourself and you will indemnify Shine in respect of any costs, expenses, losses, damages or claims made as result of any claim based upon any posting made by yourself.
- You agree that Shine is not obliged to oversee, monitor or moderate postings. If you consider that any posting breaches these terms, please let us know by emailing us at [email protected] and we will try to remove the postings within a reasonable time.

Life can get busy, and it's easy to go long stretches without checking in on your mental wellbeing. Our Health Team run ...
23/06/2026

Life can get busy, and it's easy to go long stretches without checking in on your mental wellbeing.

Our Health Team run a 5 week online course, 'Shine On Wellbeing', giving you the dedicated space to assess your current strategies, discover new ones, and make meaningful changes. Some approaches you may have tried before, while others could be new to you.

In addition to learning valuable tools for mental wellness, you'll connect with fellow Shine members, building a supportive space where progress is shared and celebrated.

Take a moment to reflect on your wellbeing. Find out more and register your interest now, the next one starts on 24th July 👉 https://ow.ly/CPv050Zfin8

It's

As temperatures soar this week, taking simple steps can help prevent serious health risks such as dehydration, heat exha...
22/06/2026

As temperatures soar this week, taking simple steps can help prevent serious health risks such as dehydration, heat exhaustion, and heatstroke.

The NHS and British Red Cross both have great information for how to keep yourself and your home safe 👇

NHS Heatwave Advice: https://ow.ly/aR1t50Zfgea

British Red Cross Heatwave Advice: https://ow.ly/NVpl50Zfge6

Swipe to read some important considerations for Shine members 👉

💛 We're loving your GO YELLOW photos - keep them coming! 📸 Please tag  and use  🌞 The sun is shining so brightly - perfe...
19/06/2026

💛 We're loving your GO YELLOW photos - keep them coming! 📸
Please tag and use

🌞 The sun is shining so brightly - perfect day to wear yellow!

This year is Shine's 60th anniversary - what a perfect opportunity to get involved and Go Yellow or donate to Shine today 👉 shinecharity.org.uk/donate

Every pound you raise helps Shine to continue providing essential specialist support to the people who need us most. You can find out more about the difference Shine makes here 👉 shinecharity.org.uk/impact

It's today! Join us and Go Yellow for Shine!We are shining a light on Shine and celebrating our amazing community, and -...
19/06/2026

It's today! Join us and Go Yellow for Shine!

We are shining a light on Shine and celebrating our amazing community, and - most importantly - raising the vital funds that keep our specialist advice and support services running.

Let's make a huge splash of YELLOW across social media together! 🌻🍋🌟💛🍌🐥🧀🌞🐝

We'd love to see your photos - don't forget to tag and use

Or you can simply donate now 👉 shinecharity.org.uk/donate

A donation to Shine goes a long way because Shine’s support is lifelong. 🌟"I wish more people understood how hydrocephal...
18/06/2026

A donation to Shine goes a long way because Shine’s support is lifelong. 🌟

"I wish more people understood how hydrocephalus affects people and how debilitating it can be to live with. The support you can receive from Shine is a massive help."

After finding Shine in 2022, and receiving the information and support she needed for this life-changing health issue, Shine member Hayley organised a coffee morning and a ‘hats on’ spin class to help fundraise!

To read Hayley's full story, visit: https://www.shinecharity.org.uk/news/news/post/357-

You can find out more about supporting Shine here 👉 www.shinecharity.org.uk/getinvolved
💛 Or if you would prefer, please make a difference by donating here: www.shinecharity.org.uk/donate

📢 Shout out to our Shine adult members!Shine members have contributed to an important survey sharing their experiences o...
18/06/2026

📢 Shout out to our Shine adult members!

Shine members have contributed to an important survey sharing their experiences of continence care and support.

Conducted by the Urology Trade Association in partnership with the Spinal Injuries Association and The Urology Foundation, the report draws on real-life insights from people living with continence conditions to highlight the impact on dignity, independence and quality of life, as well as the challenges many face in accessing appropriate care and products. The findings will be used to try and make continence care services much better, calling for services that listen to individual needs, and then tailor support and products accordingly.

👉 The full report is here:https://urologytradeassociation.com/wp-content/uploads/2026/06/UTA-Patient-Dignity-Experiences-and-Outcomes-in-Continence-Care-report.pdf

👉 For more information, visit: https://urologytradeassociation.com/new-uk-report-calls-for-rethink-of-continence-care-as-nhs-reform-accelerates/

⭐ Thank you to everyone who has already signed up to Go Yellow for Shine this Friday, 19th June!We look forward to seein...
17/06/2026

⭐ Thank you to everyone who has already signed up to Go Yellow for Shine this Friday, 19th June!

We look forward to seeing how YOU Go Yellow! 🌻
📸 Don’t forget to share your photos by using the hashtag .

As demand for our services continues to rise, donations and fundraising help keep Shine’s work to inform, support and connect our members in operation.

We appreciate every single person who supports us, however you choose to do so - head to our website to find out how 👉 www.shinecharity.org.uk/goyellow
💛 Or if you would prefer, please make a difference by donating here: www.shinecharity.org.uk/donate

A big THANK YOU and congratulations to our fantastic participants in this year's London Landmarks Half Marathon! 💛  has ...
16/06/2026

A big THANK YOU and congratulations to our fantastic participants in this year's London Landmarks Half Marathon! 💛

has raised over £15,000 - the most ever for Shine in this event! Thank you so much! 👏

Would you love to take on this exceedingly popular event in April 2027?
🟡 The ballot is now open: https://llhm.co.uk/ballot-27
🟡 Or guarantee your place on the start line now with one of our charity places: https://tinyurl.com/27LLHM4Shine

The London Landmarks Half Marathon encourages disabled participants, including wheelchair users - find out more about accessibility for this event on the links above.

The Fundraising Team at Shine love any opportunity to have a laugh and some cake! 🍰 They have entered into the spirit of...
15/06/2026

The Fundraising Team at Shine love any opportunity to have a laugh and some cake! 🍰 They have entered into the spirit of this week and have had some fun - and silliness here at Shine HQ! 💛

🌻Go Yellow For Shine is this Friday, 19th June - wherever you are, whatever you're doing, get involved - there's still time! Find out more 👉 shinecharity.org.uk/goyellow

Don't forget - we'd love to see what you get up to! Please share using

Address

Unit 4, The Forum, Minerva Business Park
Peterborough
PE26FT

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+441733555988

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