Verity - PMOS UK

30/09/2026

As we close out the very first PMOS Awareness Month following the name change from PCOS earlier in the year, we would love to thank everyone that played a part in helping raise awareness this month.

And special thanks also to everyone that took part in our fundraiser - you all raised more than £1500 for the charity 🙌👏🙏. Thank you!

Just one of the fundraisers we want to shine a spotlight on is Olivia ( on IG), who got diagnosed this year and has raised over £400 in her month long challenge!! Drop your support below 👇

28/09/2026

At Verity, we are always advocating for the patient voice as strongly as we can.

This PMOS Awareness Month, here are just a few things that we have been working on.

For more information and to sign up for our challenge this month, visit our website -
https://www.verity-pcos.org.uk/pcos-awareness-month.html

15/09/2026

One of our core values as a charity is to represent the patient voice as strongly as we can. The consultation on the upcoming NICE Guidelines for PMOS was no exception.

There's power in numbers, so we asked you to complete a fairly detailed survey giving us your feedback on the draft guidelines — so we could feed that back alongside the charity's own views.

Here's just a few highlights of what you told us:

💜 78% say the draft guidelines improve on the care you get now
💜 94% don't believe they will actually be delivered
💜 97% say excess hair, hair loss and acne are medical — not cosmetic
💜 Of the 210 of you who wanted a GLP-1 medicine, 4 got one on the NHS
💜 91% of respondents from global majority backgrounds want BMI thresholds adjusted for ethnicity
💜 Only 7 of 315 had ever been asked whether your beliefs affect your treatment
💜 65% have paid privately for care the NHS wouldn't fund

What came out was evidence so strong we wanted to make sure it gets noticed. So we've poured it all into a full and detailed report, which we're now sharing with the APPG for PMOS and with the people who make policy, pathway and funding decisions.

You can read, download and share the full report here 👉 www.verity-pcos.org.uk/nice-consultation

The official NICE Guidelines for PMOS are expected in December. When they land, you can bet we'll be analysing them to see how the community's feedback was considered, and what they mean for PMOS care going forward.

Thank you to every one of you who took part.

The Verity team 💜

12/09/2026

It's not too late to join our 30-day challenge for PMOS Awareness Month, raising funds for Verity - PMOS UK.

You choose your challenge - walking, dancing, meditating- it's up to you.

Sign up any day in September, raise over £30 and receive a Verity Tote Bag as a thank you.

For more information, visit our website -
https://www.verity-pcos.org.uk/pcos-awareness-month.html

01/09/2026

It’s the start of # PMOSAWARENESS month so why not challenge yourself

30/07/2026

📣 CALL TO ACTION! PLS TAKE THE SURVEY & SHARE 📣

The draft NICE guideline for PMOS is open for consultation — and because it’s still a DRAFT, your feedback can genuinely shape the final version. So we’ve built a survey to gather our community’s experiences, and we’ll put your answers straight to NICE as part of Verity’s official response.

There’s power in numbers.

Whether it’s GLP-1s and weight, fairer fertility access, skin and hair, getting diagnosed, unlicensed medications or mental health support — your voice on it matters. Not sure your experience “counts”? It does. That’s exactly what we need to hear.

It’s anonymous, and no experience is too big or too small.

👉 Take the survey: https://forms.gle/HLTUU1ZZWCoHhfZf9
🗓️ Open until Friday, 07 August at 23:59

You’ve waited a long time to be heard on PMOS. This is the moment. 💜

The Verity team 💜

25/07/2026

🟣 RESEARCH REQUESTS 🟣

New research requests, click the links to take part:

🟣Kings College London exploring experiences of healthcare services: https://blog.verity-pcos.org.uk/2026/07/25/research-request-have-you-had-positive-or-negative-experiences-with-healthcare-services/

🟣University of Buckingham exploring chronic pelvic pain https://blog.verity-pcos.org.uk/2026/07/25/research-request-do-you-live-with-chronic-pelvic-pain/

🟣University of Reading exploring engagement in help seeking behaviours: https://blog.verity-pcos.org.uk/2026/07/25/research-request-how-do-young-women-engage-with-help-seeking-behaviours-for-pcos/

🟣University of Bath exploring PMOS and your relationship with food: https://blog.verity-pcos.org.uk/2026/07/25/research-request-is-your-diagnosis-impacting-your-relationship-with-food/

23/07/2026

pmos care is featured as something to address!

From proper accountability for birth trauma to better menopause care, here are our recommendations for Yvette Cooper. Tap to read

22/07/2026

Yesterday we were delighted to meet the Women’s Health Minister, Baroness Merron, and the incredible Chair of the APPG on PMOS, .

The Minister thanked Verity — and every one of you who shared your lived experience with us. Your stories directly shaped the APPG’s report, “Breaking the Cycle: Addressing Systemic Failures in PCOS Diagnosis and Management,” and she told us this report is being used to help inform and shape policy.

We’re grateful to the work of members of the APPG and for hearing our community’s voices and helping to bring about change.

We know that on the ground — in your own appointments — it can still feel like nothing is changing. Systemic change is slow, and often invisible from where you’re standing. But it’s exactly this work that brings change that is real and lasting.

We look forward to continuing to work alongside the Minister and her teams at the Department of Health.

You can read the report, or help support the running costs of this work, here
👉 www.verity-pcos.org.uk/appg

21/07/2026

Verity partook in this research as patient advocates as to the health experience in the UK - gives good background as to why the change in name is so important to consider the lifelong aspects

PMOS, formerly PCOS, is linked to higher rates of heart disease and blood clots that can cause heart attacks and strokes.