Verity - PMOS UK

01/09/2026

It’s the start of # PMOSAWARENESS month so why not challenge yourself

30/07/2026

📣 CALL TO ACTION! PLS TAKE THE SURVEY & SHARE 📣

The draft NICE guideline for PMOS is open for consultation — and because it’s still a DRAFT, your feedback can genuinely shape the final version. So we’ve built a survey to gather our community’s experiences, and we’ll put your answers straight to NICE as part of Verity’s official response.

There’s power in numbers.

Whether it’s GLP-1s and weight, fairer fertility access, skin and hair, getting diagnosed, unlicensed medications or mental health support — your voice on it matters. Not sure your experience “counts”? It does. That’s exactly what we need to hear.

It’s anonymous, and no experience is too big or too small.

👉 Take the survey: https://forms.gle/HLTUU1ZZWCoHhfZf9
🗓️ Open until Friday, 07 August at 23:59

You’ve waited a long time to be heard on PMOS. This is the moment. 💜

The Verity team 💜

25/07/2026

🟣 RESEARCH REQUESTS 🟣

New research requests, click the links to take part:

🟣Kings College London exploring experiences of healthcare services: https://blog.verity-pcos.org.uk/2026/07/25/research-request-have-you-had-positive-or-negative-experiences-with-healthcare-services/

🟣University of Buckingham exploring chronic pelvic pain https://blog.verity-pcos.org.uk/2026/07/25/research-request-do-you-live-with-chronic-pelvic-pain/

🟣University of Reading exploring engagement in help seeking behaviours: https://blog.verity-pcos.org.uk/2026/07/25/research-request-how-do-young-women-engage-with-help-seeking-behaviours-for-pcos/

🟣University of Bath exploring PMOS and your relationship with food: https://blog.verity-pcos.org.uk/2026/07/25/research-request-is-your-diagnosis-impacting-your-relationship-with-food/

23/07/2026

pmos care is featured as something to address!

From proper accountability for birth trauma to better menopause care, here are our recommendations for Yvette Cooper. Tap to read

22/07/2026

Yesterday we were delighted to meet the Women’s Health Minister, Baroness Merron, and the incredible Chair of the APPG on PMOS, .

The Minister thanked Verity — and every one of you who shared your lived experience with us. Your stories directly shaped the APPG’s report, “Breaking the Cycle: Addressing Systemic Failures in PCOS Diagnosis and Management,” and she told us this report is being used to help inform and shape policy.

We’re grateful to the work of members of the APPG and for hearing our community’s voices and helping to bring about change.

We know that on the ground — in your own appointments — it can still feel like nothing is changing. Systemic change is slow, and often invisible from where you’re standing. But it’s exactly this work that brings change that is real and lasting.

We look forward to continuing to work alongside the Minister and her teams at the Department of Health.

You can read the report, or help support the running costs of this work, here
👉 www.verity-pcos.org.uk/appg

21/07/2026

Verity partook in this research as patient advocates as to the health experience in the UK - gives good background as to why the change in name is so important to consider the lifelong aspects

PMOS, formerly PCOS, is linked to higher rates of heart disease and blood clots that can cause heart attacks and strokes.

09/07/2026

Yesterday Verity joined the APPG on PMOS (PCOS) for its latest roundtable, focused on one thing: implementation of the name.

Because changing the name was never the end point, it is the unlock for what comes next — better data and coding to drive research, fairer access to treatment funding and care pathways, more research and updated curriculums so the next generation of clinicians understands this condition properly.

We heard updates from the Department of Health and Social Care, NHS England, NICE, the General Medical Council and the Royal College of Nursing on what each is doing on PMOS. And Verity was there to do what we do — bring the lived experience into the room. Our message was simple: do more, do it faster. We have decades of ground to make up.

We also reminded the room of the inequalities in care people with PMOS face, and of the Women’s Health Strategy’s commitment to preventative care — a commitment that is still falling far short for PMOS.

It was a genuinely productive discussion, and we stand ready to work with each of these agencies, one by one and together, to make real inroads in PMOS care in the UK.

Our thanks to Michelle Welsh MP and the whole APPG team for creating the space for these necessary — and long overdue — conversations.

01/07/2026

📣 Another landmark moment for the PMOS community — and one we've spent over a decade fighting for!

The draft NICE guideline for PMOS (polyendocrine metabolic ovarian syndrome, previously PCOS) is now open for consultation. NICE — the National Institute for Health and Care Excellence, the body that sets clinical standards for the NHS — has set out how PMOS should be diagnosed and managed in the UK — for a condition that affects around 1 in 8 women and girls (that's over 3.1 million!) and has been under-diagnosed and inconsistently managed for far too long.

Swipe through to read some of the highlights.

One really important thing to remember: this is a DRAFT. Nothing is set in stone. The recommendations can still change in response to the feedback NICE receives during this consultation — which is exactly why your voice matters right now. It's open until 11 August, with the final guideline due December 2026.

Whilst the Guideline is for the UK, it will be for each devolved nation and its individual health boards to adopt in practice. So even once it's published, we'll keep pushing for its implementation — consistently, right across the UK.

Verity has campaigned for a NICE guideline for over 15 years. As a registered stakeholder, we made sure the patient voice was heard when the Guideline's scope was set; one of our Trustees sits on the Guideline Committee; and during this consultation, we'll be collating your feedback to put directly to NICE.

It's part of the bigger change we've been driving together:
- From shaping the national research agenda with the James Lind Alliance
- To influencing policy in Parliament through the APPG
- To helping bring about the renaming of the condition itself
We'll be sharing how you can add your voice to our response very soon. In the meantime, head to the link below to have a read through.

https://www.nice.org.uk/guidance/indevelopment/gid-ng10436/consultation/html-content-9

The Verity team 💜

22/06/2026

Did you know your ovaries and your brain are in constant conversation? 🧠

And when that conversation is disrupted, it drives the hormone imbalance behind PMOS/PCOS?

This condition was never just about the o***y. Here leading PMOS scientist Professor Helen Mason explains the brain–o***y connection.

👉 Want to understand more about the hormones (polyendocrine — many hormones) behind PMOS? Watch our full webinar "PCOS and Your Hormones":

www.verity-pcos.org.uk/webinars