Verity - PMOS UK

16/05/2026

ATT: all healthcare professionals, nurses, medical students and those in allied health

The name changed this week. Your patients noticed. 💜

If the announcement of PMOS has highlighted gaps in your knowledge — or simply reminded you how vast and complex this condition is — we have two days of expert-led CPD that will help.

Verity’s online course this Thursday (21st) and Friday (22nd) covers everything from diagnosis and adolescent management to cardiovascular risk, menopause, mental health, metabolic screening and the name change itself.

Can’t make it live? Register anyway — everything is on demand for 12 months.

🎓 CPD accredited 16 hrs
💻 Live online Thu & Fri 21-22 May
📲 On demand for 12 months
💜 £150 | Discounts for students, nurses and allied health

All proceeds support Verity’s charitable work in PMOS advocacy.

Link to register:
https://lnkd.in/ej2cXz83

👇👇 AGENDA IN COMMENTS

14/05/2026

💜 We heard you.

The PCOS to PMOS name change has raised so many questions — and none more than this one:

"But what about my cysts?"

If the name change has triggered questions for you around cysts, ovarian cysts, follicles, your diagnosis or what this all means — this one is for you.

This Friday we're joined by Professor Terhi Piltonen — one of the world's foremost PMOS experts and current President of AE-PCOS, the international society of leading PCOS researchers and clinicians worldwide — for a free live webinar answering exactly that.

🎙️ Cyst Buster: Follicle vs Cyst | From PCOS to PMOS
📅 Friday 15 May | 8:00–9:00am UK 🌍 Free | Global | Online 🎥 Can't make it live? It will be recorded and available on our website

👇 Registration link in comments

12/05/2026

More explanation on the need for change and the process.

Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.

12/05/2026

Polyendocrine Metabolic Ovarian Syndrome (PMOS) is the new name for the condition
previously known as Polycystic O***y Syndrome (PCOS) — a change that accurately reflects the condition, which affects 1 in 8 women, or more than 170 million worldwide.

The changes follows 14 years of research and advocacy and the largest global engagement ever for a medical name change, with more than 22,000 survey responses, workshops with women who have lived experience, health professionals, and the involvement of 56 patient organisations and professional societies around the world, including ourselves.

The term PCOS focused on “cysts” and ovaries, even though women don’t have cysts. PMOS is
a long term endocrine/ hormonal and metabolic condition, and the misunderstanding has
contributed to delayed diagnosis, poor quality of care and lack of research and funding.
Women living with the condition led the call for change — and their voices matter ❤️
86% of patients and 76% of health professionals support the name change.
The change to PMOS will improve understanding, awareness, earlier diagnosis, better care and
more research. We recognise that this change will take time and there is a 3 year transition period where both names will co-exist together - the work doesn’t stop here!

12/05/2026

11/05/2026

The new name for PCOS is being announced tomorrow at 10 am UK time. Alongside leading PCOS experts, Verity will be on stage tomorrow at European Congress of Endocrinology announcing the new name and what this means for patients. Stay tuned to our socials! .

15/04/2026

Today Verity attended the launch of the renewed Women’s Health Strategy for England — something we have been eagerly awaiting.

At the launch, Health and Social Care Secretary Wes Streeting announced a number of commitments that could positively impact those living with PCOS, including:

• Shorter waits for gynaecology care
• Faster diagnosis and treatment pathways through neighbourhood women’s health services
• Better digital access to women’s health pathways via NHS Online
• A commitment to tackle medical misogyny and ensure women’s voices are heard
• Improved standards around pain relief and informed consent for procedures

Encouragingly, PCOS was specifically referenced by Wes Streeting in his speech (in our Highlights).

This is significant. Prior to the incredible work of the APPG on PCOS (and especially the Chair Welsh MP), alongside Verity’s sustained advocacy, PCOS was rarely—if ever—mentioned in national women’s health policy discussions of this kind.

Things are changing.

But women’s health is about far more than gynaecology and menstrual health alone. It must reflect the full breadth of complex, long-term conditions that impact women across their lives — including endocrine and metabolic conditions like PCOS.

PCOS affects over 3 million women and girls in the UK — more than some of the conditions it is often grouped alongside — yet is referenced just three times in this 90-page strategy, and only in broad lists alongside other conditions.

For context: endometriosis is mentioned 27 times and fibroids 8 times.

We need time to review the strategy in full, but our initial view is clear:

Recognition is welcome.
Action is what matters.

We will continue pushing to ensure PCOS receives the attention, prioritisation and investment it deserves.

You can read the strategy here:
https://www.gov.uk/government/publications/renewed-womens-health-strategy-for-england

05/04/2026

🟣 RESEARCH REQUESTS 🟣

Two new research requests, click the links to find out more:

🟣University of Edinburgh are exploring eating and body image: https://blog.verity-pcos.org.uk/2026/04/05/research-request-how-does-pcos-affect-our-relationship-with-eating-and-body-image/
🟣University of Gloucestershire are exploring the use of health information: https://blog.verity-pcos.org.uk/2026/04/05/research-request-what-are-the-implications-of-seeking-unreliable-health-information-in-adults-with-pcos/

20/03/2026

Verity has spent over a decade campaigning for the name Polycystic O***y Syndrome (PCOS) to change. Because for too long, it has been misleading, confusing and yes, harmful.

We’re proud to share that a new name has now been agreed — through global consensus between patients and healthcare professionals.

It will be announced very soon, and you can count on us telling you as soon as we can!

This is more than a name change. It’s a step toward better understanding, earlier diagnosis, more appropriate care, and recognition of the full complexity of this condition. A name that reflects the lived experience of millions. An accurate name.

While we can’t share it just yet… we’d love to hear from you 👇

💬 Drop a word or emoji that sums up how you feel about a new name coming

15/03/2026

Verity were pleased to present at the recent British Society for Endocrinology patient session with Cardiff University on our JLA PCOS research project in identifying the top ten outcomes for PCOS. Read more about the JLA here https://www.verity-pcos.org.uk/jlapcos.html