Verity - PMOS UK

15/06/2026

🟣 RESEARCH REQUESTS 🟣

Three new research requests, click the links to find out more:

🟣 Kings College London exploring how women with PMOS understand the condition and symptoms: https://blog.verity-pcos.org.uk/2026/06/15/research-request-how-do-women-with-pmos-pcos-understand-and-experience-their-condition-and-care/

🟣 Liverpool John Moores exploring support during diagnosis and treatment: https://blog.verity-pcos.org.uk/2026/06/15/research-request-how-supported-did-you-feel-during-your-pmos-pcos-diagnosis-and-treatment/

🟣 University of Exeter exploring how PMOS shapes connections and a sense of belonging: https://blog.verity-pcos.org.uk/2026/06/15/research-request-does-living-with-pmos-shape-your-connections-and-sense-of-belonging/

13/06/2026

We have been at the today talking about - great women’s health festival about all sorts of health matters

07/06/2026

🟣 RESEARCH REQUESTS 🟣

Three research requests, click the links to take part

🟣University of Leeds exploring AI use in management: https://blog.verity-pcos.org.uk/2026/06/07/research-request-is-ai-becoming-part-of-how-women-managed-pcos-pmos/

🟣Kings College London exploring diagnosis, support and management: https://blog.verity-pcos.org.uk/2026/06/07/research-request-why-do-women-with-pmos-pcos-struggle-with-diagnosis-support-and-long-term-management/

🟣Leeds Beckett University exploring online dietary advice: https://blog.verity-pcos.org.uk/2026/06/07/research-request-have-you-ever-utilised-online-dietary-advice-for-pmos-pcos/

06/06/2026

With the recent name change from PCOS to PMOS, many of you had questions about the difference between the follicles we see in PMOS and true ovarian cysts — and just why the name had to change. 💜

So, we spoke with world-renowned PMOS expert Professor Terhi Piltonen who explains the difference, including the news that those with PMOS are NO more likely to develop ovarian cysts than someone without the condition (1).

Save this and share it wherever you see someone confused about the difference between follicles and ovarian cysts.

This clip is taken from our full Cyst Buster webinar — watch the complete Q&A at 👇
🌐 www.verity-pcos.org.uk/webinars

For now the official diagnostic term for the appearance of these follicles is called Polycystic Ovarian Morphology (PCOM), but a name change process is currently underway to also change this to an scientifically accurate name.

Reference:
(1) https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2848540

04/06/2026

NICE — the National Institute for Health and Care Excellence, the body that sets clinical standards for the NHS — has formally recognised the new name, listing the forthcoming guidelines under Polyendocrine Metabolic Ovarian Syndrome (PMOS), due for publication in December 2026.

We believe this makes NICE the first national health authority in the world to formally adopt the new name.

Why does this matter? NICE sits at the top of the clinical standards hierarchy in the UK. When NICE uses the name PMOS, it flows down through NHS commissioners, Integrated Care Boards and ultimately to the healthcare professionals who see patients every day. That is how a name becomes embedded in clinical practice — not overnight, but systematically, from the top down.

The name change is not just words. It is already moving through the systems that shape care.

16/05/2026

ATT: all healthcare professionals, nurses, medical students and those in allied health

The name changed this week. Your patients noticed. 💜

If the announcement of PMOS has highlighted gaps in your knowledge — or simply reminded you how vast and complex this condition is — we have two days of expert-led CPD that will help.

Verity’s online course this Thursday (21st) and Friday (22nd) covers everything from diagnosis and adolescent management to cardiovascular risk, menopause, mental health, metabolic screening and the name change itself.

Can’t make it live? Register anyway — everything is on demand for 12 months.

🎓 CPD accredited 16 hrs
💻 Live online Thu & Fri 21-22 May
📲 On demand for 12 months
💜 £150 | Discounts for students, nurses and allied health

All proceeds support Verity’s charitable work in PMOS advocacy.

Link to register:
https://lnkd.in/ej2cXz83

👇👇 AGENDA IN COMMENTS

14/05/2026

💜 We heard you.

The PCOS to PMOS name change has raised so many questions — and none more than this one:

"But what about my cysts?"

If the name change has triggered questions for you around cysts, ovarian cysts, follicles, your diagnosis or what this all means — this one is for you.

This Friday we're joined by Professor Terhi Piltonen — one of the world's foremost PMOS experts and current President of AE-PCOS, the international society of leading PCOS researchers and clinicians worldwide — for a free live webinar answering exactly that.

🎙️ Cyst Buster: Follicle vs Cyst | From PCOS to PMOS
📅 Friday 15 May | 8:00–9:00am UK 🌍 Free | Global | Online 🎥 Can't make it live? It will be recorded and available on our website

👇 Registration link in comments

12/05/2026

More explanation on the need for change and the process.

Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.

12/05/2026

Polyendocrine Metabolic Ovarian Syndrome (PMOS) is the new name for the condition
previously known as Polycystic O***y Syndrome (PCOS) — a change that accurately reflects the condition, which affects 1 in 8 women, or more than 170 million worldwide.

The changes follows 14 years of research and advocacy and the largest global engagement ever for a medical name change, with more than 22,000 survey responses, workshops with women who have lived experience, health professionals, and the involvement of 56 patient organisations and professional societies around the world, including ourselves.

The term PCOS focused on “cysts” and ovaries, even though women don’t have cysts. PMOS is
a long term endocrine/ hormonal and metabolic condition, and the misunderstanding has
contributed to delayed diagnosis, poor quality of care and lack of research and funding.
Women living with the condition led the call for change — and their voices matter ❤️
86% of patients and 76% of health professionals support the name change.
The change to PMOS will improve understanding, awareness, earlier diagnosis, better care and
more research. We recognise that this change will take time and there is a 3 year transition period where both names will co-exist together - the work doesn’t stop here!

12/05/2026