The Harley Staples Cancer Trust

24/06/2024

Another throwback picture, 2012 the longest ever cricket match organised by the fabulous Hughes. Made it into the Guiness Book of Records.

16/06/2024

Who remembers this from 2012 😃

08/06/2024

16/12/2023

Wow!! Tonight the Staples family have been treated to the most magical evening of Christmas spirit and music. Rutland Ladies choir you have blown us away with your beautiful singing and professionalism. Huge thanks to Anna and Andrew Kennedy for choosing The Harley Staples Cancer Trust to raise money for at your Celebration of Christmas 2023. We've had a wonderful time, many thanks for asking us along. Wow Andrew you CAN sing xx 🙏

07/11/2023

Well lovely supporters of The Harley Staples Cancer Trust, I know that we can be very quiet but believe me we have lots going on with the charity and our research projects. This week we had a teams meeting with an incredible lady called Dr Lisa Russell. We have been put in touch with her by our friends at Children's Cancer and Leukaemia Group - CCLG. Now bear with me because this post may be long but it is so important.

For many years Lisa has been working on rare children's cancers that are very similar to what Harley had. When Harley was diagnosed, the consultants had to decide which treatment program to put him on, did he have a lymphoma or a leukaemia and as the ridiculously long title of his illness suggests, B cell acute lymphoblastic leukaemia Burkitt type, it sounds hard to know. We now know that to this day, consultants don't know. They are guessing which treatment programmes to put children on, which as you can imagine astounded us!

Now let me just say that I've never doubted Harley's consultant and I know that he always did what he thought was the best he could for Harley. But at the same time he was guessing which treatment program to use.

Now when Lisa found this out she immediately questioned this and asked all the questions as to what research is needed to find this answer. She spent the first 7 years of her research looking into just this at her own time and expense with no funding at all. As a result of her research Lisa has since discovered the point at which the b cells start to go wrong, and the timing of this is the deciding factor as to whether a child needs a leukaemia or lymphoma treatment program or both. Believe me, this is an incredible discovery and will make a massive difference to the treatment for any child suffering from these types of rare cancer's.

Research is ongoing and trials are in place as we speak but I can't stress enough how important funding for research projects is and why we at The Harley Staples Cancer Trust are funding research projects into rare children's cancer's.

Please if you're considering any fundraising, any crazy event, a charity donation instead of Christmas cards/pressies, please consider donating to us. You can donate via Harley Staples at PayPal or directly to Harley's account, just message me for details. All money from donations will be going to incredibly important cancer research.

Thank you for reading and thanks for your support xx

11/10/2023

Our latest research project into rare children's cancer's is now under way. Thank you to The Rutland Times and The Leicester Mercury for featuring The Harley Staples Cancer Trust in the last week and helping to spread the word. We are very grateful 😊

05/10/2023

Whissendine Church of England Primary School have chosen The Harley Staples Cancer Trust as their charity to support this year. Gabriel and Annabelle had to stand up in front of the whole school and tell everyone all about Harley, their big brother and all about our charity. I was so very proud of them. Today the whole school are wearing their pyjamas to raise funds towards our next research project into rare children's cancer's. I hope that you're all feeling cosy and warm today Whissendine school. Thank you to the Young Governors for choosing Harley's charity. Xx