The Harley Jae Trust

The Harley Jae Trust Supporting children with life limiting, and life changing conditions in Nottinghamshire. On February 22nd 2013, Harley Jae sadly passed away at the age of 7.

Providing resources, equipment and well-being services 🩵 1160377
https://tr.ee/78i1mWh5vA The Harley Jae Trust was established in 2006 as a trust fund for a little boy called Harley Jae Blanchard-Rafter. He was born with a very rare neurological condition that left him with profound and multiple learning difficulties, severe epilepsy and physically disabled. Harley’s condition meant that he neede

d a high level of care which included medical care, therapies and equipment to give him the best possible opportunity to thrive and maintain a good quality of life. Maintaining good quality of life is an on-going battle for children with life limiting and life changing conditions and their families, so being to access services and equipment is vital. The needed equipment such as ventilators, CPAP machines, suction machines, specialist beds, standing frames and wheelchairs are very expensive and the growing need for such equipment is continuing to put pressure on the budgets of local statutory bodies. This means that accessing equipment can sometimes be a battle for the families and professionals. Harley and his family faced this challenge so for this reason, Harley’s Nanny, Teresa Blanchard set up a trust fund for him to try and raise money to buy a specialist wheelchair which he needed to help with his physical development. The event was a success and it lead to growing popularity for the trust and lead the way for many more events to come. Eventually the trust had been able to provide Harley with all of the vital equipment he needs, a trip to Disneyland Paris and a trip to Florida to swim with Dolphins. Harley’s family were then able to use raised funds to make donations to services for Children with life limiting and life changing conditions such as Schools, Hospital Wards and Children’s Hospice’s. His condition was very complex and it was an amazing achievement for him to reach that tender age. This achievement was a result of a combination of the love he received and the outstanding health care he received. In Harley’s memory, the trust has now become a registered charity with an aim to be able to provide vital equipment for children with life limiting and life changing conditions. Our first major project is to help the Paediatric Critical Care Unit at Nottingham's Children's Hospital, QMC by providing them with the equipment they need to be able to help long term patients have a more comfortable stay and also speed up there transition back home and into the community. This help will essentially help the unit free up bed spaces quicker which can subsequently save children's lives. The Harley Jae Trust is commited to making sure that awareness is raised around these issues and that we promote communitry involvment in making sure that children with life limiting and life changing conditions are supported as much as possible.

04/06/2026
Meet Malaky, he is taking on a huge challenge and is climbing Mount Kilimanjaro and has chosen us as of his three charit...
03/06/2026

Meet Malaky, he is taking on a huge challenge and is climbing Mount Kilimanjaro and has chosen us as of his three charities to raise money for children on PCCU

Malaky’s beautiful daughter, Milanna-May, was diagnosed with an aggressive form of Mitochondrial Disease at just 9 months old after suffering severe seizures. After an incredibly brave fight, Milanna sadly gained her angel wings in February 2025, aged just 3.

In her memory, Malaky is turning his grief into purpose by taking on one of the toughest mountains in the world to raise funds for charities that supported his family.

At The Harley Jae Trust, we support children on PCCU with life-limiting and life-changing conditions, helping families access the comfort, care and moments that matter most during the most difficult times.

If you can, please consider supporting Malaky’s journey and helping us continue supporting families who need it most. Every donation, no matter how small, makes a difference.

🩷 Thank you, Malaky, for honouring Milanna’s legacy in such a powerful way.

Donate here: https://www.justgiving.com/crowdfunding/malaky-eshelby-kilimanjaro?utm_medium=CF&utm_source=CL

We have 1 code left guys! grab it while its hot!!!email: info@theharleyjaetrust.org
03/06/2026

We have 1 code left guys! grab it while its hot!!!

email: [email protected]

🌍🏃‍♂️ Happy Global Running Day!

Today is all about celebrating the joy of running. The friendships formed, the confidence gained, the challenges overcome and the unforgettable finish-line moments that stay with us forever.

Whatever your reason for running from mental health, physical health, training for a PB, running for charity or simply enjoying the journey, every mile tells a story.

If you're looking for your next big goal, why not join thousands of runners at the Robin Hood Half Marathon on 27th September?

💚 Entries are already 75% sold out and we're on course for another record-breaking year, so don't leave it too late to secure your place.

👉 Enter now and celebrate everything running can achieve.

www.robinhoodhalfmarathon.co.uk

The countdown is on, and the guys from Melton Mowbray Round Table have been busy behind the scenes getting their cars re...
02/06/2026

The countdown is on, and the guys from Melton Mowbray Round Table have been busy behind the scenes getting their cars ready for the SkinFlint Rally!

This year's theme is Toy Story, and each car has been transformed with a character-inspired design... but can you guess who this one is? 👀🤔

Drop your guesses in the comments below! ⬇️

We'll reveal the answer soon and share more along the way

If you would like to take on one of these Peak District challenges on the 4/5th July please get in touch by end of weekE...
01/06/2026

If you would like to take on one of these Peak District challenges on the 4/5th July please get in touch by end of week

Email: [email protected]

WE NEED 5 AMAZING VOLUNTEERS! 🎉Want to be part of the incredible atmosphere at the Robin Hood Half Marathon without runn...
29/05/2026

WE NEED 5 AMAZING VOLUNTEERS! 🎉

Want to be part of the incredible atmosphere at the Robin Hood Half Marathon without running the 13.1 miles? 👀💙

The Harley Jae Trust is looking for 5 fun, friendly volunteers to join us on race day
You’ll be helping us:

🎈 Cheer on our runners
💙 Chat to supporters about our charity
🎯 Host mini games & activities
📣 Bring the energy and encouragement
✨ Help create an amazing atmosphere at our stand

No experience needed — just good vibes, enthusiasm, and a willingness to support an incredible local children’s charity 🫶

It’s such a fun day to be part of, and you’ll make a huge difference to our runners and supporters.

📩 Message us if you’d love to get involved!
[email protected]

Thank you to everyone who supports .💙🩵💙🩵💙🩵Your kindness helps us support families when they need it most.
27/05/2026

Thank you to everyone who supports .
💙🩵💙🩵💙🩵
Your kindness helps us support families when they need it most.

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Unit 5 Riverbank Business Park
Nottingham
NG139FX

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Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 9am - 5pm
Sunday 9am - 5pm

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