TOFS

TOFS TOFS: lifelong support those born with OA/TOF (Oesophageal Atresia / Tracheo-Oesophageal Fistula)

TOFS (Tracheo-Oesophageal Fistula Support) is a small charity dedicated to helping all who were born unable to swallow. Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions that occur in around one in every 3,500 births. The incidence is similar all over the world and there is no single known cause. Learning that their child has TOF/OA can be an extremely d

ifficult time for parents. From that first moment of learning that your baby has the condition to sharing the everyday challenges of bringing up a child with TOF/OA, being part of the TOFS charity offers friendship, support and information. We also provide support for adult TOFs

We are a founder member of EAT an International federation of support groups dedicated to gathering and disseminating practical and medical information about the condition. The EAT website provides further information: - www.we-are-eat.org

TOFS is a registered charity, no. 327735 and a limited company, no. 2202260 dedicated to providing emotional support to families of children born with Tracheo-Oesophageal Fistula, Oesophageal Atresia and associated conditions

This week is National Volunteers’ Week, a chance to say thank you to our amazing volunteers for all that they do. Please...
01/06/2026

This week is National Volunteers’ Week, a chance to say thank you to our amazing volunteers for all that they do.

Please join us in celebrating them for the time and hard work they give to help TOFS support our / community.

If you are interested in getting involved and volunteering for TOFS, please visit: https://tofs.org.uk/support-tofs/volunteer-for-tofs/ to find out more.

Keep your eyes peeled for the latest issue of Chew via post or email.You can also access it (and previous editions) on t...
01/06/2026

Keep your eyes peeled for the latest issue of Chew via post or email.

You can also access it (and previous editions) on the members site at https://members.tofs.org.uk/newsletter.aspx

If you are not yet a member of the TOFS Charity, please sign-up via: https://tofs.org.uk/join-tofs/

Why Join TOFS?

TOFS Members receive:

* Access to member only events and resources
* Direct support from TOFS’ Local Contacts (TLCs)
* 3 copies of Chew magazine a year by post (UK only) or email – PLUS access to the Chew magazine archive!
* Invitation to our annual conference
* An opportunity to influence and inform research into OA/TOF

Join the TOFS team and sign-up to one of our upcoming challenge events. Including:* Teddy Toddle: 5K walk for the whole ...
29/05/2026

Join the TOFS team and sign-up to one of our upcoming challenge events. Including:

* Teddy Toddle: 5K walk for the whole family
https://tofs.org.uk/event/teddy-toddle-2026/

* Peak District Ultra Challenge: Choose from 10 miles to 100K!
https://tofs.org.uk/event/peak-district-ultra-challenge-2026/

* Kiltwalk Dundee: Choose 4 miles or 20 miles
https://tofs.org.uk/event/kiltwalk-dundee-2026/

* Snowdon Sunrise: Conquer Mt Snowdon by Moonlight
https://tofs.org.uk/event/snowdon-sunrise-yr-wyddfa/

* Thames Moonlight Walk: Choose 10K or 10Miles
https://tofs.org.uk/event/thames-moonlight-10-walk/

* Thames Bridges Trek: 25K walk
https://tofs.org.uk/event/thames-bridges-trek/

* Kiltwalk Edinburgh: Choose from 4.6 miles right up to 21 miles
https://tofs.org.uk/event/kiltwalk-edinburgh-2026/

* Big Splash Swimathon: Choose your own distance!
https://tofs.org.uk/event/big-splash-swimathon-2026/

* Run Alton Towers: Choose from 5k, 10k & half marathon
https://tofs.org.uk/event/run_alton_towers_2026/

* London Landmarks Half – 2027
https://tofs.org.uk/event/london-landmarks-half-marathon-2027/

* Manchester Marathon 2027
https://tofs.org.uk/event/manchester-marathon-2027/

* Hackney Half 2027
https://tofs.org.uk/event/hackney-half-2027/

* Edinburgh Marathon / Half 2027
https://tofs.org.uk/event/edinburgh-marathon-half-marathon-2027/

Find out more at: https://tofs.org.uk/support-tofs/join-a-fundraising-event/

Today is World Barrett's Oesophagus Day - a day to highlight a condition that can affect those born with / . Take a l...
16/05/2026

Today is World Barrett's Oesophagus Day - a day to highlight a condition that can affect those born with / .

Take a look at the information and videos on our site that discuss the condition to learn more. You can find them at: https://tofs.org.uk/tag/barretts-oesophagus/

This weekend, four incredible legends are taking to the streets for the Hackney Half Marathon to support TOFS!A massive ...
15/05/2026

This weekend, four incredible legends are taking to the streets for the Hackney Half Marathon to support TOFS!

A massive shout-out and the best of luck to our dedicated runners: Leah, Natasha, Matt and Charlie.

If you’re heading down to Hackney this weekend, keep an eye out for our runners and give them a massive cheer!

Show Your Support
Every donation, no matter the size, can make a difference. You can support the runners at: https://fundraising.tofs.org.uk/fundraising-group/tofs-hackney-half-2026

Join the Parent & Carer virtual meet-up. Would you like to chat with other parents or carers of children born with OA/TO...
11/05/2026

Join the Parent & Carer virtual meet-up. Would you like to chat with other parents or carers of children born with OA/TOF?

Join our virtual meet-up for an opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand.

When:
7.30pm(UK), Tuesday, 12th May

Location:
Online, via Zoom

RSVP:
https://us02web.zoom.us/meeting/register/2QtmjhzVR96q1L97TVyPQw #/registration

This is an informal get together to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers, who are all also parents to children born with OA/TOF.

Places are limited and pre-booking is essential, so please register as soon as possible.

07/05/2026

The Teddy Toddle is back!

Join in the exciting fundraising event that challenges you to walk, run or even skip 5K for TOFS.

Find out more and register for your medal at:
https://tofs.org.uk/event/teddy-toddle-2026/

Address

St. George’s Centre, 91 Victoria Road
Nottingham
NG42NN

Telephone

+441159613092

Website

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