TOFS

TOFS TOFS: lifelong support those born with OA/TOF (Oesophageal Atresia / Tracheo-Oesophageal Fistula)

TOFS (Tracheo-Oesophageal Fistula Support) is a small charity dedicated to helping all who were born unable to swallow. Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions that occur in around one in every 3,500 births. The incidence is similar all over the world and there is no single known cause. Learning that their child has TOF/OA can be an extremely d

ifficult time for parents. From that first moment of learning that your baby has the condition to sharing the everyday challenges of bringing up a child with TOF/OA, being part of the TOFS charity offers friendship, support and information. We also provide support for adult TOFs

We are a founder member of EAT an International federation of support groups dedicated to gathering and disseminating practical and medical information about the condition. The EAT website provides further information: - www.we-are-eat.org

TOFS is a registered charity, no. 327735 and a limited company, no. 2202260 dedicated to providing emotional support to families of children born with Tracheo-Oesophageal Fistula, Oesophageal Atresia and associated conditions

Congratulations to all those who have already started (or even completed) their 5K Teddy Toddle for TOFS!If you are plan...
23/06/2026

Congratulations to all those who have already started (or even completed) their 5K Teddy Toddle for TOFS!

If you are planning to do your Teddy Toddle this week, please make sure you stay hydrated and out of the sun as much as possible - and don’t worry if you need to push your toddle back a little until the weather is more suitable.

If you would like to support our Teddy Toddlers, you can donate at: https://www.justgiving.com/campaign/tofs-tt-2026

If you would like to join in and do your own toddle, please sign-up at:
https://tofs.org.uk/toddle [link in bio]

Thank you to Dr Caroline Love and Kate Tyler for representing TOFS and raising awareness of OA/TOF at the BSG Live confe...
22/06/2026

Thank you to Dr Caroline Love and Kate Tyler for representing TOFS and raising awareness of OA/TOF at the BSG Live conference in Liverpool this week.

This annual meeting of the British Society of Gastroenterology brings together leading clinicians, researchers, and industry partners to share cutting-edge science, clinical advances, and collaborative innovation in GI and liver health.

This week is Small Charity Week - a time to learn, grow and celebrate the achievements of small charities right across t...
22/06/2026

This week is Small Charity Week - a time to learn, grow and celebrate the achievements of small charities right across the UK. It's also an opportunity to thank you, our amazing OA/TOF community, for making our work possible!

To find out more about what TOFS does at: https://tofs.org.uk/about-us/

And if you are able to support our work, please consider making a donation at: https://donate.justgiving.com/charity/tofs

The countdown is on! Just 1 week left to register to take part in this year's Teddy Toddle - the fun challenge where yo...
12/06/2026

The countdown is on! Just 1 week left to register to take part in this year's Teddy Toddle - the fun challenge where you can walk, run or even skip 5K for TOFS.

From the 20th to the 28nd of June we challenge you, your friends and family (and your teddy!) to get involved in this event that can be completed anywhere in the world.

You can even make it a group affair and get your whole school class involved.

Plus, join in and you can get an exclusive Teddy Toddle 2026 medal too!

Register today at: https://tofs.org.uk/event/teddy-toddle-2026/

Address

St. George’s Centre, 91 Victoria Road
Nottingham
NG42NN

Telephone

+441159613092

Website

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