TOFS

15/10/2026

Christmas shopping? You can help increase TOFS’s entries into easyfundraising’s giveaway to win a £250 donation - every new supporter who joins is an entry!

Plus every time you shop online you could be earning donations for TOFS!

Sign up before midnight 18th October, it’ll only take two minutes:

Help us when you shop with 8,000+ brands. Join now.

14/10/2026

The Chester Triple is back! Complete 3 races in the same year to earn the fantastic Chester Triple Medal!

Race 1: MBNA Chester 10K (6.2 miles), 14th March, 2027
Race 2: Essar Chester Half Marathon (13.1 miles), 16th May 2027
Race 3: Either the MBNA Chester Full Marathon (26.2 miles) or Metric Marathon (26.2 km), 10th October 2027

(These events are also available separately, if you prefer just one of them.)
Find out more at:
https://tofs.org.uk/333

[or via the challenge events link in bio]

But be quick - these events sell out every year!

10/10/2026

Today is World Mental Health Day, an opportunity to remind ourselves why good mental health is so vital, and how we can prioritise it in our lives. It is also a chance to talk openly and listen to the experiences of others.

The theme for this year is "Lived experiences heard: real voices, real change". With this in mind, we want to highlight a new survey from RareMinds that you may wish to take part in.

RareMinds is a specialist mental health service for the rare condition community. You may recall that TOFS recently commissioned them to facilitate two group programmes to support those born with OA/TOF: one for adults and one for parents (which is currently ongoing).

RareMinds would like to hear from everyone impacted by rare conditions - affected individuals, parents, carers, partners, and family members - about your experiences when trying to access professional mental health support.

You can find the survey at: https://www.smartsurvey.co.uk/t/RMSurvey2026/

You can also find more resources for Mental health on the TOFS website at: https://tofs.org.uk/oa-tof-information/resources/mental-health-resources/

07/10/2026

OA/TOF family meet up (Merseyside, 24th October). Don’t miss your chance to meet up with other OA/TOF parents and families from across Merseyside and the North West Region.

Alan & Carolyn, TOFS Local Contacts (TLC) for Merseyside, are organising an informal get-together at the stunning Shakespeare North Playhouse.

Find out more at:
https://tofs.org.uk/event/local-meet-up-merseyside-3/

Please note, this event is for parents & carers of children born with OA/TOF.

06/10/2026

Last call to sign-up to Team TOFS and take on the Manchester Marathon on the 18th April 2027.

Find out more and register at:
https://tofs.org.uk/event/manchester-marathon-2027/

The adidas Manchester Marathon, the UK’s second largest marathon and one of Europe’s largest is an iconic event drawing participants from all over the world to the vibrant streets of Greater Manchester.

28/09/2026

In the latest release from our 2026 Seminar, Head of Clinical Service and Consultant Paediatric Gastroenterologist (GOSH) Dr Osvaldo Borrelli presents on common gastrointestinal issues and the risk of Eosinophilic Oesophagitis (EoE) in patients born with OA/TOF.

A full write-up of Dr Borelli's presentation can be read in the latest issue of our Chew Magazine.

Watch now on the TOFS website of YouTube channel.

https://tofs.org.uk/oa-tof-information/oa-tof-videos/gastro-issues-and-eoe-eosinophilic-oesophagitis-in-patients-with-oa-tof/

25/09/2026

The Big Splash Swimathon is back! Sign-up and help support TOFS while staying active!

Choose to go it alone or get the whole family involved and set a group target. You can set your distance from our Mini splash right up to 10K or go freestyle and pick your own.

Get down to your local pool, lido or brave the open water and dive in!

Sign-up and claim your exclusive TOFS medal at: https://tofs.org.uk/event/big-splash-swimathon-2026/

23/09/2026

Your Summer/Autumn 2026 edition of Chew is now available!

As usual, it’s jam packed with real-life experiences and expert information for those affected by OA/TOF and related conditions.

Other highlights include:

* Inspiring stories from members sharing their personal journeys.
* Practical tips on feeding, weaning, and tube-feeding challenges.
* A guide on how to check if AI overviews for online health searches are accurate.
* Updates on medical advances and ongoing care from leading specialists.
* News from our OA/TOF community news, upcoming events and our fundraising round-up.

Read the full issue over on the TOFS Members site - https://members.tofs.org.uk/newsletter.aspx

Not yet a member? Sign up at:
https://tofs.org.uk/join-tofs/

21/09/2026

Amazing! George has completed his 450 mile bike ride for TOFS!

What an achievement!

You can sponsor George at: https://www.justgiving.com/page/cycle4tofs

21/09/2026

Please join us as we celebrate TOFS Class of 2026 as they start or return to school, nursery or college.

Don’t forget, you can find helpful school resources for those born with OA/TOF on our website - https://tofs.org.uk/oa-tof-information/parents/the-school-years/

If you would like to support our work, please consider making a donation at:
https://tofs.org.uk/support-tofs/how-to-donate-to-tofs/