Sickle Cell Convos

Sickle Cell Convos Conversations about Sickle Cell Disorder. Talking about sickle cell disease from the angle of someone

Yesterday, I had my first Red Cell Exchange as an outpatient this year. The previous two have been as an inpatient. It c...
14/03/2026

Yesterday, I had my first Red Cell Exchange as an outpatient this year. The previous two have been as an inpatient. It can be very overwhelming spending long and repeated periods in hospital, but as warriors that we are, we just have to buckle up and march through it. The last seven months have been a bumpy ride for me medically, but in between, I have had very good times with family & friends and created beautiful memories. If you live with sickle cell, please don't let the condition control your life. You owe it to yourself to have good times and memories with those that matter most to you. Sending love to all warriors ❣️ And as always, thank you to all blood donors 🙏🏾❣️🩸

sicklecellwarrior
sicklecellawareness sicklecelladvocate sicklecelladvocacy

Fantastic news
03/03/2026

Fantastic news

Breaking news: We have been in discussions with commissioners regarding the Same Day Emergency Care Unit at The Royal London Hospital, and as a result, it will reopen.
Full statement to follow.

Hello, all. I recently used a Portable Oxygen Concentrator POC on a flight and I have shared the entire process here. Pl...
14/01/2026

Hello, all. I recently used a Portable Oxygen Concentrator POC on a flight and I have shared the entire process here. Please watch, like, comment and share. Thank you 🙏🏾

There are two ways of getting oxygen when flying. In this video, I discuss the process using a Portable Oxygen Concentrator (POC) and also talk about my pers...

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