Sickle Cell Convos

29/10/2025

It seems COVID is making a comeback. Please protect yourself especially if you're a sickle cell warrior.

29/10/2025

The need to advocate for yourself cannot be overemphasised in sickle cell. As said in this video, you know yourself the best, also you know if the care being received is subpar, hence it is essential to speak up in any situations where you are not getting correct care. Remember to ask the doctors all the questions that you can. Remember to ask them for more testing to get to the root of what is happening. Remember that it is your right to seek a second opinion if need be or even ask about alternatives regarding any issues you may have with your health. Be your own voice. Parents of young warriors are their voices, please speak up always on their behalf.

22/10/2025

Early presentation to hospital is very, very important in Sickle Cell. Unfortunately because sickle cell can affect anywhere that blood gets to in the body, which is everywhere, it means that sometimes some organs are affected and because the warrior does not present early to hospital, thinking that it is just a normal crisis that will resolve when they take care of it at home, by the time they eventually present to the hospital or their heamatologist, the issue is too far gone and in some cases, the warrior cannot be helped. The issue has either become permanent or even in some cases, life is lost either because the organs have been starved of oxygen for too long and the organs have packed up or some other reasons. Doctors can only help us if we present to hospital early, so please take this seriously.
𝙋𝙎. 𝙁𝙪𝙡𝙡 𝙫𝙞𝙙𝙚𝙤 𝙘𝙤𝙪𝙡𝙙𝙣'𝙩 𝙗𝙚 𝙥𝙤𝙨𝙩𝙚𝙙 𝙝𝙚𝙧𝙚, 𝙪𝙣𝙛𝙤𝙧𝙩𝙪𝙣𝙖𝙩𝙚𝙡𝙮. 𝙏𝙤 𝙨𝙚𝙚 𝙩𝙝𝙚 𝙧𝙚𝙢𝙖𝙞𝙣𝙞𝙣𝙜 𝙥𝙖𝙧𝙩, 𝙥𝙡𝙚𝙖𝙨𝙚 𝙘𝙝𝙚𝙘𝙠 𝙤𝙪𝙩 𝙢𝙮 𝙏𝙞𝙠𝙏𝙤𝙠 𝙤𝙧 𝙔𝙤𝙪𝙏𝙪𝙗𝙚 𝙝𝙖𝙣𝙙𝙡𝙚𝙨, 𝙗𝙤𝙩𝙝 @ 𝙨𝙞𝙘𝙠𝙡𝙚𝙘𝙚𝙡𝙡𝙘𝙤𝙣𝙫𝙤𝙨. 𝙏𝙝𝙖𝙣𝙠 𝙮𝙤𝙪 🙏🏾

15/10/2025

It is very important that sickle cell warriors know the usual triggers for a sickle cell crisis, so that they can work hard towards avoiding the trigger leading to a crisis. There are so many things that can trigger a sickle cell crisis. To name a few; infection, stress, dehydration, malaria, high altitude, changes to weather and temperatures e.g extreme heat or extreme cold, surgeries and some medical procedures, e.t.c
Please ensure you're well educated about the possible triggers so you can be careful when exposed to them.
𝙋𝙎. 𝙁𝙪𝙡𝙡 𝙫𝙞𝙙𝙚𝙤 𝙘𝙤𝙪𝙡𝙙𝙣'𝙩 𝙗𝙚 𝙥𝙤𝙨𝙩𝙚𝙙 𝙝𝙚𝙧𝙚, 𝙪𝙣𝙛𝙤𝙧𝙩𝙪𝙣𝙖𝙩𝙚𝙡𝙮. 𝙏𝙤 𝙨𝙚𝙚 𝙩𝙝𝙚 𝙧𝙚𝙢𝙖𝙞𝙣𝙞𝙣𝙜 𝙥𝙖𝙧𝙩, 𝙥𝙡𝙚𝙖𝙨𝙚 𝙘𝙝𝙚𝙘𝙠 𝙤𝙪𝙩 𝙢𝙮 𝙏𝙞𝙠𝙏𝙤𝙠 𝙤𝙧 𝙔𝙤𝙪𝙏𝙪𝙗𝙚 𝙝𝙖𝙣𝙙𝙡𝙚𝙨, 𝙗𝙤𝙩𝙝 @ 𝙨𝙞𝙘𝙠𝙡𝙚𝙘𝙚𝙡𝙡𝙘𝙤𝙣𝙫𝙤𝙨. 𝙏𝙝𝙖𝙣𝙠 𝙮𝙤𝙪 🙏🏾

08/10/2025

Nutrition is very important in Sickle Cell. Warriors should be eating foods that are very rich in natural Iron. Foods like green leafy vegetables, red meat, poultry, fortified cereal etc. Also, Vitamin C helps us to absorb the iron better so it's essential to take foods rich in Vitamin C as well. A sickle cell warrior should also avoid foods that can cause dehydration. Also you have to consider food-drug interactions and avoid some foods or drinks if it will interact with the medication you are on. Ensure you're eating healthy food and avoiding the over processed, junk foods.
𝙋𝙎. 𝙁𝙪𝙡𝙡 𝙫𝙞𝙙𝙚𝙤 𝙘𝙤𝙪𝙡𝙙𝙣'𝙩 𝙗𝙚 𝙥𝙤𝙨𝙩𝙚𝙙 𝙝𝙚𝙧𝙚, 𝙪𝙣𝙛𝙤𝙧𝙩𝙪𝙣𝙖𝙩𝙚𝙡𝙮. 𝙏𝙤 𝙨𝙚𝙚 𝙩𝙝𝙚 𝙧𝙚𝙢𝙖𝙞𝙣𝙞𝙣𝙜 𝙥𝙖𝙧𝙩, 𝙥𝙡𝙚𝙖𝙨𝙚 𝙘𝙝𝙚𝙘𝙠 𝙤𝙪𝙩 𝙢𝙮 𝙏𝙞𝙠𝙏𝙤𝙠 𝙤𝙧 𝙔𝙤𝙪𝙏𝙪𝙗𝙚 𝙝𝙖𝙣𝙙𝙡𝙚𝙨, 𝙗𝙤𝙩𝙝 @ 𝙨𝙞𝙘𝙠𝙡𝙚𝙘𝙚𝙡𝙡𝙘𝙤𝙣𝙫𝙤𝙨. 𝙏𝙝𝙖𝙣𝙠 𝙮𝙤𝙪 🙏🏾

02/10/2025

Audrey Mukoro, the Founder of Audrey Sickle Cell Foundation and South South Regional Head, Coalition of Sickle Cell NGOs Nigeria, has spent years giving her all to others. But today, she is the one in urgent need. 💔

She has been diagnosed with hyperthyroidism, and doctors have recommended an urgent surgery costing ₦10,000,000 to save her life and prevent grave complications.

For someone who has poured her heart into advocacy and service, it is not easy to admit helplessness. But right now, Audrey cannot fight this battle alone. She needs us - your love, your prayers, your support. 🙏

Please donate what you can. No amount is too small. Together, we can give her the chance to heal.

Premium Trust Bank: 0040102708 (Tag: Audrey)
Sterling Bank: 0071759277 (Tag: Audrey)

Let us stand for her the way she has stood for so many.

Please share.

23/09/2025

September is Sickle Cell Awareness Month. Personally I'm very happy to see how far sickle cell awareness has come, compared to how it was many years ago. More people now know about the condition. However we can never stop the awareness because people are still ignorant about the realities of living with the disease. People still wonder why we call it a disability, people wonder why we complain about the stigma and medical bias we encounter, and no matter how close someone is close to a warrior, they really can never fully understand the pain and internal struggles we battle with every single day. To warriors, our families and friends, please continue to spread the awareness. If you know anyone with sickle cell or work with someone with sickle cell, please be kind and extend grace to them. They are trying their best.
I cannot talk about sickle cell awareness without mentioning the good work that voluntary blood donation has done to me and all warriors who rely on regular blood exchanges. A big thank you to the wonderful blood donors who keep us going. If you can donate blood, please do and think about signing up today as each time you give, your blood can save up to three lives.
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16/09/2025

Missed this livestream when we did it? Need to refresh your memory? It's now uploaded on my YouTube page. Please watch, like, comment, share, subscribe and hit the notification bell. Thank you 🙏🏾

This was a live stream originally held on 26/9/2021. Educating us is Dr Yusuf Adelabu, Haematologist Lagos University Teach Hospital LUTH, Lecturer at Colleg...

08/09/2025

https://youtube.com/shorts/TE3C2FaCdn8?si=4DW9TSU6z5vIRgJO

My first ever video on Sickle Cell Convos YouTube page. Please like, subscribe, hit the notification bell, and share. I will appreciate all the support I can get. Thank you so much 🙏🏾❤️

My name is Oyesola. I am 42 years old and I was born with Sickle Cell, I'm HbSS. I currently live in the UK, and I'm a mother to an 18 year old. I plan to sh...

02/09/2025

September! A very significant month in the sickle cell community. Spread the message. Shine the light. Donate blood. We can never talk too much about sickle cell.

28/08/2025

A team from Haemoglobinopathies will be taking part in The Big QMC Abseil on September 6th. They will be abseiling down the Queen’s Medical Centre in Nottingham to raise money for the Haemoglobinopathy Creative Voices Project. This project is an art-based project that they hope to launch in 2026. This initiative aims to amplify the lived experiences of people with Sickle Cell and Thalassemia who receive care at Nottingham University Hospitals NHS Trust. If you receive care in Nottingham and you're interested in being part of the art project, please see details on the second slide for how to contact the team. This is part of the team that takes care of me so this is dear to me. Please help them to reach and exceed their fundraising goals by giving at
https://www.justgiving.com/team/creativevoicesproject?utm_medium=TE&utm_source=CL (link will also be in my bio)

Please give under Laurie's name if you can as that's my Clinical Psychologist. Please support the fundraising and help us raise enough funds to sponsor the art project. It will be a great project for sickle cell and thalassemia patients to get involved in. Please share this post too so as many people as possible can see it. Thank you all.