Stand Against MND

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Stand Against MND Stand Against MND is a charitable incorporated organisation. Registration Number: 1187436.

Registered Address:12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX.

25/09/2026

🥳 HAPPY HEAVENLY BIRTHDAY SAM ~ Part 3. 🥳

Two of our fantastic local hospices remember Sam and reflect on his legacy on what would be his 45th birthday.

Happy Birthday Sam, we Stand Against MND.

25/09/2026

🎂HAPPY HEAVENLY BIRTHDAY SAM ~ Part 2. 🎂

Our fantastic research partners remember Sam and reflect on his legacy on what would be his 45th birthday.

Happy Birthday Sam, we Stand Against MND.

25/09/2026

🤍 HAPPY HEAVENLY BIRTHDAY SAM ~ Part 1. 🤍

Our fantastic Patrons remember Sam and reflect on his legacy on what would be his 45th birthday.

Happy Birthday Sam, we Stand Against MND.

.mcclure

THANK YOU TO THE CHARNWOOD SNOOKER LEAGUEOur Sam was a keen sportsman and regularly played in a team for the Charnwood S...
15/09/2026

THANK YOU TO THE CHARNWOOD SNOOKER LEAGUE

Our Sam was a keen sportsman and regularly played in a team for the Charnwood Snooker League. We are thrilled to have received a generous donation from them in Sam’s honour.

A huge thank you to the entire club and committee for thinking of Sam and joining us in the Stand Against MND.

🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍🤍

19/05/2026

🤍♿️ SAM’S RACE LEGACY MAKING NEWS! ♿️🤍

A huge thank you to for reporting on this important donation to

Sam wanted to squeeze every last moment from life ~ in doing that he not only encouraged others to do the same, but helped to enable that.

With this donation, others who face similar mobility challenges will be able to experience the exhilaration or participating in a road race.

Listen out for further reports on BBC Radio Nottingham ~ Weds 20 May at 7:40am (ish!).

🎉♿️ SAM’S RACE LEGACY CONTINUES ♿️🎉We are proud to announce that Sam’s race chair has been donated to so the experience...
17/05/2026

🎉♿️ SAM’S RACE LEGACY CONTINUES ♿️🎉

We are proud to announce that Sam’s race chair has been donated to so the experience of participating in a road race is accessible to more people!

We have only asked in return that and his team try to prioritise use of this special race kit for those diagnosed with motor neurone disease and, if the racer is fundraising, to raise funds for Stand Against MND.

~ thank you for your invaluable support, guidance and creativity to help Sam achieve his ambition of completing the London Marathon and so many more races!

🎯🧡OVER £15K RAISED FOR 🧡🎯The incredible Team SAM have smashed their target and raised over £15k for the Motor Neurone D...
05/05/2026

🎯🧡OVER £15K RAISED FOR 🧡🎯

The incredible Team SAM have smashed their target and raised over £15k for the Motor Neurone Disease Association by running the 2026!

WELL DONE 👏🏼 .j.rawling 👏🏼 👏🏼 .fraser.3386 👏🏼

🧡🤍 LDN 26 ~ THE MEMORY MARATHON 🤍🧡Stand Against MND is so grateful for all the fabulous people who make up Team SAM and ...
27/04/2026

🧡🤍 LDN 26 ~ THE MEMORY MARATHON 🤍🧡

Stand Against MND is so grateful for all the fabulous people who make up Team SAM and our marathon runners are top of that list!
j.rawling .fraser.3386 and you all did an amazing job training for and running the marathon. It is people like you who help us to keep Sam’s legacy alive and Stand Against MND in the spotlight.

Emotions were riding high (we managed to get a few snaps where Tom wasn’t crying 😉) and Mandy battled through even when her hamstring tried to convince her otherwise!

The determination, courage and passion for the cause shone through our Team SAM (as well as the actual ☀️!), runners ran and supporters supported (special shout out to long-time Team SAM member for coming down to support) and the donations came pouring in.

MND is a cruel disease that takes away a persons independence bit by bit, in any order it chooses and at any pace it likes. Will it be arms next? Voice? Diaphragm? Who knows? No one. That’s why Sam passionately believed that MND isn’t incurable, it’s research is just under funded.

Stand Against MND is proud to have been a fundraiser for the for this years raising funds to help research to find a cure for MND.

Until next time!!!

🧡🤍 TEAM SAM LAY FLAT LDN 2026 🤍🧡 .j.rawling .fraser.3386
25/04/2026

🧡🤍 TEAM SAM LAY FLAT LDN 2026 🤍🧡

.j.rawling .fraser.3386

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