Psoriatic Disease UK

Psoriatic Disease UK For every person living with psoriasis, psoriatic arthritis and associated conditions. Patient-led, Person-centred. Reg. charity in England & Wales (1209730)

We raise awareness, build peer spaces and collaborate to support you between appointments.

Living with psoriasis is about so much more than just the physical symptoms—the emotional and mental burden is something...
10/06/2026

Living with psoriasis is about so much more than just the physical symptoms—the emotional and mental burden is something we speak about often here at Psoriatic Disease UK. 🗣️🧠

We are currently sharing an independent academic study from researchers at Royal Holloway, University of London. They are piloting a new, self-guided online programme designed to build self-compassion and improve emotional wellbeing for people living with psoriasis.

Please note: Psoriatic Disease UK is not affiliated with this research, but we are happy to share unfunded academic studies that aim to improve the lives of our community!

Who they need: Adults diagnosed with psoriasis for 1+ years who are not currently receiving psychological therapy.
What it involves: A 5-week online programme (30 mins/week) plus a few questionnaires.

👉 Want to learn more or sign up? Read all the details on our blog here: https://www.psor.org/post/supporting-psoriasis-wellbeing-take-part-in-a-new-academic-research-study or email the researcher directly at [email protected].

Share Your PSOR Experience by tagging us on Instagram and Facebook to have your quotes featured to help us raise awarene...
07/06/2026

Share Your PSOR Experience by tagging us on Instagram and Facebook to have your quotes featured to help us raise awareness!

What is one item or life hack that has unexpectedly made managing your flare-ups a little easier?
07/06/2026

What is one item or life hack that has unexpectedly made managing your flare-ups a little easier?

If you could change one thing about living with psoriasis or psoriatic arthritis, what would it be?
06/06/2026

If you could change one thing about living with psoriasis or psoriatic arthritis, what would it be?

June’s Newsletter is landing in inboxes! 🧡💜Our latest edition is out now with subscribers, sharing the newest updates fr...
04/06/2026

June’s Newsletter is landing in inboxes! 🧡💜

Our latest edition is out now with subscribers, sharing the newest updates from Psoriatic Disease UK and highlighting fresh ways for our community to get involved.

Here is a look at what is inside this month:

NHS waiting list survey: A vital chance to share your experiences and ensure your voice is heard.

The new Information Hub: Bringing trusted, essential resources together in one easy-to-access place.

Guest blog spotlight: Exploring how assistive technology supports everyday life.

Psoriatic Disease: 360: An important update on our ongoing work to understand the full impact of living with psoriatic disease.

Want to stay connected? If you would like to keep up to date with our work, discover new projects, and find opportunities to share your voice, subscribing is the best way to do it.

👇 Sign up to receive future newsletters via the link in the comments.

Thank you for being part of the TeamPSOR community! 🧡💜

💬 Looking for a space where people really get it?Join us at the PSOcial Hangout — our unique monthly social video call o...
03/06/2026

💬 Looking for a space where people really get it?

Join us at the PSOcial Hangout — our unique monthly social video call on the PSOcial Space Discord Server 💜🧡

📅 Every first Wednesday of the month
⏰ From 7pm
Whether you want to:

👂 Listen quietly
💬 Chat with others
🎮 Play games
🎤 Take the mic and share your experiences

…you’re welcome exactly as you are. This is a relaxed, friendly space to connect with others living with psoriatic disease — no pressure, no judgement, just community 💜

👉 Join us live: https://psocial.psor.org

Worried about getting a diagnosis of psoriatic disease?For many people, the road to diagnosis isn’t simple — symptoms ca...
02/06/2026

Worried about getting a diagnosis of psoriatic disease?

For many people, the road to diagnosis isn’t simple — symptoms can be missed, misunderstood or dismissed. You’re not imagining it, and you’re not alone.

We’ve created a blog to explain what to expect and link you to our full Getting a Diagnosis of Psoriatic Disease guide 🧡

📘 Read the blog and explore the resource here:
👉 https://www.psor.org/information-hub/getting-a-diagnosis-of-psoriatic-disease

Clear information. UK‑relevant guidance. Real support 💜

Some days feel lighter. Some days feel heavy. Both are part of life with psoriasis—and both are valid 🧡💜We’ve shared wha...
31/05/2026

Some days feel lighter. Some days feel heavy. Both are part of life with psoriasis—and both are valid 🧡💜

We’ve shared what “good days” and “hard days” really look like in our latest blog.

💬 What does a good day mean to you?
🔗 Read the blog (link in bio)

Living with a condition that impacts your dexterity can be unsettling. Tasks take longer, and typing can lead to pain an...
29/05/2026

Living with a condition that impacts your dexterity can be unsettling. Tasks take longer, and typing can lead to pain and fatigue.

But technology is becoming more inclusive. 📱💻

In our latest guest post, volunteer and mum of two, Vicky, opens up about her eight-year journey with psoriatic disease and the tools she uses to adapt.

"I’m a big believer in adapting your environment to suit your needs... It’s encouraging that technology is becoming more inclusive." — Vicky

Visit psor.org/post/assistive-technology-and-me to read the full post!

🧡Life doesn’t pause between appointments — and neither do our symptoms💜For people living with psoriasis and psoriatic ar...
27/05/2026

🧡Life doesn’t pause between appointments — and neither do our symptoms💜

For people living with psoriasis and psoriatic arthritis, the in‑between can be just as challenging as the appointments themselves. While we’re waiting for the next review, adjustment, or answer, everyday life still needs to be managed.

Some practical things our community often finds helpful between appointments include:

🧡 Keeping a simple note of symptoms, energy levels, or questions so nothing gets forgotten
💜 Pacing yourself and choosing where to spend your energy — even small decisions count
🧡 Leaning into gentle routines that bring a sense of steadiness, like rest, movement, or quiet moments
💜 Being kind to yourself on harder days, without guilt or comparison
🧡 Staying connected with people who understand — peer support can make a real difference

There’s no single “right way” to cope, and what helps can change week to week. What matters is knowing you’re not alone 🧡💜

💬 What helps you manage life between appointments? Share below — your experience could help someone else today.

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