MND Association

07/06/2026

As Volunteers’ Week comes to a close, we’d love to hear about a volunteer, or volunteer experience, that matters to you. Share below.

06/06/2026

Association Visitors (AV) play a vital role in supporting people with and affected by MND. They offer guidance, support in grant applications and most importantly, become a friend and a listening ear. Chris became a volunteer in 2005 after his wife was diagnosed with MND. He is now an AV. Learn about his experience.

05/06/2026

Become a volunteer and help make every day matter. Find the role that’s right for you

04/06/2026

Today, we supplied evidence to support the approval of tofersen as a treatment for people with SOD1 MND.

The window for submissions to the National Institute for Health and Care Excellence (NICE) closes today (4 June), with assessors now deciding whether the drug should be made available on the NHS.

Quotes from interviews, survey results and the nomination of 'patient experts' with a lived experience of MND were included in our submission of evidence. Read more here:

The MND Association has today supplied evidence to support the approval of tofersen as a treatment for people with SOD1 MND

03/06/2026

To mark Volunteers’ Week, we visited a support group session run by the Milton Keynes Branch. It is one of the 150+ support groups run by our branches and groups, virtually and in person.

02/06/2026

As a volunteer social media officer, Amelia is keen to drive the conversation on MND-related campaigning and legislation. Learn more about her experience as a volunteer.

31/05/2026

The process which provides people with MND with funds to help them make vital home adaptations moves too slowly and is too outdated. It means people like Martin had to drain his savings in order to live safely in his home. People with MND do not have time to waste.

Help unlock the door. Write to your councillor.

🔗mndassociation.org/unlockthedoor

30/05/2026

Calling all cricket fans! This summer, turn your passion for the sport into support for people with MND. 🏏

— Host a cricket tea or post match beer and barbeque
— Test your endurance with an epic 6, 12 or 24 hour cricket marathon
— Get friends or colleagues together for a charity match

Sign up now to get your fundraising pack. Every over matters.

🔗mndassociation.org/cricket

29/05/2026

The adaptations Martin made to his home weren’t a choice — they were a necessity. People with MND deserve to live safely and comfortably, yet the Disabled Facilities Grant process isn’t working as it should.

Help unlock the door for people with MND. Write to your councillor.
🔗mndassociation.org/unlockthedoor