The Connection Collective

The Connection Collective A community of support. All welcome.

Offering connection through events, coaching & online spaces, as well as accessible training bringing a mix of science & lived experience.

21/08/2026
Please sign
06/08/2026

Please sign

I believe that the Government’s proposed SEND reforms could limit EHCPs, weaken legal rights, replace individual plans with packages, reduce appeals, and remove school choice. In my view, children could be left without the support they need as a result.

06/08/2026

What's this? 🤔

It's a map of where all the "never satisfied" SEND parents and carers live. 🙄

Take a look at my pinned comment. ⬇️

I'd love to say more, but whenever I use certain words, people don't seem to see these posts.

Funny that... 😉

Edit: Just to clarify, this map relates to England only and the proposed SEND reforms in England.

Parents and carers in Wales, Scotland, Northern Ireland, the Channel Islands and elsewhere are absolutely not forgotten. 💜

Edit 2: A few people have asked what the map actually shows. It's based on where people have signed the link in my pinned comment. If your area isn't as red as you expected, that doesn't mean families aren't struggling, it simply reflects where signatures have been recorded so far.

The "never satisfied" wording is tongue-in-cheek and in response to comments I've received this week. 💜

28/07/2026

This is so dangerous. I work closely with many disabled teenagers and know first hand the barriers they face to get the bare minimum of support.

Most don’t get PIP at all even though they would qualify as the assessment process is such a barrier to them.

Youth services, mental health support and systems to work with young people to provide strategies that help manage their challenges have all been stripped back & many don’t exist anymore.

When I first qualified as a youth and community worker there were Connexions drop in shops and case managers who could teach and support young people Not in Education Employment or Training (NEET), they’d work closely with local youth workers who got to know young people through activities and projects that were open to all but also that targeted the most vulnerable to help build their self esteem, build skills and give them opportunities for qualifications such as AQA, ASDAN & Arts Award.

Most areas do not employ youth work teams or run youth centres or projects now, they definitely don’t have funding for specialist workers who support young people with disabilities & the teams that supported all young people in the NEET category are largely gone - the funding just isn’t available.

It’s no wonder that young people are struggling with mental health crisis’s - we know there are less PT jobs and starter positions available due to changes in how we work, so for those with any kind of disability they are even less able to access work or education that is suitable for them.

I must write a whole post about how young people are failed by the current education system and how the governments proposed changes will further disadvantage and actually harm disabled and SEN young people and their families - it’s too long to include here!

I’ll end by sharing my experience, that these young people who have huge levels of anxiety often battling self harm, intrusive thoughts & battling to stay alive (the su***de rates in this group are heartbreakingly high), are kind, thoughtful, bright and sparky, they are determined and resilient. They have the most empathy and are so inclusive in the way they show up for others and cheer them on - they often have no real support whatsoever, even when multiply disabled, and if they can get some level of PIP it can be able them to but the mobility aids, the counselling or transport to access the community at all rather than becoming completely isolated at home - they work hard supporting the development of services, advocating, and providing the highest level of mental health support to their peers because no one else is, and they know how hard it is, what may help a tiny bit and what
platitudes completely fail to help…

Sending love to each and every person or family that is struggling with this awful narrative on top of their daily challenges.

If a space to discuss what’s going on for you, with lived experience and professional experience of services and strategies might be useful. Comment SPACE, and I’ll share my current coaching offer with you and send you to my free resource 💙✨

23/07/2026

🌊 Join us for our private hire, discounted SEND Paddle Boarding session on the beautiful River Nene at Earls Barton! 🏄‍♀️💜

22nd July 2026
Sessions at 10:00am, and 11:30am, (if there is demand more will be added)

Led by the fantastic team at Gaia SUP & Wellness on the water, this session is a wonderful opportunity to enjoy the great outdoors, immerse yourself in nature and experience the tranquility of paddle boarding alongside other SEND families.

Whether you’ve paddled before or are a complete beginner, everyone is welcome to come along and have fun on the water in a relaxed and supportive environment. 🌿

🟣 Paddle boarding session on the River Nene
🟣 Suitable for beginners and experienced paddlers
🟣 Age 5+
🟣 Small group experience
🟣 Led by qualified instructors from Gaia SUP

Important information:

• An adult aged 18+ must accompany young people on the water, therefore the ticket price shown is for 2 attendees (Adult and young person) £30.25
• Additional paddlers are £15.25 each and subject to availability. Please email [email protected] if you would like to add extra paddlers
• All bookings are non-refundable
• Bookings are non-transferable
🦺 Buoyancy aids/life jackets MUST be worn at all times whilst on the river, regardless of swimming ability.

Session waiver:

A waiver form will need to be completed with Gaia SUP & Wellness. By booking, you agree to your details being shared with them for the purpose of this event.

What to bring:

🟣 A drink
🟣 Clothes suitable for the weather
🟣 Thin/light layers, leggings or shorts
🟣 Old trainers, water shoes or wetsuit boots
🟣 Towel and a change of clothes

Please note:
🚫 There are no toilets or changing rooms on site
🌊 You may end up saying hello to the water!

Come along for a calming, confidence-building and fun experience on the river with other like-minded SEND families! 💜

Book your place here: https://npcv.co.uk/book-a-service%2Fevent

20/07/2026

Children increasingly need support for severe anxiety, depression, obsessive compulsive disorder, eating disorders and behaviour disorders

12/07/2026

One law for parents. No law for the state.

When a court orders a parent to act in a child’s interests and they fail to do so, the state can imprison them.

When a court orders a local authority to act in a child’s interests and it fails to do so… the state does nothing at all.

Worse. This state is *so* comfortable in its impunity that it isn’t even being counted.

Families were not overwhelmed by a feeling.
They were made powerless- in some cases, deliberately, and by design- by authorities acting unlawfully, and by a Department that has watched it happen.
______________________________

Today, under increasing pressure about the unlawful, harmful conduct of Local Authorities, this Minister offered platitudes. Then reminded the public how hard this is for Local Authorities.

Minister. System strain and conduct are *not* the same thing. This Department keeps answering the first to avoid the second.

System strain is real. But strain is not what breaks families. What breaks them is conduct… the deliberate use, (and knowing misuse), of power against children who have a legal right to protection from it.

That is where the deepest trauma lives.
That is where trust is destroyed.
This is where children and families are broken.

And it has a name:

Misconduct.

A local authority that knowingly ignores a statutory duty, or worse, a judge-issued, legally binding Tribunal order about that same child? Where continued failure to comply is leading to ongoing and escalating harm? Our state is so confident in its impunity that it isn’t even counted.

We know. We asked.

Local authorities are documented to have systemically… and in some cases knowingly and deliberately, broken the law. Thousands of pages of evidence, submitted to Parliament, show this has caused catastrophic harm to children and to entire families.

Not friction.
Not delay.
Not administrative difficulties.

Harm.

And yet, these reforms still propose to expand those authorities’ powers, while vastly narrowing the judicial oversight that exposed the conduct in the first place.

So Minister, no amount of platitudes, soft lighting or sofa interviews explains that away.

A department that has seen the evidence and still chooses to legislate away the mechanism that surfaced it is not a bystander to the harm that follows.

It is a participant in it.

So our question is this:

Minister, when a parent ignores a court order about their child, they can go to prison. When a local authority wilfully ignores a Tribunal order about that same child, what happens?

We know what the evidence shows.
So does this Government.

The only question left is whether the Department will act… or wait to be compelled. We are ready for either.

Measure What Matters
______________________________

In 2024, Measure What Matters first began collecting evidence of what appeared to be serious maladministration and misconduct by local authorities in relation to their SEND duties. When our data analysis aligned with what families were reporting, we knew urgent action was needed.

At 100 testimonies, they were presented to the Secretary of State.

At 600, Chris Coghlan, MP first presented them to Parliament.

At 1,200, they were presented again… and shortly afterwards Parliament debated them.

Our work with ITV has now seen a whistleblower corroborate what families had already made known. And Chris Coghlan MP’s tireless parliamentary representations on these issues mean this record is simply undeniable.

The record now runs to thousands of pages of testimonial evidence, across more than 140 local authorities in England. And it exists solely because thousands of brave, determined, broken families were willing to say, on the record, what was done to them.

If you have not yet shared your experience, you can do so here:

https://survey.yourviewsyourvoice.org/

Finally. You are being heard.

Address

Northampton

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